Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status | Summary Sort ascending |
---|---|---|---|---|
Maryland | 2020 State Bills Maryland 2020 HB 1648 | Health Insurance Nondiscrimination | Died | Establishes the Healthy Maryland Program. Requires the Board to establish requirements and standards to consistent with state nondiscrimination laws, including those pertaining to genetic information. Participating providers may not refuse to provide health care services on the basis of genetic information. Died. |
Maryland | 2020 State Bills Maryland 2020 SB 1064 | Health Insurance Nondiscrimination | Died | Establishes the Healthy Maryland Program. Requires the Board to establish requirements and standards to consistent with state nondiscrimination laws, including those pertaining to genetic information. Participating providers may not refuse to provide health care services on the basis of genetic information. Died. |
Iowa | 2018 State Bills Iowa 2018 HF 2352 | Health Insurance Nondiscrimination | Died | Establishes the Healthy Iowa program. Residents of the state are entitled to enroll. Discrimination is prohibited with respect to members and providers based on genetic information. Died. |
Alaska | 2021 State Bills Alaska 2021 SB 116 | Privacy | Died | Establishes the Consumer Data privacy Act. Requires businesses to notify consumers before the collection of personal information. Consumers may opt out of the sale of personal information. Businesses must maintain privacy policies available online describing consumer's privacy rights such as the designated methods in which the consumer can request access or deletion of personal information. Biometric information, including deoxyribonucleic acid, is considered personal information. Carries over to 2022 session. |
Alaska | 2021 State Bills Alaska 2021 HB 159 | Privacy | Died | Establishes the Consumer Data privacy Act. Requires businesses to notify consumers before the collection of personal information. Consumers may opt out of the sale of personal information. Businesses must maintain privacy policies available online describing consumer's privacy rights such as the designated methods in which the consumer can request access or deletion of personal information. Biometric information, including deoxyribonucleic acid, is considered personal information. Carries over to 2022 session. |
California | 2020 State Bills California 2020 AB 3215 | Other Topics | Died | Establishes the Commission on the State of Hate. Requires the commission to advise the Legislature, the Governor, and state agencies on, among other things, policy recommendations to promote intersocial education designed to foster mutual respect and understanding among California�s diverse population. Appointees to the commission are comprised of experts in combating hate, intolerance, and discrimination on the basis of various factors such as genetic information. Died. |
California | State StatuteCalifornia: Cal. Health and Safety Code 130200 et seq. | Privacy, Research | Statute | Establishes the Center for Data Insights and Innovation within the California Health and Human Services Agency, and transfer the duties of the Office of Health Information Integrity and the Office of Patient Advocate to the center. Requires the center to: (1) assume responsibility for administering the State Committee for the Protection of Human Subjects; (2) keep all personal information obtained by the center confidential, as specified; and (3) meet various requirements with regard to the disclosure of information, including the development of a comprehensive program regarding the disclosure of information to qualified researchers according to specified data use agreements. |
New York | 2019 State Bills New York 2019 A7736 | Privacy | Died | Establishes the "It's Your Data Act" for the purposes of providing protections and transparency in the collection, use, retention, and sharing of personal information. Personal information includes biometric information such as DNA. Died. |
New York | 2021 State Bills New York 2021 S4021 | Privacy | Pending | Establishes the "It's Your Data Act" for the purposes of providing protections and transparency in the collection, use, retention, and sharing of personal information, including biometric data. Carries over to 2022. |
New York | 2021 State Bills New York 2021 A3586 | Privacy | Pending | Establishes the "It's Your Data Act" for the purposes of providing protections and transparency in the collection, use, retention, and sharing of personal information, including biometric data. Biometric information is defined to include DNA. Carries over to 2022. |
