Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status Sort descending | Summary |
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Maine | State StatuteMaine: MRS 22 1711C | Privacy, Research | Statute | An individual's health care information, including information about individual cells or their components or genetic information, is confidential. Authorization is required to disclose this information other than to the individual by the health care practitioner or facility with some exceptions. The definition of health care information excludes information that protects the anonymity of the individual by means of encryption or encoding of individual identifiers or information pertaining to or derived from federally sponsored, authorized or regulated research governed by 21 Code of Federal Regulations, Parts 50 and 56 and 45 Code of Federal Regulations, Part 46, to the extent that such information is used in a manner that protects the identification of individuals. |
New Hampshire | State StatuteNew Hampshire: NHS 141-H:1, 141-H:2, and 141:H-6 | Privacy | Statute | No individual or his/her family member may be required to undergo genetic testing as a condition of doing business with another person. Genetic testing may not be performed on any individual or anywhere on any resident of the state based on bodily materials obtained within the state without prior written and informed consent with some exceptions. Additional provisions address disclosure of results. The statutes establish a right to civil action by aggrieved individuals. |
Maryland | State StatuteMaryland: Md. Health 19-214.1 | Other Topics | Statute | Prohibits a hospital from withholding financial assistance or from denying a patient's application for financial assistance based on genetic information. |
New Mexico | State StatuteNew Mexico: NMSA 52-3-32.1 | Other Topics | Statute | If a firefighter is diagnosed with breast cancer after five years of employment, and if it is diagnosed before the age of forty without a breast cancer 1 or breast cancer 2 genetic predisposition to breast cancer, the disease is presumed to be proximately caused by employment as a firefighter. |
Washington | State StatuteWashington: RCW 49.44.180 | Employment Nondiscrimination | Statute | A person, firm, corporation, or the state of Washington, its political subdivisions, or municipal corporations may not require any employee or prospective employee to submit genetic information or submit to screening for genetic information as a condition of employment or continued employment. |
Connecticut | State StatuteConnecticut CGA 19a 53 | Use of Residual Newborn Screening Specimens | Statute | The Health Commissioner must review and approve research proposals to be conducted using personally identifiable information in the newborn screening system or requiring contact with affected individuals. |
Missouri | State StatuteMissouri: MRS 375.1300 and 375.1306.1 | Employment Nondiscrimination | Statute | An employer may not use genetic information or genetic test results of an employee or prospective employee to distinguish between, discriminate against, or restrict any right or benefit otherwise due or available to such employee or prospective employee. Exceptions are provided for the underwriting of group life, disability income and long-term care insurance, actions required by law or regulation, action taken with written permission of an employee or prospective employee, and the use of genetic information when it is directly related to job performance and assigned responsibilities. |
South Carolina | State StatuteSouth Carolina: SCCL 38-41-45, 38-71-670, 38-71-840, 38-71-860 and… | Health Insurance Nondiscrimination | Statute | Group health insurers may not establish rules for eligibility or continued eligibility based on a health status-related factor, including genetic information or impose a pre-existing condition exclusion based on genetic information. The sections of the statutes pertaining to Individual health insurance and multiple employer self-insured health plans define health status-related factor to include genetic information. Genetic information may not be treated as a pre-existing condition in the absence of a diagnosis within the South Carolina health insurance pool. |
Arizona | State StatuteArizona: ARS 20-448.02 | Privacy | Statute | A person may not order or require the performance of a genetic test without written informed consent. Genetic test results may not be disclosed without the express consent of the subject of the test or the person authorized to consent for that person. |
Illinois | State StatuteIllinois: 215 ILCS 97/20 and 97/25 | Health Insurance Nondiscrimination | Statute | A group health plan and a health insurance issuer offering group health_insurance_coverage may not impose a pre-existing condition exclusion based on genetic information in the absence of a diagnosis or establish rules for eligibility or continued eligibility based on a health status-related factor, including genetic information. |
Last updated: February 8, 2024