Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status | Summary |
---|---|---|---|---|
Arizona | Arizona HB 2783 | Coverage and reimbursement | Introduced | Cancer screening; coverage; gene mutation. |
California | California SB 625 | Neonatal sequencing | Pending | Newborn screening: genetic diseases: blood samples collected. |
California | 2021 State Bills California 2021 SB 172 | Privacy, Research | Pending | Abolishes the Office of Health Information Integrity and the Office of Patient Advocate. Establishes the Center for Data Insights and Innovation within the California Health and Human Services Agency, and transfer the duties of the Office of Health Information Integrity and the Office of Patient Advocate to the center. Requires the center to: (1) assume responsibility for administering the State Committee for the Protection of Human Subjects; (2) keep all personal information obtained by the center confidential, as specified; and (3) meet various requirements with regard to the disclosure of information, including the development of a comprehensive program regarding the disclosure of information to qualified researchers according to specified data use agreements. Carries over to 2022. |
Delaware | 2021 State Bills Delaware 2021 HB 262 | Privacy | Pending | Seeks to provide consumers with critical information about how their personal information is being used by data brokers. Data brokers must register with the Consumer Protection Unit of the Department of Justice and answer questions regarding their use of personal information that would be published online to inform consumers. Data brokers are required annually to complete an electronic form designated by the Director of Consumer Protection. Data brokers must report on the form the types of consumer data, including genetic data, collected directly from consumers and from consumers� devices. Carries over to 2022. |
Georgia | 2021 State Bills Georgia 2021 HB 115 | Other Lines of Insurance Nondiscrimination | Pending | Prohibits life and long-term care insurers that receive information from genetic testing from using the information for any non-therapeutic purpose, including, but not limited to, canceling, limiting, or denying coverage or establishing differentials in premium rates. These insurers also may not require or solicit genetic information, use genetic testing results, or consider a person's decisions or actions related to genetic testing in any manner for any insurance purpose. Carries over to 2022 session. |
Hawaii | Hawaii HB 384 | Parentage law | Passed Senate | Relating to parentage. Enacts portions of the uniform parentage act of 2017 to replace the uniform parentage act of 1973. effective 3/22/2075. |
Hawaii | Hawaii SB 484 | Parentage law | Introduced | Relating to parentage. Enacts portions of the uniform parentage act of 2017 to replace the uniform parentage act of 1973. takes effect 1/1/2024. |
Hawaii | 2021 State Bills Hawaii 2021 HB 241 | Employment Nondiscrimination, Other Topics | Pending | Prohibits discrimination in employment and public accomodation based on an individual's invasive medical test status. Invasive medical test status is defined to include a medical test or screening that requires a sample of an individual's genetic material. Carries over to 2022 session. |
Hawaii | 2021 State Bills Hawaii 2021 HB 249 | Health Insurance Coverage | Pending | Requires every group policy of accident and health or sickness insurance and every individual or group hospital or medical service plan contract to provide coverage for screening to determine whether counseling and testing related to the BRCAl or BRCA2 genetic mutation is indicated and genetic counseling and testing related to the BRCAl or BRCA2 genetic mutation, if indicated. Carries over to 2022 session. |
Hawaii | 2021 State Bills Hawaii 2021 SB 1009 | Privacy | Pending | Amends the definition of personal information for the purpose of applying modern security breach of personal information law. Personal information is defined as an identifier in combination with one or more specified data elements. Specified data elements include a deoxyribonucleic profile. Carries over to 2022 session. |
Hawaii | 2021 State Bills Hawaii 2021 SB 623 | Health Insurance Coverage | Pending | Requires every group policy of accident and health or sickness insurance and every individual or group hospital or medical service plan contract to provide coverage for screening to determine whether counseling and testing related to the BRCAl or BRCA2 genetic mutation is indicated and genetic counseling and testing related to the BRCAl or BRCA2 genetic mutation, if indicated. Carries over to 2022 session. |
