Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status | Summary Sort descending |
---|---|---|---|---|
Michigan | 2013 State Bills Michigan 2013 SB 178 | Health Insurance Nondiscrimination, Privacy | Enacted | Requires a workgroup to develop a standard prior written authorization methodology for prescribers. If the workgroup develops a paper form, it must allow an insurer to request and require additional information beyond the form. Additional information may include patient clinical information regarding genetic tests. Signed by the Governor May 21, 2013. |
New York | 2021 State Bills New York 2021 A1758 | Health Insurance Coverage | Pending | Requires accident and health insurance policies to cover the cost of genetic testing of persons with a family history of cancer when the attending physician determines such person has a significant risk thereof. Carries over to 2022. |
New York | 2017 State Bills New York 2017 A1803 | Health Insurance Coverage | Died | Requires accident and health insurance policies to cover the cost of genetic testing of persons with a family history of cancer. Coverage must include testing and any subsequent treatment based on the results of the test for people with a significant risk of contracting cancer. Died. |
New York | 2019 State Bills New York 2019 A4173 | Health Insurance Nondiscrimination | Died | Requires accident and health insurance policies to cover the cost of genetic testing of persons with a family history of cancer. Died. |
Hawaii | 2018 State Bills Hawaii 2018 SB 2341 | Health Insurance Coverage | Died | Requires accident and health or sickness insurers to provide coverage for genetic counseling and testing related to the BRCA1 or BRCA2 genetic mutation, if indicated. Died. |
New Jersey | 2021 State Bills New Jersey 2021 A5354 | Employment Nondiscrimination, Other Topics | Died | Requires adoption of and training on anti-discrimination and anti-harassment policy by certain campaign committees. Protected category includes genetic information. Died. |
Hawaii | 2017 State Bills Hawaii 2017 HB 1573 | Health Insurance Coverage | Died | Requires all individual accident and health or sickness insurance policies, all individual and group hospital and medical service corporation contracts, and all group or blanket disability policies that provide coverage for reproductive health to include certain services in reproductive health service coverage. The services listed include genetic screening and counseling related to BRCA1 and BRCA2 genetic mutations. Died. |
Michigan | 2021 State Bills Michigan 2021 SB 327 | Employment Nondiscrimination | Pending | Requires an employer that employs 50 or more individuals at any time during the calendar year at a single work site in the state to inform employees of, and keep posted at the work site in a conspicuous place where employees may conveniently read it, a notice that includes specified information. Required notification includes a statement that it is illegal under federal law to pay employees different wages for the same work based solely on various characteristics, including genetic information. Carries over to 2022. |
Michigan | 2021 State Bills Michigan 2021 HB 4581 | Employment Nondiscrimination | Pending | Requires an employer that employs 50 or more individuals at any time during the calendar year at a single work site in the state to inform employees of, and keep posted at the work site in a conspicuous place where employees may conveniently read it, a notice that includes specified information. Required notification includes a statement that it is illegal under federal law to pay employees different wages for the same work based solely on various characteristics, including genetic information. Carries over to 2022. |
Texas | 2021 State Bills Texas 2021 HB 4441 | Privacy | Died | Requires an individual or the individual�s authorized representative provide express consent for a person to: (1) obtain the individual �s genetic material or genetic information; (2) perform a genetic analysis of the individual or any other analysis or test of the individual that requires the individual �s genetic material; (3) retain the individual �s genetic material or genetic information; or (4) disclose, including through sale or donation, the individual �s genetic material or genetic information. 3/29/2021 Referred to House Public Health Committee. Died. |
Texas | 2021 State Bills Texas 2021 SB 962 | Privacy | Died | Requires an individual or the individual�s authorized representative provide express consent for a person to: (1) obtain the individual �s genetic material or genetic information; (2) perform a genetic analysis of the individual or any other analysis or test of the individual that requires the individual �s genetic material; (3) retain the individual �s genetic material or genetic information; or (4) disclose, including through sale or donation, the individual �s genetic material or genetic information. passed_senate. 5/17/2021 Referred to House Public Health Committee. Died. |
