Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status Sort descending | Summary |
---|---|---|---|---|
Maine | 2019 State Bills Maine 2019 LD 1790 | Privacy | Enacted | Protects the personal information, including genetic information, pertaining to state employees. Signed by the Governor on June 20, 2019. |
Oklahoma | 2010 State Bills Oklahoma 2010 SB 2054 | Health Insurance Nondiscrimination, Research | Enacted | This bill modifies the state Genetic Information Nondiscrimination in Insurance Act. Topics addressed by the modifications include definitions, discrimination in health insurance based on genetic information, and prohibitions for requesting and requiring genetic a genetic test with exceptions for research if conducted in compliance with the Common Rule and certain criteria are met. Approved by the Governor on 5/10/2010. |
Colorado | 2008 State Bills Colorado 2008 SB 241 | Employment Nondiscrimination | Enacted | This bill prohibits the reduction of an employees permanent total disability when the disability is a result of a work-related injury or a work-related injury combined with a congenital, genetic or similar conditions except that the law does not apply to reductions in recovery or apportionment allowed pursuant to Colorado Supreme Court decision in Anderson v. Brinkhoff, 859 P.2d 819, (Colo. 1993). Signed into law June 2, 2008. |
Maryland | 2020 State Bills Maryland 2020 HB 1420 | Other Topics | Enacted | Prohibits a hospital from withholding financial assistance or from denying a patient's application for financial assistance based on genetic information. Enacted without Governor's signature 5/8/2020. Effective 10/1/2020. |
Tennessee | 2007 State Bills Tennessee 2007 SB 343 | Health Insurance Nondiscrimination | Enacted | Prior to amendment, this bill exempt insurance pools created by an association of private, not-for-profit educational institutions that has been in existence for at least 25 years from the provisions governing genetic information nondiscrimination. This language was removed from the final version of the bill, which was signed by the Governor May 15, 2007. |
Arizona | 2008 State Bills Arizona 2008 SB 2658 | Health Insurance Nondiscrimination | Enacted | This bill amends existing law that prohibits health benefit plans from terminating coverage based on a health status-related factor, including genetic information, by adding a group disability policy or a certificate of insurance for a group disability policy that is not issued in the state of Arizona to the definition of "health benefit plan." Signed by the Governor on April 28, 2008. |
Iowa | 2010 State Bills Iowa 2010 HF 2531 | Employment Nondiscrimination | Enacted | This bill adds definitions to the genetic nondiscrimination in employment law. Signed by the Governor April 29, 2010. |
New York | 2017 State Bills New York 2017 S2008 | Other Topics | Enacted | A Transportation Network Company (TNC) may not discriminate against passengers or potential passengers on the basis of a genetic predisposition. TNC drivers must comply with the anti-discrimination law. 4/20/2017 Signed by the Governor Chapter 58. |
Connecticut | 2021 State Bills Connecticut 2021 SB 841 | Other Lines of Insurance Nondiscrimination | Enacted | Prohibits insurers, health care centers and fraternal benefit societies from, in connection with the issuance, withholding, extension or renewal of an annuity or an insurance policy for life, credit life, disability, long-term care, accidental injury, specified disease, hospital indemnity or credit accident insurance: (1) requesting, requiring, purchasing or using information obtained from an entity providing direct-to-consumer genetic testing without the informed written consent of the individual who has been tested; (2) conditioning insurance rates, the provision or renewal of insurance coverage or benefit or other conditions of insurance for an individual on a requirement or agreement that the individual undergo genetic testing; and (3) conditioning insurance rates, the provision or renewal of insurance coverage or benefit or other conditions of insurance for an individual on the results of any genetic testing of a member of the individual's family unless the results are contained in the individual's medical record. 7/7/2021 Signed by the Governor. Effective October 1, 2021. |
Minnesota | 2021 State Bills Minnesota 2021 HF 36 | Privacy | Enacted | Relates to consumer data privacy. Establishes business obligations regarding: (1) collection and disclosure of personal information; and (2) sale of personal information to third parties. Gives various rights to consumers regarding personal data. Personal information includes biometric information such as genetic information. Carries over to 2022 session. |
