Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status Sort descending | Summary |
---|---|---|---|---|
Connecticut | 2021 State Bills California 2021 SB 6626 | Health Insurance Coverage | Died | Requires individual health insurance policies to provide coverage for diagnostic and screening mammograms under certain circumstances. Positive genetic testing for the harmful variant of breast cancer gene one, breast cancer gene two or any other gene variant that materially increases the insured's risk for breast cancer fulfills the criteria for required coverage. Died. |
Texas | 2021 State Bills Texas 2021 SB 962 | Privacy | Died | Requires an individual or the individual�s authorized representative provide express consent for a person to: (1) obtain the individual �s genetic material or genetic information; (2) perform a genetic analysis of the individual or any other analysis or test of the individual that requires the individual �s genetic material; (3) retain the individual �s genetic material or genetic information; or (4) disclose, including through sale or donation, the individual �s genetic material or genetic information. passed_senate. 5/17/2021 Referred to House Public Health Committee. Died. |
Illinois | 2019 State Bills Illinois 2019 SB 1307 | Privacy | Died | Amends the Genetic Information privacy Act provisions concerning uses and disclosures for treatment, payment, health care operations, health oversight activities, and public health activities; uses and disclosures of information to a health information exchange; business associates; and establishment and disclosure of limited data sets and de-identified information. Provides that various uses or disclosures of a patient's genetic information may not (rather than may) occur without the patient's consent. Died. |
Wisconsin | 2017 State Bills Wisconsin 2017 SB 265 | Health Insurance Nondiscrimination | Died | Amends health insurance law pertaining to pre-existing conditions. Insurers may not treat genetic information as a pre-existing condition. Provision stating "without a diagnosis of a condition related to the information" is stricken. 3/28/2018 Failed to pass pursuant to Senate Joint Resolution 1. |
Maryland | 2015 State Bills Maryland 2015 HB 552 | Other Lines of Insurance Nondiscrimination | Died | For a stop-loss insurance policy or contract issues to a small employer, a medical stop-loss insurer may not increase cost-sharing or decrease coverage for a specific individual within the plan or exclude any employee or dependent base on an actual or expected health-status related factor, including genetic information. Died. |
Maryland | 2020 State Bills Maryland 2020 SB 957 | Privacy | Died | Requires certain businesses that collect a consumer's personal information, including biometric information such as an individual's DNA, to provide certain clear and conspicuous notices to the consumer at or before the point of collection. Authorizes a consumer to submit a certain request for information to a business that collects the consumer's personal information. Requires a business to comply with a request for information within 45 days after receiving a request. Died. |
Minnesota | 2009 State Bills Minnesota 2009 SF 1653 | Health Insurance Nondiscrimination | Died | This bill adds supplemental Medicare policies to health insurance plans covered under the state genetic_discrimination Act. HF 1853, which was approved by the Governor, was substituted for this bill. |
Montana | 2015 State Bills Montana 2015 HB 45 | Other Lines of Insurance Nondiscrimination | Died | Amends existing genetic information and insurance law by removing the exclusion of life, disability and long-term care insurance. Died. |
New York | 2007 State Bills New York 2007 A4662 | Other Lines of Insurance Nondiscrimination | Died | This bill prohibits denial, cancellation or alteration of a life or disability insurance policy or group life or disability insurance policy, including renewals, on the basis of any genetic testing performed on a insured, applicant or family member of insured or applicant. Measure failed. |
New York | 2019 State Bills New York 2019 A5727 | Health Insurance Coverage | Died | Requires health insurance policies to cover comprehensive genetic screening for ovarian and prostate cancers. Died. |
California | 2021 State Bills California 2021 AB 17 | Other Topics | Died | A certified peace officer must have their certificate suspended or revoked, and an applicant must have their application for a certificate denied, upon a determination that the peace officer or applicant meets certain conditions. Requires the development of a definition of �serious misconduct," which will serve as the criteria to be considered for suspension or revocation of a certificate. This definition must include certain examples of serious misconduct such as bias in the performance of a peace officer or custodial officer�s duties, including, but not limited to, verbal statements, writings, online posts, recordings, and gestures involving prejudice or discrimination against a person on the basis of genetic information. Carries over to 2022. |
