Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status Sort descending | Summary |
---|---|---|---|---|
Mississippi | 2013 State Bills Mississippi 2013 HB 311 | Employment Nondiscrimination | Died | Creates a small business health insurance pool. WIth regard to the pool, genetic information may not be excluded as a preexisting condition in the absence of a diagnosis of the condition related to the genetic information. Died. |
New Jersey | 2017 State Bills New Jersey 2017 S2909 | Employment Nondiscrimination | Died | A person may not refuse to refer a job seeker for employment or to discriminate against a job seeker in compensation or in terms, conditions or privileges of employment to which the job seeker is referred because of certain characteristics, including genetic information. Died. |
New York | 2014 State Bills New York 2014 A8472 | Health Insurance Coverage | Died | Requires health insurance policies to cover comprehensive genetic screening for breast, ovarian, prostate, colon and lung cancers, if recommended by a board-certified geneticist or board-certified genetic counselor. Died. |
Ohio | 2013 State Bills Ohio 2013 SB 88 | Health Insurance Nondiscrimination | Died | This bill creates the Ohio Health Benefit Exchange. The exchange must meet the minimum requirements of the Patient Protection and Affordable Care Act of 2010. Died. |
Vermont | 2021 State Bills Vermont 2021 H233 | Other Topics, Privacy | Died | Protects consumer privacy by requiring that a business that collects genetic data from a Vermont consumer to provide ancestry or similar information protects the data and keeps it confidential. Carries over to 2022. |
Alabama | 2016 State Bills Alabama 2016 HB 267 | Privacy | Died | Prohibits state agencies, local education agencies, or local education institutions from administering any student survey, assessment, analysis, evaluation, or similar instrument that solicits certain information about the student or the family of the student, including biometric records. Biometric records are defined to include a DNA sequence. Died. |
Delaware | 2019 State Bills Delaware 2019 SB 144 | Other Lines of Insurance Nondiscrimination | Died | Prohibits discrimination based upon genetic information in the issuance or renewal of disability, long-term care, and life insurance. Died. |
Illinois | 2020 State Bills Illinois 2020 HB 5603 | Privacy | Died | Creates the Consumer privacy Act. Personal information is defined to include biometric information such as deoxyribonucleic acid. Provides consumers rights with regard to the collection and use of personal information businesses. Died. |
Maryland | 2016 State Bills Maryland 2016 SB 153 | Privacy | Died | Requires the Motor Vehicle Administration to make available to an applicant for a driver's license, an identification card, or a moped operator's permit the opportunity to upgrade to an enhanced identification document. A person who applies for enhanced identification must provide a biometric identifier, which may include DNA. Died. |
Maryland | 2021 State Bills Maryland 2021 SB 930 | Privacy | Died | Requires certain businesses that collect a consumer's personal information to provide certain clear and conspicuous notices to the consumer at or before the point of collection. The bill defines biometric information to include an individual's DNA. In the Senate - First Reading Senate Rules. Died. |
Minnesota | 2017 State Bills Minnesota 2017 SF 781 | Health Insurance Nondiscrimination | Died | Establishes the MinnesotaCare program. A managed care organization that contracts with the Commissioner as part of the program may not discriminate or use any policy that has the effect of discriminating against people on the basis of genetic information. Died. |
Nevada | 2009 State Bills Nevada 2009 SB 388 | Health Insurance Nondiscrimination | Died | This bill requires health insurers to comply with the Genetic Information Nondiscrimination Act. Measure failed. |
New York | 2009 State Bills New York 2009 S3731 | Employment Nondiscrimination, Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Died | This bill creates the genetics advisory council. The council, if created, will study and make recommendations on various issues, including unfair discrimination by insurers and employers. Measure failed. |
New York | 2019 State Bills New York 2019 S4768 | Health Insurance Coverage | Died | Requires health insurance policies to cover comprehensive genetic screening for ovarian and prostate cancers. Died. |
Texas | 2015 State Bills Texas 2015 SB 475 | Privacy | Died | Establishes a personal property right to DNA samples. A person may not, without the informed, written consent of the individual or the individual's legal guardian or authorized representative: (1) collect a DNA sample from an individual; (2) perform a genetic test on an individual's DNA sample; or (3) retain an individual's DNA sample, with certain exceptions. Died. |
