Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status | Summary Sort descending |
---|---|---|---|---|
Michigan | 2013 State Bills Michigan 2013 SB 568 | Privacy | Died | This bill requires the Department of Community Health to develop a model written, informed consent form for genetic testing. Health care professionals must have test subjects complete the form prior to ordering genetic testing. Died. |
California | 2007 State Bills California 2007 SB 962 | Use of Residual Newborn Screening Specimens | Enacted | This bill requires the health department to charge a fee to researchers and health care providers who have been approved by the department to use stored umbilical cord, pregnancy blood, or newborn blood samples for research to cover the costs of administering the program. Signed by the Governor October 11, 2007. (The bill goes into effect only if 2007 AB 34, which was enacted during the 2007 session, becomes law before January 2008.) |
New York | 2013 State Bills New York 2013 A506 | Use of Residual Newborn Screening Specimens | Died | This bill requires written parental consent to store a newborn's test, blood spot or other genetic information for any purpose other than newborn screening. Died. |
Maryland | 2009 State Bills Maryland 2009 HB 12 | Privacy | Died | This bill restricts access to, use of and retention of DNA samples and disclosure of DNA test results without consent with some exceptions. The bill also provides personal property rights to DNA samples and DNA test results. The bill requires the health department to develop a uniform written informed consent form. Civil and criminal penalties are set forth, and individuals whose rights are violated may bring civil action. Measure failed. |
Maryland | 2009 State Bills Maryland 2009 SB 54 | Privacy | Died | This bill restricts access to, use of and retention of DNA samples and disclosure of DNA test results without consent with some exemptions. The bill also provides personal property rights to DNA samples and DNA test results and requires the health department to develop a uniform written informed consent form. Penalties are set forth for violations. Measure failed. |
New Hampshire | 2013 State Bills New Hampshire 2013 HB 312 | Privacy | Died | This bill restricts the collection of biometric data, including DNA or RNA, by state agencies, municipalities, and political subdivisions. Died. |
New Hampshire | 2014 State Bills New Hampshire 2014 HB 1262 | Privacy | Died | This bill restricts the collection, storage, and sharing of student assessment data by the United States Department of Education and the New Hampshire department of education. Student assessment data includes biometric information, which is defined to include DNA. As of October 30, 2014, Interim Study Report: Not Recommended for Legislation in 2014 (Vote 15-0). |
New Jersey | 2018 State Bills New Jersey 2018 A4640 | Privacy | Died | This bill sets forth privacy protections for personally identifiable information collected by businesses. Personally identifiable information includes biometric data such as DNA. Died. |
New Jersey | 2018 State Bills New Jersey 2018 S3153 | Privacy | Died | This bill sets forth privacy protections for personally identifiable information collected by businesses. Personally identifiable information includes biometric data such as DNA. Died. |
New Jersey | 2013 State Bills New Jersey 2013 A 4306 | Privacy | Died | This bill sets forth requirements for government collection of biometric identifiers, including DNA. No governmental entity shall obtain a biometric identifier of an individual without authorization of the individual, with some exceptions such as law enforcement. Died. |
California | 2009 State Bills California 2009 SB 1330 | Use of Residual Newborn Screening Specimens | Enacted | This bill specifies that money from the genetic disease testing fund may be used for costs related to data management, and newborn blood collection, storage, retrieval, processing, inventory, and shipping. The health department, any entities approved by the department, and researchers shall maintain the confidentiality of patient information and blood samples in the same manner as other medical record information with patient identification and may use it only for approved research to (1) identify risk factors for children's and women's diseases;(2) research to develop and evaluate screening tests;(3) research to develop and evaluate prevention strategies; and(4) research to develop and evaluate treatments. The State Committee for the Protection of Human Subjects (CPHS) must determine if all of the if specified criteria are met for purposes of ensuring the security of a donor's personal information, before any blood samples are released pursuant for research purposes. Signed by the Governor September 25, 2010. |
Minnesota | 2013 State Bills Minnesota 2013 HF 589/SF 1017 | Privacy, Research, Use of Residual Newborn Screening Specimens | Died | This bill specifies that newborn screening activities are subject to state law on the collection, storage, use, and dissemination of genetic information. A new statute section also is created on the treatment of biological specimens and health data held by the health department and health boards. The new statute section allows the commissioner to collect, use, store, and disseminate biological specimens and health data to conduct research in a manner that is consistent with the federal common rule for the protection. Died. |