Illinois | 2021 State Bills Illinois 2021 HB 2880 | Privacy | Died | Amends the Personal Information Protection Act. Provides that individuals and entities have intellectual property rights in their digital identity assets. Provides for the payment of royalties to individuals and entities for access, for the purpose of commercial advertising, to their digital assets. Digital assets include, but are not limited to, information accumulated regarding an individual's or entity's personal information. Personal information includes medical history such as RNA and DNA profiles and genetic history. Carries over to 2022 session. |
Kansas | Kansas HB 2409 | Genetic Data & Law Enforcement, Parentage law | Introduced | Enacting the Kansas uniform parentage act (2017). |
Kansas | Kansas SB 139 | Neonatal sequencing | Introduced | Expanding newborn screening services and increasing transfer from the medical assistance fee fund to the Kansas newborn screening fund. |
Massachusetts | Massachusetts HD 1 | Neonatal sequencing | Introduced | An Act making appropriations for the Fiscal Year 2024 for the maintenance of the departments, boards, commissions, institutions, and certain activities of the Commonwealth, for interest, sinking fund... |
Massachusetts | Massachusetts HB 181 | Neonatal sequencing | Introduced | An Act relative to early intervention services for children with prenatal exposure to opioids. |
Massachusetts | Massachusetts HD 777 | Neonatal sequencing | Introduced | An Act relative to early intervention services for children with prenatal exposure to opioids. |
Massachusetts | Massachusetts SB 2400 | Neonatal sequencing | Introduced | An Act making appropriations for the fiscal year 2024 for the maintenance of the departments, boards, commissions, institutions, and certain activities of the Commonwealth, for interest, sinking fund... |
Massachusetts | 2021 State Bills Massachusetts 2021 H.1113 | Health Insurance Coverage | Pending | Requires certain insurers to provide benefits on a nondiscriminatory basis for the diagnosis and treatment of Alfi�s syndrome in individuals. Diagnosis of Alfi's Syndrome includes genetic testing. Carries over to 2022. |
Massachusetts | 2021 State Bills Massachusetts 2021 H.1175 | Health Insurance Coverage | Pending | Requires certain insurers to provide coverage for screening breast ultrasound or screening breast magnetic resonance imaging examination if the patient has additional risk factors for breast cancer including, but not limited to, family history and positive genetic testing. Carries over to 2022. |
Massachusetts | 2021 State Bills Massachusetts 2021 H.1373 | Other Topics | Pending | Promotes fair housing by preventing discrimination against affordable housing based on various factors, including genetic information. Carries over to 2022. |
Massachusetts | 2021 State Bills Massachusetts 2021 H.142 | Privacy | Pending | Establishes privacy protections for the collection, use, retention and disclosure of biometric information by businesses in the state of Massachusetts. Biometric information is defined to include a DNA sequence. Carries over to 2022. |
Massachusetts | 2021 State Bills Massachusetts 2021 H.2304 | Other Topics | Pending | Creates a pancreatic cancer advisory council within the health department. Requires the commissioner of insurance to survey health insurers in the commonwealth to ascertain coverage benefits of genetic testing for pancreatic cancer across health insurance plans, and present findings to the committee on health care financing and the committee on financial services no later than June 30, 2022. Carries over to 2022. |
Massachusetts | 2021 State Bills Massachusetts 2021 H.4029 | Privacy | Pending | Establishes requirements for specified persons, partnerships or corporations that maintain high-risk information systems. A high-risk information system involves the personal information of a significant numbers of consumers regarding various characteristics, including genetic data. Carries over to 2022. |
Massachusetts | 2021 State Bills Massachusetts 2021 S. 2102 | Employment Nondiscrimination | Pending | Requires the commission on workplace harassment and sexual assault in the legislature to research and develop model workplace harassment policies for consideration and use by the Senate and House of Representatives. The model policies must address identity-based harassment, including harassment based on genetic information. Carries over to 2022. |
Last updated: February 8, 2024