Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status Sort descending | Summary |
---|---|---|---|---|
Texas | Texas SB 1544 | Genetic data storage/privacy/sharing (industry) | Introduced | Relating to the use of an individual's genetic data by certain genetic testing companies for commercial purposes; authorizing a civil penalty. |
Texas | Texas SB 1697 | Neonatal sequencing | Introduced | Relating to an annual report regarding certain newborn screening tests. |
Pennsylvania | Pennsylvania HB 350 | Genetic Data & Law Enforcement | Introduced | An Act amending Title 23 (Domestic Relations) of the Pennsylvania Consolidated Statutes, adding provisions relating to establishment of parent-child relationship for certain individuals; providing fo... |
Vermont | Vermont SB 74 | Neonatal sequencing | Introduced | An act relating to incremental implementation of Green Mountain Care. |
Rhode Island | Rhode Island HB 5351 | Consumer Personal Data Privacy, Coverage and reimbursement | Introduced | An act relating to insurance -- accident and sickness insurance policies (mandates insurance policies, provides coverage to diagnose & treat infertility for women between 25 & 42 years, including pre... |
Minnesota | Minnesota SB 1138 | Genetic data storage/privacy/sharing (industry), Lab Developed Tests | Introduced | Direct-to-consumer genetic testing companies requirement to provide disclosure notices and obtain consent. |
Arizona | Arizona HB 2783 | Coverage and reimbursement | Introduced | Cancer screening; coverage; gene mutation. |
Kansas | Kansas HB 2409 | Genetic Data & Law Enforcement, Parentage law | Introduced | Enacting the Kansas uniform parentage act (2017). |
Kansas | Kansas SB 139 | Neonatal sequencing | Introduced | Expanding newborn screening services and increasing transfer from the medical assistance fee fund to the Kansas newborn screening fund. |
New Jersey | New Jersey SB 2542 | Coverage and reimbursement | Introduced | Requires health_insurance_coverage of preimplantation genetic testing with in vitro fertilization under certain conditions. |
West Virginia | West Virginia HB 3025 | Genetic Data & Law Enforcement | Introduced | Relating to DNA data maintained for law enforcement purposes. |
Massachusetts | Massachusetts HD 1 | Neonatal sequencing | Introduced | An Act making appropriations for the Fiscal Year 2024 for the maintenance of the departments, boards, commissions, institutions, and certain activities of the Commonwealth, for interest, sinking fund... |
New Jersey | New Jersey SB 2987 | Coverage and reimbursement | Introduced | Requires health_insurance_coverage of prenatal genetic test during first trimester of pregnancy. |
Massachusetts | Massachusetts HB 181 | Neonatal sequencing | Introduced | An Act relative to early intervention services for children with prenatal exposure to opioids. |
New Jersey | New Jersey AB 4206 | Coverage and reimbursement | Introduced | Requires health_insurance_coverage of prenatal genetic test during first trimester of pregnancy. |
Massachusetts | Massachusetts HD 777 | Neonatal sequencing | Introduced | An Act relative to early intervention services for children with prenatal exposure to opioids. |
New Jersey | New Jersey AB 5473 | Coverage and reimbursement | Introduced | Requires health insurers to cover additional mammogram examinations and genetic testing and counseling under certain circumstances. |
Hawaii | Hawaii SB 484 | Parentage law | Introduced | Relating to parentage. Enacts portions of the uniform parentage act of 2017 to replace the uniform parentage act of 1973. takes effect 1/1/2024. |
Massachusetts | Massachusetts SB 2400 | Neonatal sequencing | Introduced | An Act making appropriations for the fiscal year 2024 for the maintenance of the departments, boards, commissions, institutions, and certain activities of the Commonwealth, for interest, sinking fund... |
Texas | Texas HB 270 | Genetic Data & Law Enforcement | Passed House | Relating to postconviction forensic DNA testing. |
Rhode Island | Rhode Island SB 107 | Coverage and reimbursement | Passed Senate | An act relating to insurance -- accident and sickness insurance policies (mandates all insurance contracts/plans/policies provide coverage for the expense of diagnosing/treating infertility for women... |
Hawaii | Hawaii HB 384 | Parentage law | Passed Senate | Relating to parentage. Enacts portions of the uniform parentage act of 2017 to replace the uniform parentage act of 1973. effective 3/22/2075. |
Massachusetts | 2021 State Bills Massachusetts 2021 H.1113 | Health Insurance Coverage | Pending | Requires certain insurers to provide benefits on a nondiscriminatory basis for the diagnosis and treatment of Alfi�s syndrome in individuals. Diagnosis of Alfi's Syndrome includes genetic testing. Carries over to 2022. |
New York | 2021 State Bills New York 2021 A3586 | Privacy | Pending | Establishes the "It's Your Data Act" for the purposes of providing protections and transparency in the collection, use, retention, and sharing of personal information, including biometric data. Biometric information is defined to include DNA. Carries over to 2022. |
Massachusetts | 2021 State Bills Massachusetts 2021 S.161 | Privacy | Pending | Amends statute to protect biometric information under the security breach law. Adds biometric indicator or any unique biological attribute or measurement that can be used to authenticate the identity of an individual, including genetic information, to the scope of information covered under the law. Carries over to 2022. |
Last updated: February 8, 2024