West Virginia | 2021 State Bills West Virginia 2021 HB 2663 | Health Insurance Coverage | Died | Requires health_insurance_coverage of a comprehensive ultrasound screening if a mammogram demonstrates heterogeneous or dense breast tissue if a woman is believed to be at increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing, or other indications as determined by a woman�s physician or advanced practice nurse. To House Banking and Insurance 02/23/21. Died. |
California | 2020 State Bills California 2020 AB 2640 | Health Insurance Coverage | Died | Prohibits an individual or group health care service plan contract or health insurance policy issued, amended, delivered, or renewed on or after January 1, 2021, from requiring prior authorization for genetic biomarker testing for an enrollee or insured with metastatic or advanced stage 3 or 4 cancer. Died. |
Hawaii | 2012 State Bills Hawaii 2012 HB 1810 | Health Insurance Nondiscrimination | Died | This bill requires health benefit plans to include lower deductibles and co-payments for non-tobacco smokers and others at low risk. Genetic factors and pre-existing conditions may not be considered a behavior. Measure failed. |
Maine | 2017 State Bills Maine 2017 LD 1340 | Employment Nondiscrimination, Other Topics, Privacy | Died | No member, officer, employee or agent of a municipal housing authority may knowingly divulge or disclose personnel information declared confidential with some specified exceptions. Personal information, including genetic information, is considered confidential. Died. |
Massachusetts | 2019 State Bills Massachusetts 2019 S.98 | Privacy | Died | Amends data security protections to include biometric information, which is defined to include genetic information. 2/13/2020 In senate. Accompanied a study order. Died. |
Mississippi | 2019 State Bills Mississippi 2019 HB 1253 | Privacy | Died | Enacts the Consumer privacy Act. Provides certain rights to consumers such as the right to know the categories and specific pieces of personal information collected and the right to require a business to delete personal information. Personal information is defined to include biometric information such as DNA sequences. 02/05 (H) Died In Committee |
New Jersey | 2020 State Bills New Jersey 2020 A2216 | Other Topics | Died | Prohibits discrimination in health programs or activities based on certain factors, including genetic information. Died. |
New York | 2017 State Bills New York 2017 A1807 | Health Insurance Coverage | Died | Requires health insurance policies to cover comprehensive genetic screening for breast, ovarian, prostate, colon and lung cancers. Died. |
Oklahoma | 2020 State Bills Oklahoma 2020 HB 2867 | Employment Nondiscrimination | Died | Prohibits discrimination in the selection of job applications, interviewing of job applicants, hiring of job applicants, firing of employees, treatment of employees, or payment of wages on the basis of genetic information. Died. |
Virginia | 2015 State Bills Virginia 2015 HB 1669 | Privacy | Died | This bill regulates the collection and maintenance of personally identifiable information, including DNA, by education agencies. Died. |
Michigan | 2016 State Bills Michigan 2016 HB 5769 | Privacy | Died | Amends the state genetic privacy law. Changes in introduced version of bill only involve unsubstantial changes in wording of text. Died. |
Missouri | 2017 State Bills Missouri 2017 HB 201 | Privacy | Died | Prohibits school districts from collecting biometric information on any student without the express written consent of the student�s parent or legal guardian. Biometric information is defined to include a DNA sequence and newborn screening information. Died. |
New Jersey | 2021 State Bills New Jersey 2021 A6080 | Privacy | Died | Prohibits a teaching staff member employed by a board of education from inputting the individually identifiable health information of a student or members of a student�s family, or conversations concerning such information, into a third party software application managed by an entity that engages in partisan political activity. The bill defines individually identifiable health information as any information, including genetic or vaccination information, relating to the past, present, or future physical or mental health or condition of an individual that either identifies the individual or could reasonably be used to identify the individual. Died. |
New York | 2018 State Bills New York 2018 A9780 | Privacy | Died | Enacts the Personal Information Protection Act. Establishes a personal information bill of rights requiring parties having custody of residents' personal identifying information to ensure the security of this information. Personal information includes DNA samples. Died. |
