Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status Sort descending | Summary |
---|---|---|---|---|
Maryland | 2019 State Bills Maryland 2019 HB 1127 | Privacy | Died | A business that owns or licenses computerized data that includes personal information such as genetic information of an individual must conduct a reasonable and prompt investigation upon the breach of the security of a system. Died. |
Michigan | 2009 State Bills Michigan 2009 HB 5234 | Health Insurance Nondiscrimination, Research | Died | This bill applies to insurers that provide Medicare supplement policies or certificates only. Denying or conditioning the issuance or effectiveness of insurance, including pre-existing condition exclusions, on the basis of genetic information is prohibited. These insurers of these policies or certificates may not (1) discriminate with respect to pricing on the basis of genetic information, (2) request or require an individual or family member to undergo a genetic test (with an exception regarding requesting a test), or (3) use the manifestation of disease in an individual as genetic information about another group members and to further increase premiums for the group. Insurers may request a genetic test from an individual or family member only if the request is pursuant to research that applies to the Common Rule and other criteria are met. Measure failed. |
Missouri | 2015 State Bills Missouri 2015 HB 1240 | Privacy | Died | Protects the privacy of student data, which encompasses biometric records. Biometric records is defined to include DNA. Died. |
New Jersey | 2020 State Bills New Jersey 2020 S269 | Privacy | Died | Requires certain businesses to notify data subjects of collection of personally identifiable information and establishes certain security standards. Personally identifiable information is defined to include biometric information such as DNA. Died. |
New York | 2017 State Bills New York 2017 S4159 | Privacy | Died | A Transportation Network Company (TNC) may not discriminate against passengers or potential passengers on the basis of a genetic predisposition. TNC drivers must comply with the anti-discrimination law. Died. |
Minnesota | 2008 State Bills Minnesota 2008 HF 4242 | Other Topics | Died | This bill requires any person who provides a specimen collection kit to a resident of Minnesota for the purpose of collecting genetic material to perform a genetic test to first provide the resident with the disclosure, as described in the legislation. The bill also requires a study to determine which companies and laboratories are providing direct-to-consumer genetic tests to Minnesota residents. Measure failed. |
Missouri | 2021 State Bills Missouri 2021 SJR 26 | Health Insurance Nondiscrimination | Died | Proposes a Constitutional amendment, if approved by the voters, to provide that prohibits health plans from limiting or excluding benefits relating to any condition based on the fact that the condition is a preexisting condition or charging a different premium rate or imposing different out-of-pocket costs for the same coverage based on the fact that a person covered under the plan has a preexisting condition. Genetic information should not be treated as a preexisting condition in the absence of a diagnosis of the condition related to such information. 4/22/2021 Voted Do Pass Senate Insurance and Banking Committee. Died. |
New Mexico | 2019 State Bills New Mexico 2019 HB 141 | Privacy | Died | Prohibits the disclosure of sensitive personal information by a state agency employee acquired by virtue of the employee's position with a state agency to anyone outside the state agency except under specified circumstances. Died. |
New York | 2019 State Bills New York 2019 A2409 | Research | Died | Regulates the use of human subjects for medical research and experimentation, including subjects with mental disorders and children. Died. |
Tennessee | 2007 State Bills Tennessee 2007 HB 2082 | Health Insurance Nondiscrimination | Died | Prior to amendment, this bill exempt insurance pools created by an association of private, not-for-profit educational institutions that has been in existence for at least 25 years from the provisions governing genetic information nondiscrimination. This language was removed from the final version of the bill. The companion bill substituted with SB 343 signed by the Governor May 15, 2007. |
Washington | 2020 State Bills Washington 2020 HB 2742 | Privacy | Died | Requires controller who determines the purposes and means of the processing of personal data to obtain consent prior to processing sensitive data, including genetic data. Controllers must conduct an assessment of activities pertaining to the processing of sensitive data. Died. |
