Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status Sort ascending | Summary |
---|---|---|---|---|
Utah | 2021 State Bills Utah 2021 SB 200 | Privacy | Died | Provides consumers the right to access, correct, and delete certain personal data. Gives consumers the right to opt out of the collection and use of personal data for certain purposes. Requires certain businesses that control and process personal data of consumers to: safeguard personal data; provide clear information to consumers regarding how the consumer's personal data are used; accept consumer requests to exercise the consumer's rights under this bill; comply with a consumer's request to exercise the consumer's rights under this bill; and maintain data protection assessments. Creates a process for a consumer to submit requests and appeal a business's decision regarding the business's processing of the consumer's personal data. Allows the Division of Consumer Protection to accept and investigate consumer complaints regarding the processing of personal data. Creates a right for a consumer to know what personal information a business collects, how the business uses the personal information, and whether the business sells the personal information. Allows a consumer to require a business to delete personal information, with |
Wisconsin | 2020 State Bills Wisconsin 2020 AB 870 | Privacy | Died | Requires controllers of consumers' personal data to provide a consumer with copies of the consumer's personal data processed by the controller. Personal data includes genetic information. 4/1/2020 Failed to pass pursuant to Senate Joint Resolution 1. |
California | 2007 State Bills California 2007 SB 164 | Use of Residual Newborn Screening Specimens | Died | This bill amends existing law pertaining to pregnancy blood samples. Existing law provides for the use of samples for approved research projects and establishes confidentiality and privacy protections with regard to samples and related personal information. This bill renames the term "pregnancy" blood samples by referring to them as "newborn" blood samples. Measure failed. |
Florida | 2019 State Bills Florida 2019 SB 1726 | Privacy | Died | Enacts the Parents Bill of Rights. Parental rights include the right to consent in writing before any record of his or her minor child�s blood or deoxyribonucleic acid (DNA) is created, stored, or shared, except as required by general law or authorized pursuant to a court order. Died. |
Kentucky | 2018 State Bills Kentucky 2018 SB 33 | Privacy | Died | Requires certain information holders to encrypt personally identifiable data, which is defined to include a genetic print. Information holders must report a breach of personally identifiable information to consumers. Died. |
Maryland | 2019 State Bills Maryland 2019 SB 871 | Privacy | Died | Establishes the Healthy Maryland Program. Requires the Board to establish requirements and standards to consistent with state nondiscrimination laws, including those pertaining to genetic information. Participating providers may not refuse to provide health care services on the basis of genetic information. Died. |
New Hampshire | New Hampshire SB 240 | Genetic data storage/privacy/sharing (medicine) | Approved | Relative to conditions for genetic testing. |
Texas | Texas HB 2545 | Genetic data storage/privacy/sharing (industry) | Approved | Relating to an individual's genetic data, including the use of that data by certain genetic testing companies for commercial purposes and the individual's property right in DNA; authorizing a civil p... |
Pennsylvania | Pennsylvania SB 8 | Coverage and reimbursement | Approved | An Act amending the act of May 17, 1921 (P.L.682, No.284), known as The Insurance Company Law of 1921, in casualty insurance, further providing for coverage for mammographic examinations and diagnost... |
Montana | Montana HB 682 | Neonatal sequencing | Approved | Revise laws related to collection of genetic material for newborn screenings. |
Last updated: February 8, 2024