Massachusetts | 2019 State Bills Massachusetts 2019 Order H.2019 | Employment Nondiscrimination | Enacted | Establishes that it is House policy and practice to assign, promote and compensate employees on the basis of qualifications, merit, and competence. Prohibits employment practices that are influenced or affected by virtue of an applicant's or employee's genetic information. 1/30/2019 Order adopted and published as amended. |
New Mexico | 2021 State Bills New Mexico 2021 SB 408 | Employment Nondiscrimination, Other Topics, Privacy | Died | Establishes that every person, whether a minor or an adult, has the right of bodily integrity and the freedom to assert that right. A person may not be discriminated agains or denied public accommodation, housing accommodation, employment, government services or any other services offered to the general public or otherwise penalized for the assertion of the right of bodily integrity, including the right not to provide samples of bodily fluids, bodily tissue or genetic material. Died. |
Tennessee | 2021 State Bills Tennessee 2021 SB 956 | Other Topics | Pending | Establishes rights of perinatal care patients, including the right to be free from discriminating based on genetic information. 3/31/2021 Assigned to General Subcommittee of Senate Health and Welfare Committee. Carries over to 2022. |
Tennessee | 2021 State Bills Tennessee 2021 HB 642 | Other Topics | Pending | Establishes rights of perinatal care patients, including the right to be free from discriminating based on genetic information. 3/30/2021 Deferred for summer study in Health Subcommittee. |
Minnesota | 2020 State Bills Minnesota 2020 HF 3096 | Privacy | Died | Establishes requirements with regard to collection, sale of, and access to personal information by businesses. Personal information is defined to include genetic information. Died. |
Indiana | 2018 State Bills Indiana 2018 SB 352 | Privacy | Died | Establishes requirements regarding student education records, personally identifiable information of a student, and certain other information concerning a student. Personally identifiable information includes a DNA sequence. Died. |
Wisconsin | 2020 State Bills Wisconsin 2020 AB 872 | Privacy | Died | Establishes requirements on controllers that process consumers' personal data, including genetic data. 4/1/2020 Failed to pass pursuant to Senate Joint Resolution 1. |
Maryland | State StatuteMaryland: Md. Criminal Procedure 17-101 et seq. | Other Topics | Statute | Establishes requirements for the use of genetic genealogical DNA analysis for criminal justice purposes. |
Massachusetts | 2021 State Bills Massachusetts 2021 H.4029 | Privacy | Pending | Establishes requirements for specified persons, partnerships or corporations that maintain high-risk information systems. A high-risk information system involves the personal information of a significant numbers of consumers regarding various characteristics, including genetic data. Carries over to 2022. |
Virginia | Virginia SB 419 | Genetic data storage/privacy/sharing (industry) | Died | Establishes requirements for direct-to-consumer genetic testing companies, including requirements related to information to be provided |
Virginia | Virginia SB 1087 | Genetic data storage/privacy/sharing (industry), Lab Developed Tests | Enacted | Establishes requirements for direct-to-consumer genetic testing companies, defined in the bill, including requirements related to information to be provided to consumers, express consent requirements... |
Arizona | 2020 State Bills Arizona 2020 HB 2729 | Privacy | Died | Establishes requirements for controllers upon the receipt of a verified request from consumers to exercise their rights with respect to the processing of personal data, including genetic data for the purpose of uniquely identifying a person. Died. |
Wisconsin | 2020 State Bills Wisconsin 2020 SB 851 | Privacy | Died | Establishes requirements for businesses related to personal information such as biometric information collected about consumers. Biometric information is defined to include DNA. 4/1/2020 Failed to pass pursuant to Senate Joint Resolution 1. |
Massachusetts | 2021 State Bills Massachusetts 2021 H. 4152 | Privacy | Pending | Establishes protections relative to the processing of personal data and the free movement of personal data. Prohibits the processing of genetic data or biometric data for the purpose of uniquely identifying a natural person with certain exceptions. Carries over to 2022. |
Washington | 2015 State Bills Washington 2015 HB 1094 | Privacy | Died | Establishes protections for the use of biometric identifiers of an individual for commercial purposes. Biometric identifier is defined to include DNA. Died. |
Last updated: February 8, 2024