Connecticut | 2018 State Bills Connecticut 2018 SB 440 | Health Insurance Coverage | Died | The Commissioner of Social Services must provide Medicaid coverage to the extent permissible under federal law for pharmacogenomics tests determined to be medically necessary. The commissioner may not require prior authorization for medically necessary pharmacogenomics tests for persons being treated for (1) behavioral disorders, (2) psychiatry disorders, (3) cardiovascular disorders, and (4) chronic pain. Died. |
Illinois | 2007 State Bills Illinois 2007 SB 941 | Privacy | Died | This bill was introduced as an amendment to the Genetic Information privacy Act. All language was stricken in a senate amendment and new language was added related to cancer drugs. |
Maryland | 2013 State Bills Maryland 2013 HB 960 | Privacy | Died | Requires certain businesses, when destroying a customers records that contain personal or private information of the customer, to take specific steps to protect against unauthorized access to or use of the information. Personal information is defined to include an individual's genetic print. Died. |
Massachusetts | 2017 State Bills Massachusetts 2017 S.81 | Other Topics | Died | Prohibits local or state administrative, legislative or regulatory body or instrumentality from engaging in discriminatory land use practices based on a variety of factors, including genetic information. 4/11/2018 Accompanied a new draft, see H4397. |
Mississippi | 2012 State Bills Mississippi 2012 HB 497 | Health Insurance Nondiscrimination | Died | In the group health market genetic information may not be excluded as a preexisting condition in the absence of a diagnosis of the condition related to the genet ic information. Measure failed. |
New Jersey | 2014 State Bills New Jersey 2014 A 191 | Privacy | Died | Prohibits governmental collection of biometric identifiers without consent, including DNA. Died. |
New York | 2013 State Bills New York 2013 S4196 | Privacy | Died | This bill establishes the Medicaid identification and anti-fraud biometric technology pilot program. Biometric technologies includes, but is not limited to, DNA and other identifiers. Died. |
North Dakota | 2013 State Bills North Dakota 2013 HB 1314 | Privacy | Died | Enacts a new chapter of the statutes relating to genetic privacy. A person may not collect a DNA sample from an individual, perform a DNA analysis on a sample, retain a DNA sample or the results of a DNA analysis, or disclose the results of a DNA analysis unless the person has first obtained the informed and written consent of the individual or of the individual's legal guardian or authorized representative, for the collection, analysis, retention, or disclosure. A DNA sample and the results of a DNA analysis performed on the sample are the exclusive property of the individual sampled or analyzed. The bill provides certain exemptions. Died. |
Vermont | 2019 State Bills Vermont 2019 H370 | Privacy | Died | Proposes to identify a DNA sample and the results of a DNA analysis performed on the sample as the exclusive property of the person sampled or analyzed and to provide criminal and civil penalties for unlawful DNA collection, analysis, retention, or disclosure. Died. |
Wisconsin | 2020 State Bills Wisconsin 2020 AB 872 | Privacy | Died | Establishes requirements on controllers that process consumers' personal data, including genetic data. 4/1/2020 Failed to pass pursuant to Senate Joint Resolution 1. |
California | 2009 State Bills California 2009 SB 482 | Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Died | This bill states that all biological data derived from post-CLIA bioinformatics services shall be considered to contain genetic characteristics, as defined in section 1374.7 of the Health and Safety Code and section 10146 of the Insurance Code and is subject to the prohibitions in those sections of the statutes. Measure failed. |
Florida | 2020 State Bills Florida 2020 HB 1059 | Privacy | Died | Establishes the parent's bill of rights. Requirements set forth in the bill include parental written consent before any record of a minor child's blood or DNA is made, shared or stored unless required by law or court order. 3/14/2020 Died in Judiciary. |
Kentucky | 2020 State Bills Kentucky 2020 HB 138 | Other Topics | Died | Requires a health facility that provides perinatal care inform each patient, upon admission regarding the patient's right to to be free of discrimination on the basis of various factors, including genetic information. Died. |
Maryland | 2020 State Bills Maryland 2020 HB 1648 | Health Insurance Nondiscrimination | Died | Establishes the Healthy Maryland Program. Requires the Board to establish requirements and standards to consistent with state nondiscrimination laws, including those pertaining to genetic information. Participating providers may not refuse to provide health care services on the basis of genetic information. Died. |
Last updated: February 8, 2024