Tennessee | 2020 State Bills Tennessee 2020 SB 1841 | Privacy | Died | Prohibits a direct-to-consumer genetic testing business entity from sharing personally identifiable genetic test data or other personally identifiable information about a consumer with a third party without the express written consent of the consumer or a subpoena or court order. Died. |
Hawaii | 2018 State Bills Hawaii 2018 SB 2341 | Health Insurance Coverage | Died | Requires accident and health or sickness insurers to provide coverage for genetic counseling and testing related to the BRCA1 or BRCA2 genetic mutation, if indicated. Died. |
West Virginia | 2008 State Bills West Virginia 2008 HB 2978 | Employment Nondiscrimination, Health Insurance Nondiscrimination, Privacy, Research | Died | This bill creates the Genetic Information privacy Act. Genetic testing and genetic information derived from testing may be released only to the individual tested or people specifically given written authorization to receive the information by the individual. Accident and health insurers may not request or seek information derived from genetic testing. If the federal government or others propose guidelines, the bill authorizes the insurance commissioner to propose rules to authorize further disclosure of information derived from genetic testing for insurance purposes beyond what is permitted in the legislation. The bill requires employers to treat information derived from genetic testing in a manner consistent with federal law, including but not limited to the Americans with Disabilities Act. Exclusions under the definition of genetic testing includes research governed by the Common Rule, tests conducted purely for research, tests for somatic as opposed to heritable mutations, tests where direct personal identifiers that reveal the patients identity are encoded or encrypted and tests that are composed of de-identified or anonymized information. Penalties for violations are set forth. Measure failed. |
Maryland | 2009 State Bills Maryland 2009 HB 1 | Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Died | This bill repeals an exemption for disability insurance under the state genetic nondiscrimination law and amends the definition of genetic information used in the health_insurance_nondiscrimination law. Measure failed. |
Massachusetts | 2018 State Bills Massachusetts 2018 H.4865 | Health Insurance Coverage | Died | Requires health_insurance_coverage for certain genetically targeted drugs for Duchenne muscular dystrophy. Died. |
Mississippi | 2016 State Bills Mississippi 2016 HB 449 | Health Insurance Nondiscrimination | Died | Creates the small business health insurance pool. Health benefit plans covering small employers may not use genetic information to establish a pre-existing condition exclusion in the absence of a diagnosis of a condition related to the genetic information. 2/23/2016 (H) Died In Committee. |
New Jersey | 2018 State Bills New Jersey 2018 A2145 | Other Topics | Died | Requires testing of infants for genetic mutations associated with the development of hereditary hemochromatosis. Died. |
New York | 2015 State Bills New York 2015 A291 | Health Insurance Coverage | Died | This bill requires health insurance policies to cover comprehensive genetic screening for breast, ovarian, prostate, colon and lung cancers. Died. |
Alaska | 2016 State Bills Alaska 2016 SB 182 | Privacy | Died | Excludes DNA samples collected in the course of the person's business of determining genetic genealogy from the state genetic privacy law. Died. |
Oklahoma | 2010 State Bills Oklahoma 2010 HB 2688 | Health Insurance Coverage | Died | This bill requires individual and group health insurers that provide coverage on an expense-incurred basis to provide reimbursement not to exceed $115 for mammography screening any female under 35 with a genetic predisposition to breast cancer. Measure failed. |
Florida | Florida SB 1548 | Neonatal sequencing | Died | Children?s Medical Services Program; Deleting a requirement that the Department of Health consult with the Department of Education before prescribing certain newborn testing and screening requirement... |
Vermont | 2020 State Bills Vermont 2020 S197 | Employment Nondiscrimination, Health Insurance Nondiscrimination, Other Topics, Other Lines of Insurance Nondiscrimination | Died | Prohibits discrimination based on an individual�s genetic information in relation to employment, labor relations, insurance coverage, and the provision of social and medical services. In some areas such as employment and insurance existing genetic nondiscrimination law are amended. Died. |
Iowa | 2017 State Bills Iowa 2017 HF 31 | Use of Residual Newborn Screening Specimens | Died | Requires the Center for Congenital and Inherited Disorders to adopt rules to prohibit the retention and ensure proper disposal of residual newborn screening specimens. The Center must incinerate any residual specimens being stored before the effective date of the bill. Died. |
Maryland | 2018 State Bills Maryland 2018 SB 1002 | Health Insurance Nondiscrimination | Died | Establishing Healthy Maryland as a public corporation and a unit of State government to provide comprehensive universal health coverage for every Maryland resident. The Health Maryland Board must develop rules to promote nondiscrimination with respect to genetic information among members and providers. Died. |
Last updated: February 8, 2024