Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status | Summary Sort descending |
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Arizona | 2020 State Bills Arizona 2020 HB 2691 | Other Topics | Died | Prohibits placing an inmate in isolated confinement based on certain factors, including genetic information. Died. |
Arizona | 2020 State Bills Arizona 2020 SB 1617 | Other Topics | Died | Prohibits placing an inmate in isolated confinement based on certain factors, including genetic information. Died. |
New Mexico | 2013 State Bills New Mexico 2013 HB 168 | Health Insurance Nondiscrimination | Died | Prohibits pre-existing condition exclusions in qualified health plans in the New Mexico Health Insurance Exchange Act. Genetic information is not included as a preexisting condition for the purposes of limiting or excluding benefits in the absence of a diagnosis of the condition related to the genetic information. (Provision related to genetic information is in Committee Substitute version) Died. |
New Hampshire | 2020 State Bills New Hampshire 2020 HB 1417 | Privacy | Died | Prohibits private entities from requiring an individual to disclose or provide biometric data, including DNA, as a condition of doing business with, engaging in any business activity or relationship with, or obtaining services from that private entity, unless the good, service, or activity provided by the private entity cannot be provided without the collection of biometric information from an individual. A private entity may not collect, use, or retain the biometric information of an individual without the individual's consent and shall not condition access to its good, service, or activity on the provision of biometric data. Died. |
Delaware | State StatuteDelaware: Del. Code 801C | Use of Residual Newborn Screening Specimens | Statute | Prohibits research utilizing stored blood specimens or the stored data without parental consent, except for population-based studies in which all identifying information is removed. Parents may elect not to participate in blood spot storage. |
Missouri | 2018 State Bills Missouri 2018 HB 1761 | Privacy | Died | Prohibits school district from collecting biometric information on any student without express written consent of the student�s parent or legal guardian. Biometric information includes a DNA sequence. Died. |
Kansas | State StatuteKansas: KSA 72-6214 | Privacy | Statute | Prohibits school districts from collecting biometric data from a student, including a DNA sequence, unless the student, if an adult, or the parent or legal guardian of the student, if a minor, consents in writing. |
Kansas | 2014 State Bills Kansas 2014 SB 367 | Privacy | Enacted | Prohibits school districts from collecting biometric data from a student, including a DNA sequence, unless the student, if an adult, or the parent or legal guardian of the student, if a minor, consents in writing. Approved by Governor on Wednesday, May 14, 2014. |
Missouri | 2017 State Bills Missouri 2017 HB 201 | Privacy | Died | Prohibits school districts from collecting biometric information on any student without the express written consent of the student�s parent or legal guardian. Biometric information is defined to include a DNA sequence and newborn screening information. Died. |
Missouri | 2019 State Bills Missouri 2019 HB 783 | Privacy | Died | Prohibits school districts from collecting biometric information on students without the express written consent of parents or legal guardians. Biometric information is defined to include a DNA sequence. Died. |
Missouri | 2016 State Bills Missouri 2016 HB 1849 | Privacy | Died | Prohibits school districts from collecting biometric information, including DNA sequences, on students without the express written consent of parents or legal guardians. Died. |
Arizona | 2017 State Bills Arizona 2017 SB 1373 | Privacy | Died | Prohibits schools and school service providers from collecting or possessing biometric information of elementary or secondary school students unless the school service provider: (1) develops a written policy for the collection, retention, disclosure and destruction of biometric information; and (2) obtains a written release to collect biometric information. Sets forth protections for biometric information, if collected. Biometric information is defined as information derived from any biometric identifier used to identify an individual. Died. |
Alabama | 2015 State Bills Alabama 2015 HB 564 | Privacy | Died | Prohibits state agencies, district boards of education, or pre K-12 educational institutions from administering any student survey, assessment, analysis, evaluation, or similar instrument that solicits information about the student or the student's family concerning biometric records, which is defined to include DNA sequences. Died. |
Alabama | 2016 State Bills Alabama 2016 HB 267 | Privacy | Died | Prohibits state agencies, local education agencies, or local education institutions from administering any student survey, assessment, analysis, evaluation, or similar instrument that solicits certain information about the student or the family of the student, including biometric records. Biometric records are defined to include a DNA sequence. Died. |
Alabama | 2016 State Bills Alabama 2016 SB 318 | Privacy | Died | Prohibits state agencies, local education agencies, or local education institutions from administering any student survey, assessment, analysis, evaluation, or similar instrument that solicits certain information about the student or the family of the student, including biometric records. Biometric records are defined to include a DNA sequence. Died. |
Georgia | 2014 State Bills Georgia 2014 SB 167 | Privacy, Use of Residual Newborn Screening Specimens | Died | Prohibits the collection of student or family information by any state agency, local school system or educational institution, including biometric data (defined to include DNA sequence and newborn screening information), except as may be necessary to facilitate the instruction of special needs students or students participating in school physical education and athletic programs. Died. |
