Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status | Summary |
---|---|---|---|---|
West Virginia | 2014 State Bills West Virginia 2014 HB 3121 | Privacy | Died | Provides that all parental rights are reserved to a parent of a minor child without obstruction or interference from this state, a political subdivision of this state, other governmental entity or other institution including, but not limited to, the right to consent before DNA is created, stored or shared. Died. |
West Virginia | 2014 State Bills West Virginia 2014 SB 420 | Privacy | Died | Creates a Longitudinal Data System, which links child care, student and workforce unit record data, and governing board of the system. The governing board must prohibit the collection of confidential information, which includes genetic information. Died. |
Alabama | 2015 State Bills Alabama 2015 HB 564 | Privacy | Died | Prohibits state agencies, district boards of education, or pre K-12 educational institutions from administering any student survey, assessment, analysis, evaluation, or similar instrument that solicits information about the student or the student's family concerning biometric records, which is defined to include DNA sequences. Died. |
Arkansas | 2015 State Bills Arkansas 2015 HB 1827 | Privacy | Died | Enacts the Parents' Bill of Rights. A parent must consent in writing before a biometric scan of a minor child or a record of a minor child's blood or DNA is created, shared, or stored. April 2, 2015 Recommended for study in the Interim by Joint Interim Committee on JUDICIARY COMMITTEE- HOUSE |
California | 2015 State Bills California 2015 AB 170 | Use of Residual Newborn Screening Specimens | Died | States that a newborn sample may not be used for medical research if a parent or guardian of the newborn child objects to the testing program. The bill would require the department to provide information about the testing program, and to obtain a form signed by the parent or guardian acknowledging receiving information regarding the storage, retention, and use of the newborn child�s blood sample for medical research. Died. |
Colorado | 2015 State Bills Colorado 2015 HB 1199 | Privacy | Died | This bill requires a state agency or educational institution to obtain consent from parents or eligible students prior to collecting certain data, including biometric records. Biometric records are defined to include DNA. Died. |
Colorado | 2015 State Bills Colorado 2015 SB 77 | Privacy, Research | Died | Establishes a parental bill of rights. Requirements include parental consent in writing before any record of a minor child's blood or DNA is made, shared, or stored, unless such blood or DNA is otherwise required by law or court order. Died. |
Connecticut | 2015 State Bills Connecticut 2015 HB 5832 | Health Insurance Coverage | Died | Adds tomosynthesis to health_insurance_coverage requirements if a woman is believed to be at increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing or other indications as determined by a woman's physician or advanced practice registered nurse. Died. |
Delaware | 2015 State Bills Delaware 2015 SB 151 | Privacy | Enacted | This bill addresses informed consent for disclosing genetic information by adding those individuals authorized to access EMR and DHIN. Signed by the Governor on 7/27/2015. |
Delaware | 2015 State Bills Delaware 2015 SB 58 | Research, Use of Residual Newborn Screening Specimens | Enacted | Prohibits utilizing newborn screening stored blood specimens or stored data without parental consent, except for population based studies in which all identifying information is removed. Blood spots may be used within the Division of Public Health for quality assurance or performance improvement activities, including pilot studies when a new disorder is being considered for addition to the panel, or may be used by Division of Public Health for any other purpose authorized by law. Jul 15, 2015 - Signed by Governor. |
Delaware | 2015 State Bills Delaware 2015 SB 68 | Privacy | Died | Restricts the use of a child's personally identifiable information, including DNA and other genetic material, by the operator of an internet service. Substitute bill passed by House and Senate, but substitute bill does not include language regarding DNA and genetic information. Substituted bill was signed by the Governor. |
Delaware | 2015 State Bills Delaware 2015 SB 79 | Privacy | Died | Requires the Department of Education to promulgate rules and regulations relating to the privacy and protection of student data, including DNA or other genetic material. Senate Substitute Version passed in House and Senate -- DNA or other genetic information is replaced by biometric information. The term biometric information is not defined. Substituted bill was signed by the Governor. |
Florida | 2015 State Bills Florida 2015 HB 1277 | Other Topics | Died | The bill establishes the Florida Priority Care Project. The project aims to place a higher public priority on targeting the needs of adults who have a serious mental illness and who have a history that indicates a high probability that they could pose a threat to public safety. Requirements for the project include the use of genetic testing to help establish the correct medication regimes to be used to manage and treat a client's symptoms. Died. |
Georgia | 2015 State Bills Georgia 2015 SB 157 | Privacy | Died | Except as required by the federal Individuals with Disabilities Education Act, specified information, including DNA, may not be collected, entered into any student data base, or maintained as education records by a state agency, local board of education, or school. Died. |
Illinois | 2015 State Bills Illinois 2015 HB 1536 | Privacy | Died | Amends the School Code to add provisions concerning student and educator data privacy. Protections cover biometric records, defined to include DNA. Died. |
Illinois | 2015 State Bills Illinois 2015 HB 810 | Privacy | Died | Amends the School Code to add provisions concerning student and educator data privacy. Protections cover biometric records, defined to include DNA. Died. |
Illinois | 2015 State Bills Illinois 2015 HB 887 | Privacy | Died | Requires health insurance providers to protect health information related to sensitive services. A 2016 House Amendment would define sensitive services to include genetic testing. Died. |
Illinois | 2015 State Bills Illinois 2015 SB 54 | Health Insurance Coverage | Enacted | Adds tomosynthesis to health_insurance_coverage requirements for women at increased risk of breast cancer because of positive genetic testing. 8/19/2015 Signed By the Governor. |
Indiana | 2015 State Bills Indiana 2015 SB 323 | Research, Use of Residual Newborn Screening Specimens | Died | Amends the state's newborn screening statute. The bill requires consent to release newborn's residual blood specimen for epidemiological survey and research. Died. |
Maine | 2015 State Bills Maine 2015 LD 1251 | Privacy | Died | Prohibits the collection, entry into an education database or maintenance of DNA by as education records by the department of education or school administrative unit. Died. |
Maryland | 2015 State Bills Maryland 2015 HB 552 | Other Lines of Insurance Nondiscrimination | Died | For a stop-loss insurance policy or contract issues to a small employer, a medical stop-loss insurer may not increase cost-sharing or decrease coverage for a specific individual within the plan or exclude any employee or dependent base on an actual or expected health-status related factor, including genetic information. Died. |
Maryland | 2015 State Bills Maryland 2015 SB 548 | Privacy | Died | This bill amends the Personal Information Protection Act, which governs the use of personal information contained in the records of certain businesses. The definition of personal information is amended to include an individual's unique biometric or genetic print. In the Senate. Died. |
Maryland | 2015 State Bills Maryland 2015 SB 703 | Other Lines of Insurance Nondiscrimination | Died | For a stop-loss insurance policy or contract issues to a small employer, a medical stop-loss insurer may not increase cost-sharing or decrease coverage for a specific individual within the plan or exclude any employee or dependent base on an actual or expected health-status related factor, including genetic information. Died. |
Massachusetts | 2015 State Bills Massachusetts 2015 H.1900 | Privacy | Died | Ensures patient privacy and control in health information exchanges by protecting health care information, including genetic information. 5/5/2016 Accompanied a study order, see H4242. |
Massachusetts | 2015 State Bills Massachusetts 2015 H.225 | Privacy | Died | The bill amends statute sections pertaining to the department of consumer affairs and business regulations relative to any person that owns or licenses personal information about a resident of the commonwealth. Changes add biometric information, including genetic information, to the types of personal information protected under the law. Died. |
Last updated: February 8, 2024