Virginia | 2020 State Bills Virginia 2020 HB 1252 | Employment Nondiscrimination | Enacted | Prohibits a sponsor of a registered apprenticeship program from discriminating against an apprentice or applicant for apprenticeship on the basis of various factors, including genetic information. 4/22/20 House: Enacted, Chapter 1228. Effective 7/1/20. |
California | 2010 State Bills California 2010 SB 1187 | Research | Enacted | This bill amends existing law on the protection of human subjects, which provides an exemption until January 1, 2011 for any medical experimental treatment that benefits a patient subject to a life-threatening emergency if prescribed conditions are met. This bill provides that this exemption remains in effect until January 1, 2014. Signed by the Governor July 15, 2010. |
Louisiana | 2016 State Bills Louisiana 2016 HB 613 | Health Insurance Nondiscrimination | Enacted | Amends the genetic nondiscrimination in health insurance statute by establishing exemptions to the law. The bill provides that the requirements under existing law do not apply to genetic information obtained: (1) For treatment, payment, and healthcare operations by an insurer consistent with the federal Health Insurance Portability and Accountability Act (HIPAA) and its related regulations. (2) For maintenance of information by an insurer in accordance with record retention requirements. 5/10/2016 Signed by the Governor. Becomes Act No. 58. Effective 8/1/2016. |
New York | 2021 State Bills New York 2021 S7430 | Other Topics | Enacted | Prohibits the state, or any agency or bureau, or any other entity from denying a refugee resettlement anywhere within the state based on any criterion, method of administration, or practice that has the purpose or effect of discriminating on the basis of various factors, including predisposing genetic characteristics. Carries over to 2022. |
Idaho | 2016 State Bills Idaho 2016 HB 554 | Other Topics | Enacted | If a firefighter is diagnosed with breast cancer after a five years of employment, and the disease was not revealed during an initial employment medical screening examination, then the disease is presumed to be proximately caused by the firefighter's employment as a firefighter. The presumption applies to breast cancer diagnosed before the age of forty (40) years and when a breast cancer 1 or breast cancer 2 genetic predisposition is not present. Signed by Governor on March 30, 2016. Effective: 07/01/2016. |
Nevada | 2021 State Bills Nevada 2021 SB 251 | Health Insurance Coverage | Enacted | Requires a primary care provider to administer a genetic test for harmful mutations in the BRCA gene if clinically indicated as a result of genetic counseling. The State Plan for Medicaid must pay the nonfederal share of expenditures incurred for screening, genetic counseling and testing for harmful mutations in the BRCA gene for women under circumstances where such screening, genetic counseling or testing is required. Insurers must cover the cost of screening, genetic counseling and testing for harmful mutations in the BRCA gene for women under circumstances where such screening, genetic counseling or testing is required. 5/27/2021 Approved by the Governor. Effective 1/1/2022. |
California | 2021 State Bills California 2021 AB 172 | Privacy, Research | Enacted | Abolishes the Office of Health Information Integrity and the Office of Patient Advocate. Establishes the Center for Data Insights and Innovation within the California Health and Human Services Agency, and transfers the duties of the Office of Health Information Integrity and the Office of Patient Advocate to the center. Requires the center to: (1) assume responsibility for administering the State Committee for the Protection of Human Subjects; (2) keep all personal information obtained by the center confidential, as specified; and (3) meet various requirements with regard to the disclosure of information, including the development of a comprehensive program regarding the disclosure of information to qualified researchers according to specified data use agreements. 10/8/21 Approved by the Governor. Effective immediately. |
Maine | 2021 State Bills Maine 2021 LD 29 | Employment Nondiscrimination | Enacted | Conforms the Maine Apprenticeship Program to the Federal Equal Employment Opportunity Act of 1972. Requires a posting of statement that the apprentice will be accorded equal opportunity in all phases of apprenticeship employment and training, without discrimination because of various factors, including genetic information. 6/8/21 Signed by the Governor. Effective 90 days after adjournment (March 30, 2021). |