Maine | 2015 State Bills Maine 2015 LD 1251 | Privacy | Died | Prohibits the collection, entry into an education database or maintenance of DNA by as education records by the department of education or school administrative unit. Died. |
Wyoming | 2018 State Bills Wyoming 2018 HB 119 | Privacy | Enacted | Prohibits the collection, retention and disclosure of genetic information without informed consent. Establishes requirements for the retention and destruction of genetic information. 3/16/2018 Governor Signed HEA No. 0060. |
New Hampshire | 2017 State Bills New Hampshire 2017 HB 396 | Privacy | Died | Prohibits the collection, tracking, housing, storage, reporting or sharing of personally identifiable information with the federal government or for-profit corporations. The findings and purpose section of the bill lists a DNA sequence as private student data. Died on the Table. |
New Mexico | 2019 State Bills New Mexico 2019 HB 141 | Privacy | Died | Prohibits the disclosure of sensitive personal information by a state agency employee acquired by virtue of the employee's position with a state agency to anyone outside the state agency except under specified circumstances. Died. |
New York | 2018 State Bills New York 2018 A8847 | Other Topics | Died | Prohibits the distribution of consumers' DNA profiles submitted to direct-to-consumer genetic testing companies. Requires companies to provide a copy of their privacy policy to any consumer that submits a DNA sample and provides for civil penalties for violations of these provisions. Died. |
New Hampshire | 2018 State Bills New Hampshire 2018 HB 1750 | Privacy | Died | Prohibits the government from acquiring, retaining, collecting, or using personal information without express written consent with some exceptions such as if a warrant has been issued. Personal information includes DNA/RNA. Died. |
New York | 2013 State Bills New York 2013 S4284 | Privacy | Died | Prohibits the release of personally identifiable student information, including DNA sequence, where parental consent is not provided. Died. |
California | State StatuteCalifornia: Cal. Business and Professions Code 22949.50 et seq. | Other Topics | Statute | Prohibits the sale of a gene therapy kit unless the seller includes a notice on the seller�s internet website to the consumer prior to the point of sale and on a label on the package stating that the kit is not for self-administration. |
Vermont | 2020 State Bills Vermont 2020 H894 | Privacy | Died | Prohibits the state sale of personally identifiable information, including genetic information. Died. |
New York | 2021 State Bills New York 2021 S7430 | Other Topics | Enacted | Prohibits the state, or any agency or bureau, or any other entity from denying a refugee resettlement anywhere within the state based on any criterion, method of administration, or practice that has the purpose or effect of discriminating on the basis of various factors, including predisposing genetic characteristics. Carries over to 2022. |
Maryland | 2020 State Bills Maryland 2020 HB 1560 | Employment Nondiscrimination | Enacted | Prohibits the Washington Suburban Sanitary Commission from discriminating against a person on the basis of genetic information. Requires that contracts entered into by the Commission include a provision stating that contractors will not to discriminate in any manner against an employee or an applicant for employment based on a variety of factors, including genetic information. Enacted without Governor's signature 5/8/2020. Effective 10/1/2020. |
Maryland | State StatuteMaryland: Public Utilities 17-401 et seq. | Employment Nondiscrimination | Statute | Prohibits the Washington Suburban Sanitary Commission from discriminating against a person on the basis of genetic information. Requires that contracts entered into by the Commission include a provision stating that contractors will not to discriminate in any manner against an employee or an applicant for employment based on a variety of factors, including genetic information. |
West Virginia | 2016 State Bills West Virginia 2016 HB 4261 | Privacy | Enacted | Prohibits the West Virginia Department of Education from transferring confidential student information, including genetic information, to any federal, state or local agency or other person or entity with some specified exceptions. Signed by the Governor 3/25/2016. Effective 90 days from passage. |
North Carolina | 2019 State Bills North Carolina 2019 HB 514 | Other Topics | Died | Prohibits unlawful discriminatory practice based on protected status, including genetic information. Died. |
North Carolina | 2019 State Bills North Carolina 2019 SB 455 | Other Topics | Died | Prohibits unlawful discriminatory practice based on protected status, including genetic information. Died. |
Oklahoma | 2019 State Bills Oklahoma 2019 HB 2455 | Other Topics | Died | Prohibits unlawful housing discriminatory practices based on genetic information. Died. |
Delaware | 2015 State Bills Delaware 2015 SB 58 | Research, Use of Residual Newborn Screening Specimens | Enacted | Prohibits utilizing newborn screening stored blood specimens or stored data without parental consent, except for population based studies in which all identifying information is removed. Blood spots may be used within the Division of Public Health for quality assurance or performance improvement activities, including pilot studies when a new disorder is being considered for addition to the panel, or may be used by Division of Public Health for any other purpose authorized by law. Jul 15, 2015 - Signed by Governor. |
Massachusetts | 2021 State Bills Massachusetts 2021 H.1373 | Other Topics | Pending | Promotes fair housing by preventing discrimination against affordable housing based on various factors, including genetic information. Carries over to 2022. |
Massachusetts | 2021 State Bills Massachusetts 2021 S. 867 | Other Topics | Pending | Promotes fair housing by preventing discrimination against affordable housing based on various factors, including genetic information. Carries over to 2022. |