South Carolina | 2012 State Bills South Carolina 2012 SB 1266 | Health Insurance Coverage | Died | Existing law requires individual and group health insurers to cover mammograms. This bill requires that Coverage for mammograms required in subsection (A)(1) must include benefits for comprehensive ultrasound screening of an entire breast or breasts if a mammogram demonstrates heterogeneous or dense breast tissue based on: (a) the Breast Imaging Reporting and Data System established by the American College of Radiology; or (b) if a woman is believed to be at increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing or other indications as determined by a woman's physician or advanced practice registered nurse. Died. |
Washington | 2019 State Bills Washington 2019 HB 1990 | Other Topics | Died | Restricts genome editing of human embryos. Died. |
Arizona | 2017 State Bills Arizona 2017 SB 1373 | Privacy | Died | Prohibits schools and school service providers from collecting or possessing biometric information of elementary or secondary school students unless the school service provider: (1) develops a written policy for the collection, retention, disclosure and destruction of biometric information; and (2) obtains a written release to collect biometric information. Sets forth protections for biometric information, if collected. Biometric information is defined as information derived from any biometric identifier used to identify an individual. Died. |
Florida | 2018 State Bills Florida 2018 HB 855 | Other Lines of Insurance Nondiscrimination | Died | Prohibits life insurers and long-term care insurers, except under certain circumstances, from canceling, limiting, or denying coverage, or establishing differentials in premium rates, based on genetic information. 3/10/2018 Died in Banking and Insurance. |
Iowa | 2019 State Bills Iowa 2019 SSB 1071 | Privacy | Died | This bill modifies a provision related to personal information in the event of a security breach of computerized data. The definition of personal information is amended to include a deoxyribonucleic acid profile. Died. |
Maryland | 2019 State Bills Maryland 2019 HB 57 | Employment Nondiscrimination | Died | Requires managers and supervisors in the Legislative and Executive branches of State government to immediately report certain incidents of workplace bullying, including bullying based on genetic information. 3/5/2019 Unfavorable Report by House Rules and Executive Nominations; Withdrawn. |
Massachusetts | 2017 State Bills Massachusetts 2017 H.2176 | Health Insurance Coverage | Died | Requires health_insurance_coverage of screening breast ultrasounds and breast MRI, in addition to mammograms, if the patient is at increased risk of cancer based on certain factors such as positive genetic testing. 7/18/2018 Accompanied a study order, see H4778. |
Mississippi | 2007 State Bills Mississippi 2007 HB 233 | Health Insurance Nondiscrimination | Died | This bill creates the Genetic Information Nondiscrimination in Health Insurance Act, which prohibits health benefits plans from denying, refusing or canceling health insurance benefits or coverage on the basis of genetic information or a request or receipt of genetic services. The bill also prohibits health benefit plan insurers from requesting or requiring a genetic test and from disclosing genetic information without prior written authorization. Penalties for violations are set forth. Measure failed. |
New Hampshire | 2021 State Bills New Hampshire 2021 HB 601 | Privacy | Died | When an individual consents to receive assistance from a health or social service agency in the state, the consent given to the initial health or social service agency to use the individual's personal information may not be transferred to or retained by any other health or social service agency, network, or entity. No health or social service agency in the state may require a individual's consent to share personal information with another health or social service agency in the state or another state as a prerequisite for such individual to receive services from such health or social service agency, including consent to share details regarding which health or social service agency the individual has received help from in the past and associated information related to that interaction. A health or social service agency must explicitly and in writing inform any individual seeking such assistance that lack of consent will not affect the individual's ability to receive health or social services from the agency and that the individual will not be otherwise penalized. Personal information is defined to include DNA. Hearing on 2/08/2021. Carries over to 2022. |
New York | 2013 State Bills New York 2013 A2931 | Research | Died | This bill regulates the use of human subjects for medical research and experimentation, including subjects with mental disorders and children. The bill addresses exclusion or inclusion of subjects to participate in human research based on race, ethnicity or sex; requires reporting certain information relating to the collection of data, and provides that no greater than minimal risk non-therapeutic human research may be conducted on a child without consent of a parent or guardian. Died. |
