Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status Sort descending | Summary |
---|---|---|---|---|
Oklahoma | 2010 State Bills Oklahoma 2010 HB 2688 | Health Insurance Coverage | Died | This bill requires individual and group health insurers that provide coverage on an expense-incurred basis to provide reimbursement not to exceed $115 for mammography screening any female under 35 with a genetic predisposition to breast cancer. Measure failed. |
Vermont | 2020 State Bills Vermont 2020 S197 | Employment Nondiscrimination, Health Insurance Nondiscrimination, Other Topics, Other Lines of Insurance Nondiscrimination | Died | Prohibits discrimination based on an individual�s genetic information in relation to employment, labor relations, insurance coverage, and the provision of social and medical services. In some areas such as employment and insurance existing genetic nondiscrimination law are amended. Died. |
Arizona | 2020 State Bills Arizona 2020 HB 2881 | Privacy | Died | Amends the state genetic privacy law. Declares genetic testing and the information derived from it, whether in the possession of a public or private entity, to be the exclusive private property of the person tested. Died. |
Florida | 2019 State Bills Florida 2019 HB 697 | Health Insurance Nondiscrimination | Died | Creates Healthy Florida Program for purpose of comprehensive universal single-payer health care coverage. The Board of the program must establish requirements and standards to promote nondiscrimination, including based on genetic information. Died. |
Kentucky | 2017 State Bills Kentucky 2017 HB 483 | Health Insurance Nondiscrimination | Died | Makes technical changes to state statutes that prohibit the use of pre-existing condition exclusions based on genetic information. Clarifies that the prohibition applies to all insurers that offer any health benefit plan coverage. Died. |
Maryland | 2019 State Bills Maryland 2019 SB 556 | Employment Nondiscrimination | Died | Requires managers and supervisors in the Legislative and Executive branches of State government to immediately report certain incidents of workplace bullying, including bullying based on genetic information. 3/11/2019 Unfavorable Report by Finance; Withdrawn. |
Maryland | 2020 State Bills Maryland 2020 SB 957 | Privacy | Died | Requires certain businesses that collect a consumer's personal information, including biometric information such as an individual's DNA, to provide certain clear and conspicuous notices to the consumer at or before the point of collection. Authorizes a consumer to submit a certain request for information to a business that collects the consumer's personal information. Requires a business to comply with a request for information within 45 days after receiving a request. Died. |
Minnesota | 2009 State Bills Minnesota 2009 SF 1653 | Health Insurance Nondiscrimination | Died | This bill adds supplemental Medicare policies to health insurance plans covered under the state genetic_discrimination Act. HF 1853, which was approved by the Governor, was substituted for this bill. |
Montana | 2015 State Bills Montana 2015 HB 45 | Other Lines of Insurance Nondiscrimination | Died | Amends existing genetic information and insurance law by removing the exclusion of life, disability and long-term care insurance. Died. |
New York | 2007 State Bills New York 2007 A4662 | Other Lines of Insurance Nondiscrimination | Died | This bill prohibits denial, cancellation or alteration of a life or disability insurance policy or group life or disability insurance policy, including renewals, on the basis of any genetic testing performed on a insured, applicant or family member of insured or applicant. Measure failed. |
New York | 2019 State Bills New York 2019 A5727 | Health Insurance Coverage | Died | Requires health insurance policies to cover comprehensive genetic screening for ovarian and prostate cancers. Died. |
Tennessee | 2020 State Bills Tennessee 2020 SB 1841 | Privacy | Died | Prohibits a direct-to-consumer genetic testing business entity from sharing personally identifiable genetic test data or other personally identifiable information about a consumer with a third party without the express written consent of the consumer or a subpoena or court order. Died. |