Oklahoma | 2011 State Bills Oklahoma 2011 SB 837 | Employment Nondiscrimination | Enacted | This bill amends statutes pertaining to discriminatory practices in employment, housing, and public accommodations. The bill provides exclusive remedies for individuals alleging discrimination in employment on the basis of genetic information. Signed by the Governor May 18, 2011. |
Colorado | 2009 State Bills Colorado 2009 HB 1338 | Health Insurance Nondiscrimination, Privacy, Research | Enacted | This bill amends definitions in the Colorado genetic nondiscrimination in health insurance law. The bill also adds a new section to the Colorado statutes pertaining to limitations on disclosure of genetic information and allows the use of genetic information by research facilities provided that the information is not disclosed to third parties other than to an individual's physician with his or her consent. Signed by the Governor May 25, 2010. |
Maryland | 2020 State Bills Maryland 2020 HB 1560 | Employment Nondiscrimination | Enacted | Prohibits the Washington Suburban Sanitary Commission from discriminating against a person on the basis of genetic information. Requires that contracts entered into by the Commission include a provision stating that contractors will not to discriminate in any manner against an employee or an applicant for employment based on a variety of factors, including genetic information. Enacted without Governor's signature 5/8/2020. Effective 10/1/2020. |
Tennessee | 2018 State Bills Tennessee 2018 HB 2690 | Privacy | Enacted | Requires a parent, legal guardian, or student, if the student is 18 years of age or older, to provide informed written consent before the collection of individual student biometric data, including DNA. Establishes additional protections for personally identifiable information, which includes biometric data, maintained by schools. Effective 7/1/2018. |
Arizona | 2010 State Bills Arizona 2010 SB 1309 | Privacy | Enacted | The bill establishes the right of parents to consent in writing before any record of the minor child's blood or deoxyribonucleic acid is created, stored or shared, with some exceptions such as for newborn screening. Signed by the Governor May 10, 2010. |
Iowa | 2010 State Bills Iowa 2010 SF 2215 | Health Insurance Nondiscrimination, Privacy, Research | Enacted | This bill prohibits health insurers from discriminating based on genetic information or tests. Authorization is required to obtain genetic information or samples. Consent requirements are established to collect, retain, transmit or use genetic information. Exceptions under consent requirements include medical or scientific research and eduction and for use in medical repositories and registries if it does not contain personally identifiable information. Health insurers may not release genetic information without prior written authorization. Exceptions for release requirements include (1) if an individual is participating in research settings, including those governed by the federal policy for the protection of human subjects, and (2) tests conducted purely for research. Signed by the Governor April 23, 2010. |
New York | 2019 State Bills New York 2019 A6787 | Privacy | Enacted | Directs the commissioner of education to conduct a study on the use of biometric identifying technology; prohibits the use of biometric identifying technology in schools until July 1, 2022, or until the commissioner authorizes such purchase or utilization. Biometric information is defined to include a DNA sequence. 12/22/2020 Signed by the Governor. Effective immediately. |
Hawaii | Hawaii SB 484 | Parentage law | Introduced | Relating to parentage. Enacts portions of the uniform parentage act of 2017 to replace the uniform parentage act of 1973. takes effect 1/1/2024. |
Massachusetts | Massachusetts SB 2400 | Neonatal sequencing | Introduced | An Act making appropriations for the fiscal year 2024 for the maintenance of the departments, boards, commissions, institutions, and certain activities of the Commonwealth, for interest, sinking fund... |
Texas | Texas SB 1544 | Genetic data storage/privacy/sharing (industry) | Introduced | Relating to the use of an individual's genetic data by certain genetic testing companies for commercial purposes; authorizing a civil penalty. |
Texas | Texas SB 1697 | Neonatal sequencing | Introduced | Relating to an annual report regarding certain newborn screening tests. |
Pennsylvania | Pennsylvania HB 350 | Genetic Data & Law Enforcement | Introduced | An Act amending Title 23 (Domestic Relations) of the Pennsylvania Consolidated Statutes, adding provisions relating to establishment of parent-child relationship for certain individuals; providing fo... |
