Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State Sort descending | Primary Link | Topic(s) | Bill Status | Summary |
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Maryland | 2014 State Bills Maryland 2014 HB 851 | Other Topics, Privacy | Died | Permits a health insurance carrier to make available upon request an upgrade to a biometric health care identification card that can securely validate one's identity and access his or her medical history. Biometric identification is defined to include DNA. Died. |
Maryland | State StatuteMaryland: Md. Health Code 13-2001 et seq. | Research | Statute | The law prohibits research using a human subject unless the person conducts the research in accordance with the federal regulations on the protection of human subjects. |
Maryland | 2017 State Bills Maryland 2017 HB 808 | Research | Died | Requiring hospital administrators to provide patients with a specified patient's bill of rights. The bill of rights addresses patient participation in research. Died. |
Maryland | 2017 State Bills Maryland 2017 HB 974 | Privacy | Enacted | Amends the Maryland Personal Information Protection Act. Requires a business to inform an employee or a former employee in the event of a breach of a security system that contains personal information, including a genetic print. A business subject to HIPAA is considered to be in compliance with the law. 5/4/2017 Approved by the Governor. Chapter 518. Effective January 1, 2018. |
Maryland | 2019 State Bills Maryland 2019 HB 901 | Privacy | Died | Enacts the Online Consumer Protection Act. Defines biometric information to include an individual's DNA. Died. |
Maryland | 2009 State Bills Maryland 2009 SB 54 | Privacy | Died | This bill restricts access to, use of and retention of DNA samples and disclosure of DNA test results without consent with some exemptions. The bill also provides personal property rights to DNA samples and DNA test results and requires the health department to develop a uniform written informed consent form. Penalties are set forth for violations. Measure failed. |
Maryland | 2020 State Bills Maryland 2020 HB 340 | Privacy | Died | Amends the definition of biometric information under the Maryland Data privacy act. The definition of biometric information referring to a genetic print is stricken. The revised definition of biometric information includes physiological, biological, or behavioral characteristics, including an individual's DNA, that can be used singly, in combination with each other, or with other identifying data to establish individual identity. Died. |
Maryland | 2020 State Bills Maryland 2020 SB 957 | Privacy | Died | Requires certain businesses that collect a consumer's personal information, including biometric information such as an individual's DNA, to provide certain clear and conspicuous notices to the consumer at or before the point of collection. Authorizes a consumer to submit a certain request for information to a business that collects the consumer's personal information. Requires a business to comply with a request for information within 45 days after receiving a request. Died. |
Maryland | 2014 State Bills Maryland 2014 HB 906 | Other Topics | Died | Authorizes a person to advertise for, solicit business in the State for, offer, or perform direct to consumer genetic testing only if certain conditions are met. Died. |
Maryland | State StatuteMaryland: Md. Health 17�215 | Other Topics | Statute | A person who directly or indirectly advertises or solicits business for diagnostic laboratory tests or procedures is a covered entity under HIPAA and must make certain disclosures. The law does not apply to germline genetic or genomic testing for the analysis, diagnosis or prediction of human disease. |
Maryland | 2017 State Bills Maryland 2017 SB 525 | Privacy | Died | Requires a business, when destroying an employee's or a former employee's records that contain personal information, including a genetic print, to take steps to protect against unauthorized access to or use of the information. States when a business that owns, licenses, or maintains computerized data containing personal information must investigate a security breach. Died. |
Maryland | 2019 State Bills Maryland 2019 HB 697 | Health Insurance Coverage | Enacted | The provision in the original version of the bill pertaining to the use of genetic information by carriers was amended. The enacted legislation establishes a workgroup on maintaining the protections established by the Affordable Care Act. May 13, 2019 Approved by the Governor - Chapter 418. Effective June 1, 2019. |
Maryland | 2019 State Bills Maryland 2019 SB 556 | Employment Nondiscrimination | Died | Requires managers and supervisors in the Legislative and Executive branches of State government to immediately report certain incidents of workplace bullying, including bullying based on genetic information. 3/11/2019 Unfavorable Report by Finance; Withdrawn. |