California | 2009 State Bills California 2009 SB 482 | Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Died | This bill states that all biological data derived from post-CLIA bioinformatics services shall be considered to contain genetic characteristics, as defined in section 1374.7 of the Health and Safety Code and section 10146 of the Insurance Code and is subject to the prohibitions in those sections of the statutes. Measure failed. |
Massachusetts | 2014 State Bills Massachusetts 2014 S.2294 | Research | Died | This bill states that any public health surveillance activity which is also research is subject to the requirements for research using human subjects. Died. |
Massachusetts | 2013 State Bills Massachusetts 2013 H.2070 | Research | Enacted | This bill states that any public health surveillance activity which is also research is subject to the requirements for research using human subjects. Signed by the Governor 12/19/2014. |
California | 2013 State Bills California 2013 SB 222 | Privacy | Died | This bill states that it is the intent of the Legislature to enact legislation to protect individuals from the unauthorized use of their genetic information, ensure that genetic information is personal information that is not collected, stored, or disclosed without the individual's authorization, provide protections for the collection, storage, and authorized use of genetic information, and promote the use of genetic information for legitimate reasons, including, but not limited to, health care, research, advancement of medicine, and educational purposes, as the field of genomics advances. Died. |
Illinois | 2007 State Bills Illinois 2007 SB 941 | Privacy | Died | This bill was introduced as an amendment to the Genetic Information privacy Act. All language was stricken in a senate amendment and new language was added related to cancer drugs. |
Illinois | 2007 State Bills Illinois 2007 SB 940 | Privacy | Died | This bill was introduced as an amendment to the Genetic Information privacy Act. All language was stricken in a senate amendment and new language was added related to firearms. |
Wisconsin | 2011 State Bills Wisconsin 2011 AB 289 | Employment Nondiscrimination | Died | This bill would eliminate the compensatory and punitives damages for acts of employment discrmination or unfair honesty or genetic testing. Measure failed. |
Wisconsin | 2011 State Bills Wisconsin 2011 SB 202 | Employment Nondiscrimination | Enacted | This bill would eliminate the compensatory and punitives damages for acts of employment discrmination or unfair honesty or genetic testing. Signed by the Governor April 6, 2012. |
Missouri | 2007 State Bills Missouri 2007 HB 364 | Health Insurance Nondiscrimination | Died | This bill, as substituted by the Senate, prohibits the treatment of genetic information as a preexisting condition in the absence of a diagnosis and prevents the establishment of rules for eligibility or continued eligibility on the basis of a health status-related factor, including genetic information, in health insurance. Measure failed. |
California | 2011 State Bills California 2011 SB 559 | Employment Nondiscrimination | Enacted | This bill, referred to as CalGINA, prohibits discrimination based on genetic information in several areas in addition to those addressed by existing law, including in housing, at certain business facilities, at state agencies, entities funded by or receiving financial assistance from the state, and in the provision of emergency services. Signed by the Governor on September 6, 2011. |
Missouri | State StatuteMissouri: MRS 375.1300 and 375.1309 | Privacy, Research | Statute | This section of the law is applicable to all insurance companies. A person who creates, stores, receives or furnishes genetic information must hold such information as confidential medical records and must obtain written authorization to disclose genetic information. Exceptions include statistical data compiled without reference to the identity of an individual, health research conducted in accordance with the provisions of the federal Common Rule, and health research using medical archives or databases in which the identity of individuals is protected from disclosure by coding or encryption, or by removing all identities. The director of insurance has the authority to enforce these provisions. |
Alaska | State StatuteAlaska: AS 18.13.010 et seq. | Privacy | Statute | This statute provides protections for the privacy of DNA samples and the results of DNA analysis. DNA samples and the results of DNA analysis are the exclusive property of the person sampled or analyzed. Samples collected and analyses conducted for the DNA registry, law enforcement purposes, paternity testing, newborn screening, and emergency medical treatment are exempt. The statute sets forth civi and criminal penalties for violations of the law. |
California | State StatuteCalifornia: Cal. Civil Code 51 | Other Topics | Statute | This statute was amended as part of 2011 CA SB 559, referred to as CalGINA, by adding genetic information to the list of characteristics addressed in the Unruh Civil Rights Act. All people in California are considered free and equal, and no matter what their sex, race, color, religion, ancestry, national origin, disability, medical condition, genetic information, marital status, sexual orientation, citizenship, primary language, or immigration status are entitled to the full and equal accommodations, advantages, facilities, privileges, or services in all business establishments of every kind whatsoever. |
Last updated: February 8, 2024