Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status | Summary |
---|---|---|---|---|
Massachusetts | 2021 State Bills Massachusetts 2021 S. 46 | Privacy | Pending | Establishes privacy protections for the collection, use, retention and disclosure of biometric information by businesses in the state of Massachusetts. Biometric information is defined to include. Carries over to 2022. |
Massachusetts | 2021 State Bills Massachusetts 2021 S. 50 | Privacy | Pending | Amends statute to protect personal information under the security breach law. Adds genetic information to the scope of information covered under the law. Referred to the Senate committee on Advanced Information Technology, the Internet and Cybersecurity. Carries over to 2022. |
Massachusetts | 2021 State Bills Massachusetts 2021 S. 867 | Other Topics | Pending | Promotes fair housing by preventing discrimination against affordable housing based on various factors, including genetic information. Carries over to 2022. |
Massachusetts | 2021 State Bills Massachusetts 2021 S.1385 | Other Topics | Pending | Creates a pancreatic cancer advisory council within the health department. Requires the commissioner of insurance to survey health insurers in the commonwealth to ascertain coverage benefits of genetic testing for pancreatic cancer across health insurance plans, and present findings to the committee on health care financing and the committee on financial services no later than June 30, 2022. Carries over to 2022. |
Massachusetts | 2021 State Bills Massachusetts 2021 S.161 | Privacy | Pending | Amends statute to protect biometric information under the security breach law. Adds biometric indicator or any unique biological attribute or measurement that can be used to authenticate the identity of an individual, including genetic information, to the scope of information covered under the law. Carries over to 2022. |
Massachusetts | 2021 State Bills Massachusetts 2021 S.697 | Health Insurance Coverage | Pending | Requires certain insurers to provide coverage for screening breast ultrasound or screening breast magnetic resonance imaging examination if the patient has additional risk factors for breast cancer including, but not limited to, family history and positive genetic testing. Carries over to 2022. |
Massachusetts | 2021 State Bills Massachusetts 2021 S.996 | Other Topics | Pending | Prohibits any unit government from directly or indirectly: (1) excluding or partially excluding from participation, disadvantaging, harming, denying one or more benefits to, or otherwise subjecting a person to discrimination based on or because of one or more of the person�s protected characteristics; or (2) adopting, implementing or without limitation otherwise approving or utilizing any program, policy or practice that has a discriminatory effect. Carries over to 2022. |
Michigan | 2021 State Bills Michigan 2021 SB 327 | Employment Nondiscrimination | Pending | Requires an employer that employs 50 or more individuals at any time during the calendar year at a single work site in the state to inform employees of, and keep posted at the work site in a conspicuous place where employees may conveniently read it, a notice that includes specified information. Required notification includes a statement that it is illegal under federal law to pay employees different wages for the same work based solely on various characteristics, including genetic information. Carries over to 2022. |
Michigan | 2021 State Bills Michigan 2021 HB 4581 | Employment Nondiscrimination | Pending | Requires an employer that employs 50 or more individuals at any time during the calendar year at a single work site in the state to inform employees of, and keep posted at the work site in a conspicuous place where employees may conveniently read it, a notice that includes specified information. Required notification includes a statement that it is illegal under federal law to pay employees different wages for the same work based solely on various characteristics, including genetic information. Carries over to 2022. |
Minnesota | 2021 State Bills Minnesota 2021 HF 1492 | Privacy | Pending | Provides various rights to consumers regarding personal data. Requires certain businesses to conduct and document a data protection assessment of processing activities involving personal data, including sensitive data. Requires data controllers to obtain consent from consumers before processing sensitive data. Sensitive data is defined to include the processing of genetic or biometric data for the purpose of uniquely identifying a natural person. Carries over to 2022 session. |
Minnesota | 2021 State Bills Minnesota 2021 HF 2414 | Health Insurance Coverage | Pending | Requires every policy, plan, certificate, or contract referred to in subdivision that provides coverage to a Minnesota resident to provide coverage for all diagnostic and preventive screenings and tests related to breast cancer, including but not limited to genetic testing, breast examination, mammography, magnetic resonance imaging, digital breast tomosynthesis, ultrasound, thermography, biopsy, and other breast cancer screening tests currently being evaluated by the federal Food and Drug Breast Cancer research Foundation. Carries over to 2022 session. |
Minnesota | 2021 State Bills Minnesota 2021 HF 81 | Other Topics | Pending | Requires the Minnesota Board of Pharmacy to establish a pharmacogenomics task force to evaluate and assess the current availability of pharmacogenomics statewide and to develop recommendations for making pharmacogenomics available statewide. Carries over to 2022 session. |