North Carolina | 2017 State Bills North Carolina 2017 HB 906 | Employment Nondiscrimination, Health Insurance Nondiscrimination, Other Topics, Other Lines of Insurance Nondiscrimination | Died | Prohibits discriminatory housing practices based on protected status, which includes genetic information. Declares that it is the public policy of the State to protect and safeguard the right and opportunity of all individuals to seek, obtain and hold employment without discrimination or abridgement on account of certain characteristics, including genetic information. Also prohibits insurers from refusing to insure or refusing to continue to insure an individual, limit the amount, extent, or kind of coverage available to an individual, or charge an individual a different rate for the same coverage, based on genetic information. School boards also must adopt a policy to establish that the local board of education and school personnel employed by the local board may not discriminate based on genetic information. Charter and nonpublic schools may not discriminate based on genetic information. Died. |
Texas | 2021 State Bills Texas 2021 SB 1952 | Privacy | Died | Relates to the capture and use of an individual's biometric identifiers, specimen, or genetic information by a governmental body or peace officer or by a person for commercial purposes. Died. |
Wisconsin | 2017 State Bills Wisconsin 2017 SB 140 | Employment Nondiscrimination | Died | Addresses actions in circuit court alleging discrimination in employment, unfair honesty testing, or unfair genetic testing. 3/28/2018 Failed to pass pursuant to Senate Joint Resolution 1. |
Colorado | 2013 State Bills Colorado 2013 HB 1309 | Health Insurance Coverage | Died | Amends existing coverage requirements for breast cancer screening with mammography for individuals with a genetic predispoition to breast cancer. Requires all sickness and accident insurance policies to provide coverage for breast imaging for all individuals possessing at least one risk factor for breast cancer, including a family history of breast cancer, being 40 years of age or older, or a genetic predisposition to breast cancer. Died. |
Hawaii | 2020 State Bills Hawaii 2020 HB 2676 | Health Insurance Coverage | Died | Requires individual policies of accident and health or sickness insurance to provide coverage for genetic counseling and testing related to the BRCAl or BRCA2 genetic mutation, if indicated. Died. |
Maryland | 2009 State Bills Maryland 2009 HB 2 | Other Lines of Insurance Nondiscrimination | Died | This bill prohibits an insurer from requesting or requiring a genetic test or from using a genetic test, the results of a genetic test, genetic information, or a request for genetic services to deny or limit life insurance coverage or benefits or to charge a different rate for the same coverage or benefits under an annuity contract; defining terms; and providing for an exception if the use is based on sound actuarial principles. Measure failed. |
Connecticut | 2019 State Bills Connecticut 2019 HB 7262 | Other Lines of Insurance Nondiscrimination | Died | Prohibits life insurance companies from requiring genetic testing or using genetic information in connection with life insurance policies and annuity contracts. Died. |
Illinois | 2012 State Bills Illinois 2012 HB 6248 | Health Insurance Coverage | Died | The Department of Healthcare and Family Services must authorize the provision of, and payment for, a baseline mammograms for women 35-39 and mammograms at certain intervals for women over 40. Women under 40 with risk factors such as positive genetic testing should receive mammograms as medical necessary. Measure failed. |
Maryland | 2013 State Bills Maryland 2013 SB 859 | Privacy | Died | Requires certain businesses, when destroying a customers records that contain personal or private information of the customer, to take specific steps to protect against unauthorized access to or use of the information. Personal information is defined to include an individual's genetic print. Died. |
Maryland | 2020 State Bills Maryland 2020 SB 875 | Other Topics | Died | Prohibits a hospital from withholding financial assistance or from denying a patient's application for financial assistance based on genetic information. Died. |
Minnesota | 2009 State Bills Minnesota 2009 HF 902 | Privacy, Research | Died | This bill creates personal property rights human biological specimens, defined as tissues, organs and body parts from which DNA may be isolated and requires written informed consent for the use of biological specimens in medical or genetic research. Consent forms must provide at least three options, including consent for a specific research project, consent for future research projects that are yet undefined, or consent for future research projects that are yet undefined, contingent on the research entity returning to seek specific written informed consent if the project is or could be considered controversial. The bill allows limited use of biological specimens for the calibration of laboratory equipment. Measure failed. |
Last updated: February 8, 2024