Maryland | 2009 State Bills Maryland 2009 SB 57 | Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Died | This bill provides an individual with a right to civil if the state genetic nondiscrimination insurance statutes are violated. Measure failed. |
Maryland | 2020 State Bills Maryland 2020 HB 784 | Privacy | Died | Requires certain businesses that collect a consumer's personal information, including biometric information such as an individual's DNA, to provide certain clear and conspicuous notices to the consumer at or before the point of collection. Authorizes a consumer to submit a certain request for information to a business that collects the consumer's personal information. Requires a business to comply with a request for information within 45 days after receiving a request. Died. |
Maryland | 2021 State Bills Maryland 2021 HB 1256 | Other Topics | Died | Requires the Maryland Department of Health to do the following: (1) by January 1, 2023, develop gene sequence and customer screening guidelines for gene synthesis providers and manufacturers of gene synthesis equipment that include certain requirements; (2) develop a process to certify that gene synthesis providers and manufacturers of gene synthesis equipment are in compliance with the guidelines requiring, on or after January 1, 2024, the Department to certify certain gene synthesis providers and equipment manufacturers. Gene synthesis provider does not include a research scientist making gene synthesis products for the research scientist's own use or for use by another research scientist. In the House - Withdrawn by Sponsor. Died. |
Maryland | 2014 State Bills Maryland 2014 SB 227 | Other Topics | Died | Repeals a prohibition on advertising for or soliciting business related to direct to consumer genetic testing in the State. Died. |
Maryland | State StatuteMaryland: Md. Health 19-214.1 | Other Topics | Statute | Prohibits a hospital from withholding financial assistance or from denying a patient's application for financial assistance based on genetic information. |
Maryland | 2017 State Bills Maryland 2017 SB 660 | Research | Died | Requiring hospital administrators to provide patients with a specified patient's bill of rights. The bill of rights addresses patient participation in research. Died. |
Maryland | 2019 State Bills Maryland 2019 SB 495 | Other Topics | Enacted | A person who directly or indirectly advertises or solicits business for diagnostic laboratory tests or procedures is a covered entity under HIPAA and must make certain disclosures. The law does not apply to germline genetic or genomic testing for the analysis, diagnosis or prediction of human disease. May 13, 2019 Approved by the Governor - Chapter 413. Effective October 1, 2019. |
Maryland | 2019 State Bills Maryland 2019 SB 613 | Privacy | Died | Enacts the Online Consumer Protection Act. Defines biometric information to include an individual's DNA. Died. |
Maryland | 2010 State Bills Maryland 2010 HB 1351 | Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Died | This bill amends provisions of law that relate to the use of genetic tests and genetic information by an insurer, nonprofit health service plan, or health maintenance organization. The bill also amends provisions related to the use of genetic information in disability insurance, longterm care insurance, or life insurance. Measure failed. |
Massachusetts | 2019 State Bills Massachusetts 2019 H.1344 | Other Topics | Died | Prohibits local or state administrative, legislative or regulatory body or instrumentality to from engaging in a discriminatory land use practice, including practices based on genetic information. Accompanied a study order, see H5081. Died. |
Massachusetts | State StatuteMassachusetts: MGL 175 108I and 120 E | Other Lines of Insurance Nondiscrimination | Statute | An insurer, agent or broker authorized to issue life insurance policies, policies against disability from injury or disease or policies for long-term care may not practice unfair discrimination because of the results of a genetic test or the provision of genetic information or require an applicant to undergo a genetic test as a condition of issuance or renewal of a policy. Unfair discrimination involves discriminatory practices against persons unless such action is based on reliable information relating to the insureds mortality or morbidity and based on sound actuarial principles or actual or reasonably anticipated claim experience. These insurers may ask if an applicant has taken a genetic test. |
Massachusetts | 2020 State Bills Massachusetts 2020 S.2564 | Other Topics | Died | Requires that certain state entities make a dedicated effort to encourage diversity and advance equity based on race, color, religious creed, national origin, sex, gender identity, sexual orientation, genetic information, ancestry, disability, and language in any recommendations, policies, programs and initiatives developed. 1/5/2021 In Senate. No further action taken. Died. |
