Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status Sort descending | Summary |
---|---|---|---|---|
Minnesota | 2008 State Bills Minnesota 2008 HF 1905 | Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Died | This bill modifies the definition of genetic test under the Genetic Insurance Discrimination Act and adds a new section restricting the use of genetic information in individual and group life, disability income and long-term care insurance. For underwriting and ratemaking purposes, these insurers may not request or require a genetic test, use genetic test results other than those in the medical record or use genetic test results in the medical record without claims experience, substantial data or actuarial justification. Measure failed. |
Missouri | 2021 State Bills Missouri 2021 HJR 51 | Health Insurance Nondiscrimination | Died | Proposes a Constitutional amendment, if approved by the voters, to provide that prohibits health plans from limiting or excluding benefits relating to any condition based on the fact that the condition is a preexisting condition or charging a different premium rate or imposing different out-of-pocket costs for the same coverage based on the fact that a person covered under the plan has a preexisting condition. Genetic information should not be treated as a preexisting condition in the absence of a diagnosis of the condition related to such information. 4/13/2021 Reported Do Pass House Rules Committee. Died. |
New Mexico | 2013 State Bills New Mexico 2013 SB 445 | Employment Nondiscrimination, Privacy | Died | Enacts the Uniform Protection of Genetic Information in Employment Act. The bill also amends the Genetic Information privacy Act. Died in Consumer and Public Affairs Committee. |
New York | 2019 State Bills New York 2019 A239 | Other Topics | Died | Establishes an eleven member genetics advisory council. Died. |
South Dakota | 2015 State Bills South Dakota 2015 SB 187 | Privacy | Died | This bill establishes certain rights of parents regarding the upbringing, education, health care, and mental health care of their children and provides certain penalties for the violation of those rights. Rights set forth include the right to consent in writing before any record of a minor child's blood or deoxyribonucleic acid is created, stored, or shared. Died. |
Washington | 2020 State Bills Washington 2020 HB 2485 | Privacy | Died | Enacts measures to safeguard the privacy, confidentiality, security, and integrity of a consumer's genetic data resulting from direct-to-consumer genetic testing. Died. |
Connecticut | 2017 State Bills Connecticut 2017 SB 586 | Health Insurance Coverage | Died | Requires individual and group health insurers to provide coverage for breast cancer chemoprevention counseling, risk assessment, genetic testing and counseling for any woman who is at increased risk for breast cancer due to family history, prior personal history of breast cancer, positive genetic testing or other indications as determined by a health care provider. Died. |
Illinois | 2007 State Bills Illinois 2007 SB 940 | Privacy | Died | This bill was introduced as an amendment to the Genetic Information privacy Act. All language was stricken in a senate amendment and new language was added related to firearms. |
Maryland | 2013 State Bills Maryland 2013 HB 959 | Privacy | Died | Sets forth requirements for governmental units, including an executive, legislative or judicial agency, a department, a board, a commission, an authority, a public institution of higher education, or a unit or instrument of the state that collects or discloses personal information. Defines personal information to include an individual's genetic print. Died. |
Alabama | 2012 State Bills Alabama 2012 HB 78 | Privacy | Died | This bill creates the Genetic Information privacy Act. The bill establishes procedures for obtaining, disclosing and storing genetic information as well as penalties for unlawful disclosure. Measure failed. |
Delaware | 2015 State Bills Delaware 2015 SB 68 | Privacy | Died | Restricts the use of a child's personally identifiable information, including DNA and other genetic material, by the operator of an internet service. Substitute bill passed by House and Senate, but substitute bill does not include language regarding DNA and genetic information. Substituted bill was signed by the Governor. |
Illinois | 2020 State Bills Illinois 2020 HB 4656 | Health Insurance Coverage | Died | Amends the Medical Patient Rights Act. Provides that all persons have a right to request an annual breast cancer screening mammogram under the age of 40 if such person has a family history of breast cancer or genetic testing has confirmed likelihood that such person has otherwise tested positive for BRCA1 or BRCA2 mutations. Died. |
Maryland | 2015 State Bills Maryland 2015 SB 703 | Other Lines of Insurance Nondiscrimination | Died | For a stop-loss insurance policy or contract issues to a small employer, a medical stop-loss insurer may not increase cost-sharing or decrease coverage for a specific individual within the plan or exclude any employee or dependent base on an actual or expected health-status related factor, including genetic information. Died. |