West Virginia | 2008 State Bills West Virginia 2008 HB 2978 | Employment Nondiscrimination, Health Insurance Nondiscrimination, Privacy, Research | Died | This bill creates the Genetic Information privacy Act. Genetic testing and genetic information derived from testing may be released only to the individual tested or people specifically given written authorization to receive the information by the individual. Accident and health insurers may not request or seek information derived from genetic testing. If the federal government or others propose guidelines, the bill authorizes the insurance commissioner to propose rules to authorize further disclosure of information derived from genetic testing for insurance purposes beyond what is permitted in the legislation. The bill requires employers to treat information derived from genetic testing in a manner consistent with federal law, including but not limited to the Americans with Disabilities Act. Exclusions under the definition of genetic testing includes research governed by the Common Rule, tests conducted purely for research, tests for somatic as opposed to heritable mutations, tests where direct personal identifiers that reveal the patients identity are encoded or encrypted and tests that are composed of de-identified or anonymized information. Penalties for violations are set forth. Measure failed. |
Colorado | 2020 State Bills Colorado 2020 HB 1144 | Privacy | Died | Establishes the parent's bill of rights. Requirements set forth in the bill include parental written consent before any record of a minor child's blood or DNA is made, shared or stored unless required by law or court order. 02/13/2020 House Committee on State, Veterans, & Military Affairs Postpone Indefinitely. |
Idaho | 2014 State Bills Idaho 2014 HB 511 | Privacy | Died | Regulates the collection, possession and disclosure of biometric identifiers, defined to include human DNA, by private entities. Died. |
Maryland | 2009 State Bills Maryland 2009 SB 57 | Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Died | This bill provides an individual with a right to civil if the state genetic nondiscrimination insurance statutes are violated. Measure failed. |
Massachusetts | 2018 State Bills Massachusetts 2018 H.4865 | Health Insurance Coverage | Died | Requires health_insurance_coverage for certain genetically targeted drugs for Duchenne muscular dystrophy. Died. |
Mississippi | 2016 State Bills Mississippi 2016 HB 449 | Health Insurance Nondiscrimination | Died | Creates the small business health insurance pool. Health benefit plans covering small employers may not use genetic information to establish a pre-existing condition exclusion in the absence of a diagnosis of a condition related to the genetic information. 2/23/2016 (H) Died In Committee. |
New Jersey | 2018 State Bills New Jersey 2018 A2145 | Other Topics | Died | Requires testing of infants for genetic mutations associated with the development of hereditary hemochromatosis. Died. |
New York | 2015 State Bills New York 2015 A291 | Health Insurance Coverage | Died | This bill requires health insurance policies to cover comprehensive genetic screening for breast, ovarian, prostate, colon and lung cancers. Died. |
Massachusetts | 2020 State Bills Massachusetts 2020 H.4886 | Privacy | Died | Prohibits a public agency or public official from: (1) acquiring, possessing, accessing, using, or assisting with the use of or provide resources for the development or use of any biometric surveillance system, or (2) entering into a contract with or making a request to any third party for the purpose of acquiring, possessing, accessing or using information derived from a biometric surveillance system, unless expressly authorized by law. Biometric data is defined to include deoxyribonucleic acid. Died. |
Missouri | 2007 State Bills Missouri 2007 HB 364 | Health Insurance Nondiscrimination | Died | This bill, as substituted by the Senate, prohibits the treatment of genetic information as a preexisting condition in the absence of a diagnosis and prevents the establishment of rules for eligibility or continued eligibility on the basis of a health status-related factor, including genetic information, in health insurance. Measure failed. |
New Jersey | 2020 State Bills New Jersey 2020 A4697 | Health Insurance Coverage | Died | Requires a hospital service corporation that provides hospital or medical expense benefits to provide coverage for screening to determine whether genetic counseling related to the BRCA1 or BRCA2 genetic mutations is indicated; genetic counseling; and if indicated, BRCA testing. Died. |
New York | 2017 State Bills New York 2017 A2461 | Other Topics | Died | Authorizes the department of health to establish a program for familial dysautonomia, Canavan's and Tay-Sachs disease screening and counseling. Participation in the program is voluntary, and all information is confidential. Died. |
Oregon | 2007 State Bills Oregon 2007 SB 759 | Health Insurance Nondiscrimination, Privacy | Died | This bill amends the state genetic privacy law by changing retention and disclosure provisions that apply to health insurers. Measure failed. |
Last updated: February 8, 2024