The NHGRI Community Engagement in Genomics Working Group aims to engage communities to ensure that genomics and genomic medicine benefit all.
The NHGRI Community Engagement in Genomics Working Group (CEGWG) was established in 2017 as a working group of the National Advisory Council for Human Genome Research. The goals of the working group are to facilitate NHGRI's understanding of community perspectives and needs about genomics, engage and educate diverse communities about genomics, and inform the leadership of NHGRI of issues relevant to its portfolio of genomics research and related programs.
The working group is composed of community liaisons and health advocates representing diverse populations, who:
- Assess the gaps and needs of diverse communities related to genomics and genomic medicine.
- Develop programs and disseminating tools and resources to address identified gaps and needs.
- Provide input about NHGRI activities, particularly about their ability to reach all communities and to increase genomic literacy.
- Work in partnership with NHGRI to build relationships and trust with communities and to increase understanding of diverse communal views and priorities relevant to genomics.
- Identify potential areas of synergy or collaboration among communities, NHGRI, other National Institutes of Health institutes or centers and national and international organizations.
Last updated: January 10, 2020