Massachusetts | 2019 State Bills Massachusetts 2019 S.120 | Privacy | Died | Establish protections for the privacy of personal information pertaining to consumers, including biometric information such as DNA. 2/13/2020 In Senate. Accompanied a study order see S2534. Died. |
Mississippi | 2017 State Bills Mississippi 2017 SB 2581 | Privacy | Died | Allows parents or legal guardians of students enrolled in public schools to opt-out of sharing their child's personal information with the federal government and other agencies and private contractors. Personal information includes a DNA sequence. 1/31/2017 Died in Committee. |
New Jersey | 2019 State Bills New Jersey 2019 A5510 | Privacy | Died | Expands the state law on discrimination by prohibiting any entity that operates a health program or activity from: 1. Excluding participation in, deny the benefits of, or otherwise discriminate under any health program or activity on the basis of an individual�s genetic information or 2. Aiding or perpetuating discrimination against any person by providing significant assistance to any entity or person that discriminates on the basis of genetic information. Died. |
New York | 2015 State Bills New York 2015 A3921 | Research | Died | This bill regulates the use of human subjects for medical research and experimentation, including subjects with mental disorders and children. Provisions include that no greater than minimal risk non-therapeutic human research may be conducted on a child without consent of a parent or guardian. Died. |
Oklahoma | 2017 State Bills Oklahoma 2017 HB 1716 | Other Topics | Died | Requires certain residents of long-term care facilities to have a pharmacogenomics profile conducted. The profile must include the results of at least eighteen genes tested and be accompanied by treatment guidance for each disease state-tested. Died. |
Virginia | 2009 State Bills Virginia 2009 SB 976 | Health Insurance Nondiscrimination | Died | This bill prohibits the treatment of genetic information as a preexisting condition in basic health insurance plans in the absence of a diagnosis of the condition related to such information. Measure failed. |
California | 2019 State Bills California 2019 SB 731 | Privacy | Died | Language in introduced version, which pertained to genetic characteristics and workers compensation, was stricken. Amended version of bill states that peace officer and custodial officer personnel records maintained by a state or local agency are not confidential and are available for public inspection. Records available for inspection include those relating to an incident in which a sustained finding was made by any law enforcement agency or oversight agency that a peace officer or custodial officer engaged in conduct such as verbal statements, writings, online posts, recordings, and gestures, involving prejudice or discrimination against a person on the basis of various factors, including genetic information. Died. |
Georgia | 2015 State Bills Georgia 2015 SB 157 | Privacy | Died | Except as required by the federal Individuals with Disabilities Education Act, specified information, including DNA, may not be collected, entered into any student data base, or maintained as education records by a state agency, local board of education, or school. Died. |
Maine | 2015 State Bills Maine 2015 LD 1251 | Privacy | Died | Prohibits the collection, entry into an education database or maintenance of DNA by as education records by the department of education or school administrative unit. Died. |
Maryland | 2020 State Bills Maryland 2020 SB 547 | Other Topics | Died | Prohibits a hospital or related institution from discriminating in admitting or providing care for an individual based on various factors, including genetic information. Died. |
Maryland | 2021 State Bills Maryland 2021 SB 112 | Privacy | Died | Amends statute requiring a business that maintains personal information of an individual residing in the State to implement and maintain certain security procedures and practices. The bill adds the following to the definition of personal information: genetic information with respect to an individual, including the genetic sample of an individual; the genetic test of an individual; the genetic test of an individual's family member; the manifestation of a disease or disorder in a family member of an individual; any request for and receipt of genetic counseling, or genetic education; and any information derived from genetic information with respect to an individual. In the Senate - Hearing 2/10 at 1:00 p.m. Died. |
Minnesota | 2014 State Bills Minnesota 2014 HF 2402 | Use of Residual Newborn Screening Specimens | Died | The original version of this bill amended the newborn screening law pertaining to storage of blood samples. All language was subsequently deleted pertaining to the newborn screening program. |
Last updated: February 8, 2024