Massachusetts | 2013 State Bills Massachusetts 2013 H.974 | Health Insurance Coverage | Died | Individual or group policies of accident and sickness insurance, except policies providing supplemental coverage to Medicare or to other government programs, delivered, issued or renewed by agreement within or without the commonwealth must provide coverage for breast cancer screening technology, including, but not limited to, Magnetic Resonance Imaging (MRI) for high risk women. Coverage must be provided not less than once annually to women 25 years and older. High risk women, include, but are not limited to women who test positive for BRCA 1 or 2 or who have one or more first degree relatives that have tested positive for BRCA 1 or 2. Reporting date extended to Thursday July 31, 2014, pending concurrence. Died. |
Massachusetts | 2021 State Bills Massachusetts 2021 H.4029 | Privacy | Pending | Establishes requirements for specified persons, partnerships or corporations that maintain high-risk information systems. A high-risk information system involves the personal information of a significant numbers of consumers regarding various characteristics, including genetic data. Carries over to 2022. |
Massachusetts | 2017 State Bills Massachusetts 2017 H.3969 | Health Insurance Coverage | Died | Requires coverage for the diagnosis of Alfi's Syndrome, including genetic testing. 7/18/2018 Accompanied a study order, see H4778. |
Massachusetts | 2019 State Bills Massachusetts 2019 H.180 | Other Topics | Died | Pertains to municipal master plans. Master plans developed should take into account to the extent feasible ways in which future policies and programs can advance equity based on various factors such as genetic information. Died. |
Massachusetts | State StatuteMassachusetts: MGL 176M 1 and 176J 1 | Health Insurance Nondiscrimination | Statute | Genetic information may not be treated as a pre-existing condition in the absence of a diagnosis under the definitions for chapter 176M on nongroup health plans and 176J on small group health insurance. |
Massachusetts | 2020 State Bills Massachusetts 2020 S.2800 | Privacy | Died | Prohibits an agency, executive office, department, board, commission, bureau, division or authority of the commonwealth or a political subdivision thereof, or any agent, contractor or subcontractor thereof, from acquiring, possessing, accessing or using any biometric surveillance system or any information derived from a biometric surveillance system operated by another entity. Allows certain exceptions such as the use of facial recognition technology by the registrar or motor vehicles. Biometric data is defined to include deoxyribonucleic acid. 7/14/20 Passed to be engrossed. Reprinted as amended, see S2820. Died. |
Massachusetts | 2014 State Bills Massachusetts 2014 S.2294 | Research | Died | This bill states that any public health surveillance activity which is also research is subject to the requirements for research using human subjects. Died. |
Massachusetts | 2021 State Bills Massachusetts 2021 S. 2102 | Employment Nondiscrimination | Pending | Requires the commission on workplace harassment and sexual assault in the legislature to research and develop model workplace harassment policies for consideration and use by the Senate and House of Representatives. The model policies must address identity-based harassment, including harassment based on genetic information. Carries over to 2022. |
Massachusetts | 2017 State Bills Massachusetts 2017 S.1120 | Other Topics | Died | Prohibits local or state administrative, legislative or regulatory body or instrumentality from engaging in discriminatory land use practices based on a variety of factors, including genetic information. Died. |
Massachusetts | 2019 State Bills Massachusetts 2019 H.287 | Privacy | Died | Amends data security protections to include biometric information, which is defined to include genetic information. 10/26/2020 Accompanied a study order, see H5043. Died. |
Massachusetts | Massachusetts HD 1 | Neonatal sequencing | Introduced | An Act making appropriations for the Fiscal Year 2024 for the maintenance of the departments, boards, commissions, institutions, and certain activities of the Commonwealth, for interest, sinking fund... |
Massachusetts | State StatuteMassachusetts: MGL 32A 25, 175 47AA, 176A 8DD, 176B 4DD, 176G 4V | Health Insurance Coverage | Statute | Individual accident and sickness policies, individual and group hospital service plans, the group insurance commissionplan for active and retired employees, and individual or group medical service agreement and health maintenance contract must provide benefits on a nondiscriminatory basis for diagnosis and treatment of autism. Diagnosis of autism spectrum disorders is defined to include genetic testing. |