Washington | 2021 State Bills Washington 2021 HB 1346 | Health Insurance Coverage | Pending | Requires an osteopathic physician and, physician, physician's assistant and advanced registered nurse practitioner to refer a person who is 18 years of age or younger to a children's specialty health care facility that can provide specialized diagnostic services, including genetic testing, unless the person is currently receiving care in such a facility, if the person has experienced any neurological or physical symptoms, including but not limited to seizures or missing developmental milestones. Requires a health carrier must provide coverage for genetic testing including up to a full genome panel as determined by the ordering practitioner to identify potential causes of seizures, neurological symptoms, or other physical symptoms as determined by the health care provider in persons who are 18 years of age or younger. Carries over to 2022. |
California | 2020 State Bills California 2020 SB 1423 | Employment Nondiscrimination | Died | Requires any contracting entity that contracts with independent contractors to provide services to, on behalf of, or through the contracting entity on a freelance or per-gig basis, or virtual platform that enables third parties, including independent contractors, to transact with one another for services, or through which independent contractors can market, promote, or advertise their services to third parties, to maintain a written policy against the discrimination of an independent contractor on the basis of genetic information and other factors. Summary based on version of bill as amended on 5/6/2020 when all language from prior introduced version of bill was stricken. Died. |
Louisiana | 2021 State Bills Louisiana 2021 SB 84 | Health Insurance Coverage | Enacted | Requires any health coverage plan renewed, delivered or issued for delivery in Louisiana to provide coverage for genetic or molecular testing for cancer including but not limited to tumor mutation testing, next generation sequencing, hereditary germline mutation testing, pharmacogenomic testing, whole exome and genome sequencing, and biomarker testing. 6/1/21 Signed by the Governor. Becomes Act No. 43. Effective 1/1/2022. |
New York | 2019 State Bills New York 2019 A1911 | Privacy | Died | Requires biometric identifies and information to be treated in a manner similar to confidential and sensitive information such as a genetic marker or genetic testing information. Died. |
New York | 2019 State Bills New York 2019 S1203 | Privacy | Died | Requires biometric identifies and information to be treated in a manner similar to confidential and sensitive information such as a genetic marker or genetic testing information. Died. |
Connecticut | 2020 State Bills Connecticut 2020 SB 134 | Privacy | Died | Requires businesses to disclose the proposed use of any personal information and to give consumers the right to discover what personal information the business possesses. Consumers may opt out of the sale of such information. Personal information is defined to include biometric information such as DNA which can be used to identify an individual. Died. |
Maryland | 2021 State Bills Maryland 2021 SB 930 | Privacy | Died | Requires certain businesses that collect a consumer's personal information to provide certain clear and conspicuous notices to the consumer at or before the point of collection. The bill defines biometric information to include an individual's DNA. In the Senate - First Reading Senate Rules. Died. |
Maryland | 2020 State Bills Maryland 2020 HB 1656 | Privacy | Died | Requires certain businesses that collect a consumer's personal information, including biometric information such as an individual's DNA, to provide certain clear and conspicuous notices to the consumer at or before the point of collection. Authorizes a consumer to submit a certain request for information to a business that collects the consumer's personal information. Requires a business to comply with a request for information within 45 days after receiving a request. Died. |
Maryland | 2020 State Bills Maryland 2020 HB 784 | Privacy | Died | Requires certain businesses that collect a consumer's personal information, including biometric information such as an individual's DNA, to provide certain clear and conspicuous notices to the consumer at or before the point of collection. Authorizes a consumer to submit a certain request for information to a business that collects the consumer's personal information. Requires a business to comply with a request for information within 45 days after receiving a request. Died. |
Maryland | 2020 State Bills Maryland 2020 SB 957 | Privacy | Died | Requires certain businesses that collect a consumer's personal information, including biometric information such as an individual's DNA, to provide certain clear and conspicuous notices to the consumer at or before the point of collection. Authorizes a consumer to submit a certain request for information to a business that collects the consumer's personal information. Requires a business to comply with a request for information within 45 days after receiving a request. Died. |
New Jersey | 2020 State Bills New Jersey 2020 S269 | Privacy | Died | Requires certain businesses to notify data subjects of collection of personally identifiable information and establishes certain security standards. Personally identifiable information is defined to include biometric information such as DNA. Died. |
Maryland | 2013 State Bills Maryland 2013 HB 960 | Privacy | Died | Requires certain businesses, when destroying a customers records that contain personal or private information of the customer, to take specific steps to protect against unauthorized access to or use of the information. Personal information is defined to include an individual's genetic print. Died. |