Minnesota | 2021 State Bills Minnesota 2021 HF 82 | Other Topics | Pending | Establishes a grant program within the health department to award grants to persons, organizations, and entities to fund research studies on the evidence needed to: (1) support payer reimbursement and funding of pharmacogenomics (PGx) testing; (2) determine and validate new PGx variants in diverse populations such as Native Americans and Somali groups; (3) determine ethical, legal, and social implications of PGx; (4) determine the technical aspects needed to protect data and privacy as it relates to PGx; and (5) determine the education needed for successful PGx implementation. Carries over to 2022 session. |
Minnesota | 2021 State Bills Minnesota 2021 SF 1408 | Privacy | Pending | Provides various rights to consumers regarding personal data. Requires certain businesses to conduct and document a data protection assessment of processing activities involving personal data, including sensitive data. Requires data controllers to obtain consent from consumers before processing sensitive data. Sensitive data is defined to include the processing of genetic or biometric data for the purpose of uniquely identifying a natural person. Carries over to 2022 session. |
Minnesota | 2021 State Bills Minnesota 2021 SF 215 | Other Topics | Pending | Establishes a grant program within the health department to award grants to persons, organizations, and entities to fund research studies on the evidence needed to: (1) support payer reimbursement and funding of pharmacogenomics (PGx) testing; (2) determine and validate new PGx variants in diverse populations such as Native Americans and Somali groups; (3) determine ethical, legal, and social implications of PGx; (4) determine the technical aspects needed to protect data and privacy as it relates to PGx; and (5) determine the education needed for successful PGx implementation. Carries over to 2022 session. |
Minnesota | 2021 State Bills Minnesota 2021 SF 2320 | Health Insurance Coverage | Pending | Requires every policy, plan, certificate, or contract referred to in subdivision that provides coverage to a Minnesota resident to provide coverage for all diagnostic and preventive screenings and tests related to breast cancer, including but not limited to genetic testing, breast examination, mammography, magnetic resonance imaging, digital breast tomosynthesis, ultrasound, thermography, biopsy, and other breast cancer screening tests currently being evaluated by the federal Food and Drug Breast Cancer research Foundation. Carries over to 2022 session. |
Minnesota | 2021 State Bills Minnesota 2021SF 248 | Other Topics | Pending | Requires the Minnesota Board of Pharmacy to establish a pharmacogenomics task force to evaluate and assess the current availability of pharmacogenomics statewide and to develop recommendations for making |
Minnesota | Minnesota SB 1138 | Genetic data storage/privacy/sharing (industry), Lab Developed Tests | Introduced | Direct-to-consumer genetic testing companies requirement to provide disclosure notices and obtain consent. |
Minnesota | Minnesota HB 1520 | Lab Developed Tests | Pending | Direct-to-consumer genetic testing companies required to provide disclosure notices and obtain consent. |
New Hampshire | 2021 State Bills New Hampshire 2021 HB 597 | Privacy | Pending | Provides that an individual has an expectation of privacy in personal information, including content and usage, given or available to third-party providers of information and services, including cellular and land-line telephone, electric, water, and other utility services; Internet service providers; cable television providers; streaming services; social media providers; email service providers; banks and financial institutions; insurance companies; and credit card companies. Prohibits municipal, county, state, or federal department, agency, employee, elected official, or contractors from acquiring, collecting, retaining, or using personal information, directly or indirectly, related to customers of third-party providers of information and services located in New Hampshire except under certain circumstances. Personal information is defined to include genetic profiles and DNA/RNA data. Hearing on 3/05/2021. Carries over to 2022. |
New Jersey | New Jersey SB 2542 | Coverage and reimbursement | Introduced | Requires health_insurance_coverage of preimplantation genetic testing with in vitro fertilization under certain conditions. |
New Jersey | New Jersey SB 2987 | Coverage and reimbursement | Introduced | Requires health_insurance_coverage of prenatal genetic test during first trimester of pregnancy. |
New Jersey | New Jersey AB 4206 | Coverage and reimbursement | Introduced | Requires health_insurance_coverage of prenatal genetic test during first trimester of pregnancy. |
New Jersey | New Jersey AB 5473 | Coverage and reimbursement | Introduced | Requires health insurers to cover additional mammogram examinations and genetic testing and counseling under certain circumstances. |
New York | 2021 State Bills New York 2021 A1758 | Health Insurance Coverage | Pending | Requires accident and health insurance policies to cover the cost of genetic testing of persons with a family history of cancer when the attending physician determines such person has a significant risk thereof. Carries over to 2022. |
Last updated: February 8, 2024