Texas | 2017 State Bills Texas 2017 SJR 44 | Other Topics | Died | Proposes a Constitutional Amendment providing for the recognition of equal rights of all people. States that equality under the law may not be denied or abridged based on numerous factors, including genetic information. Died. |
Missouri | 2021 State Bills Missouri 2021 HJR 51 | Health Insurance Nondiscrimination | Died | Proposes a Constitutional amendment, if approved by the voters, to provide that prohibits health plans from limiting or excluding benefits relating to any condition based on the fact that the condition is a preexisting condition or charging a different premium rate or imposing different out-of-pocket costs for the same coverage based on the fact that a person covered under the plan has a preexisting condition. Genetic information should not be treated as a preexisting condition in the absence of a diagnosis of the condition related to such information. 4/13/2021 Reported Do Pass House Rules Committee. Died. |
Missouri | 2021 State Bills Missouri 2021 SJR 26 | Health Insurance Nondiscrimination | Died | Proposes a Constitutional amendment, if approved by the voters, to provide that prohibits health plans from limiting or excluding benefits relating to any condition based on the fact that the condition is a preexisting condition or charging a different premium rate or imposing different out-of-pocket costs for the same coverage based on the fact that a person covered under the plan has a preexisting condition. Genetic information should not be treated as a preexisting condition in the absence of a diagnosis of the condition related to such information. 4/22/2021 Voted Do Pass Senate Insurance and Banking Committee. Died. |
Vermont | 2019 State Bills Vermont 2019 H370 | Privacy | Died | Proposes to identify a DNA sample and the results of a DNA analysis performed on the sample as the exclusive property of the person sampled or analyzed and to provide criminal and civil penalties for unlawful DNA collection, analysis, retention, or disclosure. Died. |
Massachusetts | 2017 State Bills Massachusetts 2017 S.95 | Privacy | Died | Protects biometric information under the security breach law. Biometric information includes genetic information. Died. |
Washington | 2019 State Bills Washington 2019 HB 1854 | Privacy | Died | Protects consumer data. Original version of bill included genetic data in the definition of sensitive information, but it was removed from the substitute bill version. 1/13/2020 By resolution, reintroduced and retained in present status. Rules Committee relieved of further consideration. Died. |
Vermont | 2021 State Bills Vermont 2021 H233 | Other Topics, Privacy | Died | Protects consumer privacy by requiring that a business that collects genetic data from a Vermont consumer to provide ancestry or similar information protects the data and keeps it confidential. Carries over to 2022. |
Washington | 2019 State Bills Washington 2019 SB 5376 | Privacy | Died | Protects sensitive data of consumers, including genetic data. 1/13/2020 By resolution, reintroduced and retained in present status. Died. |
Maine | 2019 State Bills Maine 2019 LD 1790 | Privacy | Enacted | Protects the personal information, including genetic information, pertaining to state employees. Signed by the Governor on June 20, 2019. |
California | State StatuteCalifornia: Cal. Civil Code 1798.29, 1798.81.5 and 1798.82 | Privacy | Statute | Protects the privacy and security of computerized data, including personal information, owned or licensed by an agency. Genetic data is defined as any data that results from the analysis of a biological sample of an individual, or from another source enabling equivalent information to be obtained, and concerns genetic material. Genetic material includes, but is not limited to, deoxyribonucleic acids (DNA), ribonucleic acids (RNA), genes, chromosomes, alleles, genomes, alterations or modifications to DNA or RNA, single nucleotide polymorphisms (SNPs), uninterpreted data that results from analysis of the biological sample or other source, and any information extrapolated, derived, or inferred therefrom. |
Missouri | 2015 State Bills Missouri 2015 HB 1240 | Privacy | Died | Protects the privacy of student data, which encompasses biometric records. Biometric records is defined to include DNA. Died. |
Missouri | 2015 State Bills Missouri 2015 SB 530 | Privacy | Died | Protects the privacy of student data, which encompasses biometric records. Biometric records is defined to include DNA. Died. |
Utah | 2021 State Bills Utah 2021 SB 200 | Privacy | Died | Provides consumers the right to access, correct, and delete certain personal data. Gives consumers the right to opt out of the collection and use of personal data for certain purposes. Requires certain businesses that control and process personal data of consumers to: safeguard personal data; provide clear information to consumers regarding how the consumer's personal data are used; accept consumer requests to exercise the consumer's rights under this bill; comply with a consumer's request to exercise the consumer's rights under this bill; and maintain data protection assessments. Creates a process for a consumer to submit requests and appeal a business's decision regarding the business's processing of the consumer's personal data. Allows the Division of Consumer Protection to accept and investigate consumer complaints regarding the processing of personal data. Creates a right for a consumer to know what personal information a business collects, how the business uses the personal information, and whether the business sells the personal information. Allows a consumer to require a business to delete personal information, with |
Louisiana | Louisiana SB 104 | Coverage and reimbursement | Enacted | Provides for health_insurance_coverage of genetic testing for diseases and other medical conditions. |
California | State StatuteCalifornia: Cal. Health and Safety Code 24170 et seq. | Research | Statute | Provides for the protection of human subjects participating in medical experiments. Enacts the Experimental Subject's Bill of Rights, which details informed consent requirements. |
Last updated: February 8, 2024