Massachusetts | 2020 State Bills Massachusetts 2020 S.2820 | Privacy | Died | Prohibits an agency, executive office, department, board, commission, bureau, division or authority of the commonwealth or a political subdivision thereof, or any agent, contractor or subcontractor thereof, from acquiring, possessing, accessing or using any biometric surveillance system or any information derived from a biometric surveillance system operated by another entity. Allows certain exceptions such as the use of facial recognition technology by the registrar or motor vehicles. Biometric data is defined to include deoxyribonucleic acid. 11/30/2020 Reported out of Senate Conference Committee. See S2963 for report. Died. |
Massachusetts | 2015 State Bills Massachusetts 2015 H.1900 | Privacy | Died | Ensures patient privacy and control in health information exchanges by protecting health care information, including genetic information. 5/5/2016 Accompanied a study order, see H4242. |
Massachusetts | 2021 State Bills Massachusetts 2021 S. 46 | Privacy | Pending | Establishes privacy protections for the collection, use, retention and disclosure of biometric information by businesses in the state of Massachusetts. Biometric information is defined to include. Carries over to 2022. |
Massachusetts | 2017 State Bills Massachusetts 2017 S.554 | Health Insurance Coverage | Died | Requires health_insurance_coverage of screening breast ultrasounds and breast MRI, in addition to mammograms, if the patient is at increased risk of cancer based on certain factors such as positive genetic testing. 4/30/2018 In Senate. Accompanied a study order, see S2496. |
Massachusetts | 2019 State Bills Massachusetts 2019 S.120 | Privacy | Died | Establish protections for the privacy of personal information pertaining to consumers, including biometric information such as DNA. 2/13/2020 In Senate. Accompanied a study order see S2534. Died. |
Massachusetts | Massachusetts HB 181 | Neonatal sequencing | Introduced | An Act relative to early intervention services for children with prenatal exposure to opioids. |
Massachusetts | State StatuteMassachusetts: MGL Public Health 111 70G | Other Lines of Insurance Nondiscrimination, Privacy, Research | Statute | Genetic information contained in reports or records held by hospitals, laboratories, physicians, insurance institutions and others named in the statute may not be divulged without informed written consent with some exceptions, which include in connection with life, disability, and long term care insurance, as allowable, or as confidential research information for use in epidemiological or clinical research conducted for the purpose of generating scientific knowledge about genes or learning about the genetic basis of disease or for developing pharmaceutical and other treatments of disease. Additional provisions concerning the performance of genetic tests apply to laboratories and other facilities. Organizations conducting pharmoco-economic studies in systematic research to determine the cost benefits of specific treatment for genetic based disease are exempt from the need to re-obtain informed consent. A person whose rights have been violated may bring a civil action. |
Massachusetts | 2015 State Bills Massachusetts 2015 H.225 | Privacy | Died | The bill amends statute sections pertaining to the department of consumer affairs and business regulations relative to any person that owns or licenses personal information about a resident of the commonwealth. Changes add biometric information, including genetic information, to the types of personal information protected under the law. Died. |
Massachusetts | 2021 State Bills Massachusetts 2021 S. 50 | Privacy | Pending | Amends statute to protect personal information under the security breach law. Adds genetic information to the scope of information covered under the law. Referred to the Senate committee on Advanced Information Technology, the Internet and Cybersecurity. Carries over to 2022. |
Massachusetts | 2017 State Bills Massachusetts 2017 S.81 | Other Topics | Died | Prohibits local or state administrative, legislative or regulatory body or instrumentality from engaging in discriminatory land use practices based on a variety of factors, including genetic information. 4/11/2018 Accompanied a new draft, see H4397. |
Massachusetts | 2019 State Bills Massachusetts 2019 S.616 | Health Insurance Coverage | Died | Requires insurance coverage for mammograms and breast cancer screening if the patient has additional risk factors for breast cancer such as family history and positive genetic testing. Died. |
Massachusetts | Massachusetts HD 777 | Neonatal sequencing | Introduced | An Act relative to early intervention services for children with prenatal exposure to opioids. |
Massachusetts | 2015 State Bills Massachusetts 2015 H.938 | Health Insurance Coverage | Died | Requires insurance coverage for magnetic resonance imaging for certain persons for the detection of breast cancer, including women who have tested positive for Breast Cancer Gene 1 or Breast Cancer Gene 2 mutations or one or more first degree relatives test positive for Breast Cancer Gene 1 or Breast Cancer Gene 2 mutations. 3/28/2016 Accompanied a study order, see H4111. |
Last updated: February 8, 2024