Vermont | Vermont SB 74 | Neonatal sequencing | Introduced | An act relating to incremental implementation of Green Mountain Care. |
Rhode Island | Rhode Island HB 5351 | Consumer Personal Data Privacy, Coverage and reimbursement | Introduced | An act relating to insurance -- accident and sickness insurance policies (mandates insurance policies, provides coverage to diagnose & treat infertility for women between 25 & 42 years, including pre... |
Minnesota | Minnesota SB 1138 | Genetic data storage/privacy/sharing (industry), Lab Developed Tests | Introduced | Direct-to-consumer genetic testing companies requirement to provide disclosure notices and obtain consent. |
Arizona | Arizona HB 2783 | Coverage and reimbursement | Introduced | Cancer screening; coverage; gene mutation. |
Kansas | Kansas HB 2409 | Genetic Data & Law Enforcement, Parentage law | Introduced | Enacting the Kansas uniform parentage act (2017). |
Kansas | Kansas SB 139 | Neonatal sequencing | Introduced | Expanding newborn screening services and increasing transfer from the medical assistance fee fund to the Kansas newborn screening fund. |
New Jersey | New Jersey SB 2542 | Coverage and reimbursement | Introduced | Requires health_insurance_coverage of preimplantation genetic testing with in vitro fertilization under certain conditions. |
West Virginia | West Virginia HB 3025 | Genetic Data & Law Enforcement | Introduced | Relating to DNA data maintained for law enforcement purposes. |
Massachusetts | Massachusetts HD 1 | Neonatal sequencing | Introduced | An Act making appropriations for the Fiscal Year 2024 for the maintenance of the departments, boards, commissions, institutions, and certain activities of the Commonwealth, for interest, sinking fund... |
New Jersey | New Jersey SB 2987 | Coverage and reimbursement | Introduced | Requires health_insurance_coverage of prenatal genetic test during first trimester of pregnancy. |
Massachusetts | Massachusetts HB 181 | Neonatal sequencing | Introduced | An Act relative to early intervention services for children with prenatal exposure to opioids. |
New Jersey | New Jersey AB 4206 | Coverage and reimbursement | Introduced | Requires health_insurance_coverage of prenatal genetic test during first trimester of pregnancy. |
Massachusetts | Massachusetts HD 777 | Neonatal sequencing | Introduced | An Act relative to early intervention services for children with prenatal exposure to opioids. |
New Jersey | New Jersey AB 5473 | Coverage and reimbursement | Introduced | Requires health insurers to cover additional mammogram examinations and genetic testing and counseling under certain circumstances. |
Texas | Texas HB 270 | Genetic Data & Law Enforcement | Passed House | Relating to postconviction forensic DNA testing. |
Rhode Island | Rhode Island SB 107 | Coverage and reimbursement | Passed Senate | An act relating to insurance -- accident and sickness insurance policies (mandates all insurance contracts/plans/policies provide coverage for the expense of diagnosing/treating infertility for women... |
Hawaii | Hawaii HB 384 | Parentage law | Passed Senate | Relating to parentage. Enacts portions of the uniform parentage act of 2017 to replace the uniform parentage act of 1973. effective 3/22/2075. |
North Carolina | 2021 State Bills North Carolina 221 SB 569 | Privacy | Pending | Creates the Consumer Data privacy Act of North Carolina. Prohibits data controllers from processing sensitive data concerning a consumer without obtaining the consumer's consent, or, in the case of sensitive data concerning a known child, without processing such data in accordance with the federal Children's Online privacy Protection Act. Sensitive data is defined to include the processing of genetic or biometric data for the purpose of uniquely identifying a natural person. Carries over to 2022. |
Minnesota | 2021 State Bills Minnesota 2021 SF 1408 | Privacy | Pending | Provides various rights to consumers regarding personal data. Requires certain businesses to conduct and document a data protection assessment of processing activities involving personal data, including sensitive data. Requires data controllers to obtain consent from consumers before processing sensitive data. Sensitive data is defined to include the processing of genetic or biometric data for the purpose of uniquely identifying a natural person. Carries over to 2022 session. |
New York | 2021 State Bills New York 2021 A1758 | Health Insurance Coverage | Pending | Requires accident and health insurance policies to cover the cost of genetic testing of persons with a family history of cancer when the attending physician determines such person has a significant risk thereof. Carries over to 2022. |
Last updated: February 8, 2024