Maryland | 2013 State Bills Maryland 2013 SB 859 | Privacy | Died | Requires certain businesses, when destroying a customers records that contain personal or private information of the customer, to take specific steps to protect against unauthorized access to or use of the information. Personal information is defined to include an individual's genetic print. Died. |
Kentucky | 2018 State Bills Kentucky 2018 HB 188 | Privacy | Died | Requires certain information holders to encrypt personally identifiable data, which is defined to include a genetic print. Information holders must report a breach of personally identifiable information to consumers. Died. |
Kentucky | 2018 State Bills Kentucky 2018 SB 33 | Privacy | Died | Requires certain information holders to encrypt personally identifiable data, which is defined to include a genetic print. Information holders must report a breach of personally identifiable information to consumers. Died. |
Massachusetts | 2021 State Bills Massachusetts 2021 H.1113 | Health Insurance Coverage | Pending | Requires certain insurers to provide benefits on a nondiscriminatory basis for the diagnosis and treatment of Alfi�s syndrome in individuals. Diagnosis of Alfi's Syndrome includes genetic testing. Carries over to 2022. |
Massachusetts | 2021 State Bills Massachusetts 2021 H.1175 | Health Insurance Coverage | Pending | Requires certain insurers to provide coverage for screening breast ultrasound or screening breast magnetic resonance imaging examination if the patient has additional risk factors for breast cancer including, but not limited to, family history and positive genetic testing. Carries over to 2022. |
Massachusetts | 2021 State Bills Massachusetts 2021 S.697 | Health Insurance Coverage | Pending | Requires certain insurers to provide coverage for screening breast ultrasound or screening breast magnetic resonance imaging examination if the patient has additional risk factors for breast cancer including, but not limited to, family history and positive genetic testing. Carries over to 2022. |
Maryland | 2021 State Bills Maryland 2021 HB 218 | Privacy | Died | Requires certain private entities in possession of biometric identifiers or biometric information to develop a written policy, made available to the public, establishing a certain retention schedule and guidelines for permanently destroying biometric identifiers and biometric information. Biometric identifier is defined to includes a genetic print. The bill defines confidential and sensitive to include a genetic marker and genetic testing information. In the House - Withdrawn by Sponsor. Died. |
Maryland | 2021 State Bills Maryland 2021 SB 16 | Privacy | Died | Requires certain private entities in possession of biometric identifiers or biometric information to develop a written policy, made available to the public, establishing a certain retention schedule and guidelines for permanently destroying biometric identifiers and biometric information. Biometric identifier is defined to includes a genetic print. The bill defines confidential and sensitive to include a genetic marker and genetic testing information. In the Senate - Hearing 1/27 at 1:00 p.m. Died. |
Oklahoma | 2017 State Bills Oklahoma 2017 HB 1716 | Other Topics | Died | Requires certain residents of long-term care facilities to have a pharmacogenomics profile conducted. The profile must include the results of at least eighteen genes tested and be accompanied by treatment guidance for each disease state-tested. Died. |
Oklahoma | 2018 State Bills Oklahoma 2018 HB 3233 | Health Insurance Coverage | Died | Requires certain residents of long-term care facilities to have a pharmacogenomics profile conducted. The profile must include the results of at least eighteen genes tested and be accompanied by treatment guidance for each disease state-tested. Died. |
Maryland | 2017 State Bills Maryland 2017 HB 435 | Privacy | Died | Requires certain state and local governmental units to secure by encryption personal information of an individual that the unit has collected as computerized data. Personal information includes a genetic print or image. Died. |
New York | 2021 State Bills New York 2021 A700 | Employment Nondiscrimination, Other Topics | Pending | Requires companies to file a biennial climate report. The requirements for the form and content of the climate report at a minimum must include: (i) Company climate surveys to be filled out anonymously by employees, which are designed to assess such company's workplace environment including, but not limited to, pay equity, sexual harassment and discrimination based on an individual's age, race, creed, color, national origin, sexual orientation, military status, sex, disability, predisposing genetic characteristics, familial status, marital status or domestic violence victim status. Carries over to 2022. |
Louisiana | 2018 State Bills Louisiana 2018 SB 442 | Other Topics | Enacted | Requires companies who sell DNA testing kits to inform a purchaser of certain information. This includes a written statement to inform the consumer that, by submitting DNA for testing, one loses the exclusive right to one's DNA. 5/30/2018 Signed by the Governor. Becomes Act No. 571. Effective 8/1/2018. |
Washington | 2020 State Bills Washington 2020 HB 2742 | Privacy | Died | Requires controller who determines the purposes and means of the processing of personal data to obtain consent prior to processing sensitive data, including genetic data. Controllers must conduct an assessment of activities pertaining to the processing of sensitive data. Died. |
Washington | 2020 State Bills Washington 2020 SB 6281 | Privacy | Died | Requires controller who determines the purposes and means of the processing of personal data to obtain consent prior to processing sensitive data, including genetic data. Controllers must conduct an assessment of activities pertaining to the processing of sensitive data. Died. |
Wisconsin | 2020 State Bills Wisconsin 2020 AB 870 | Privacy | Died | Requires controllers of consumers' personal data to provide a consumer with copies of the consumer's personal data processed by the controller. Personal data includes genetic information. 4/1/2020 Failed to pass pursuant to Senate Joint Resolution 1. |
Massachusetts | 2017 State Bills Massachusetts 2017 H.3969 | Health Insurance Coverage | Died | Requires coverage for the diagnosis of Alfi's Syndrome, including genetic testing. 7/18/2018 Accompanied a study order, see H4778. |
Louisiana | 2020 State Bills Louisiana 2020 HB 408 | Health Insurance Coverage | Died | Requires coverage of cancer treatment targeting a specific genetic mutation. Prohibits a health coverage plan from denying coverage for a medically necessary drug on the basis that the drug is not indicated for the location in the body of the patient's cancer, if the drug is FDA approved for the treatment of the specific mutation of the patient's cancer. Died. |
Louisiana | 2020 State Bills Louisiana 2020 SB 204 | Health Insurance Coverage | Enacted | Requires coverage of cancer treatment targeting a specific genetic mutation. Prohibits a health coverage plan from denying coverage for the treatment of a metastatic or unresectable tumor with a medically necessary drug on the sole basis that the drug is not indicated for the location in the body of the patient's cancer, if the drug is FDA approved for the treatment of the specific mutation of the patient's cancer. 6/11/2020 Signed by the Governor. Becomes Act No. 222. Effective 1/1/2021. |
Louisiana | State StatuteLouisiana: LRS 22:1054.1 | Health Insurance Coverage | Statute | Requires coverage of cancer treatment targeting a specific genetic mutation. Prohibits a health coverage plan from denying coverage for the treatment of a metastatic or unresectable tumor with a medically necessary drug on the sole basis that the drug is not indicated for the location in the body of the patient's cancer, if the drug is FDA approved for the treatment of the specific mutation of the patient's cancer. Requires health_insurance_coverage for annual MRI at age 25 and annual mammography at age 30 for women with a hereditary susceptibility to breast cancer based on pathogenic mutation carrier status. |
Virginia | 2019 State Bills Virginia 2019 HB 2083 | Employment Nondiscrimination | Died | Requires each legislative branch agency to adopt and implement the Commonwealth Workplace Harassment Policy established by the Department of Human Resource Management. Workplace harassment is defined to include harassment based on genetic information. Died. |
Michigan | 2019 State Bills Michigan 2019 HB 4634 | Employment Nondiscrimination | Died | Requires employers of 50 or more individuals to post a notice that wage discrimination based on genetic information is prohibited under federal law. Died. |
Michigan | 2019 State Bills Michigan 2019 SB 333 | Employment Nondiscrimination | Died | Requires employers of 50 or more individuals to post a notice that wage discrimination based on genetic information is prohibited under federal law. Died. |
Michigan | 2017 State Bills Michigan 2017 HB 4514 | Employment Nondiscrimination | Died | Requires employers of 50 people or more to post a notice that it is illegal under federal law to pay employees different wages for the same work based on certain criteria, including genetic information. Died. |
Michigan | 2017 State Bills Michigan 2017 SB 322 | Employment Nondiscrimination | Died | Requires employers of 50 people or more to post a notice that it is illegal under federal law to pay employees different wages for the same work based on certain criteria, including genetic information. Died. |
Hawaii | 2021 State Bills Hawaii 2021 HB 249 | Health Insurance Coverage | Pending | Requires every group policy of accident and health or sickness insurance and every individual or group hospital or medical service plan contract to provide coverage for screening to determine whether counseling and testing related to the BRCAl or BRCA2 genetic mutation is indicated and genetic counseling and testing related to the BRCAl or BRCA2 genetic mutation, if indicated. Carries over to 2022 session. |
Hawaii | 2021 State Bills Hawaii 2021 SB 623 | Health Insurance Coverage | Pending | Requires every group policy of accident and health or sickness insurance and every individual or group hospital or medical service plan contract to provide coverage for screening to determine whether counseling and testing related to the BRCAl or BRCA2 genetic mutation is indicated and genetic counseling and testing related to the BRCAl or BRCA2 genetic mutation, if indicated. Carries over to 2022 session. |
Last updated: February 8, 2024