Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State Sort ascending | Primary Link | Topic(s) | Bill Status | Summary |
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New York | 2013 State Bills New York 2013 A1153 | Employment Nondiscrimination, Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Died | This bill establishes a genetics advisory council to study various topics, including the use of any genetic test by insurers, employers or educational institutions, including the potential for compromising the individual liberties and civil rights of individuals or causing individuals to suffer unfair discrimination. Died. |
New York | State StatuteNew York: NYCL (EXC) law 292 and 296 | Employment Nondiscrimination | Statute | An employer or labor organization may not discriminate against employees, applicants or members based on a predisposing genetic characteristic. An employer or employment agency may not print or circulate materials or use a form of application that discriminate based on a predisposing genetic characteristic. Additional provisions apply to employers, labor organizations, employment agencies, and licensing agencies. A genetic test may be required as a condition of employment if directly related to possible increased risk of disease in the work environment or, with informed consent, for workers compensation and to determine susceptibility to toxins found in the workplace environment. |
New York | 2014 State Bills New York 2014 A8472 | Health Insurance Coverage | Died | Requires health insurance policies to cover comprehensive genetic screening for breast, ovarian, prostate, colon and lung cancers, if recommended by a board-certified geneticist or board-certified genetic counselor. Died. |
New York | 2007 State Bills New York 2007 A288 | Other Lines of Insurance Nondiscrimination | Died | This bill prohibits denial, cancellation or alteration of a life or disability insurance policy or group life or disability insurance policy, including renewals, on the basis of any genetic testing performed on a insured, applicant or family member of insured or applicant. Measure failed. |
New York | 2019 State Bills New York 2019 A465 | Privacy | Died | Establishes a personal information bill of rights requiring parties having custody of residents' personal identifying information to ensure the security the information. Personal information is defined to include biometric information such as DNA. Died. |
New York | 2017 State Bills New York 2017 A1807 | Health Insurance Coverage | Died | Requires health insurance policies to cover comprehensive genetic screening for breast, ovarian, prostate, colon and lung cancers. Died. |
New York | 2021 State Bills New York 2021 A3709 | Privacy | Pending | Grants a consumer a right to request a business to disclose the categories and specific pieces of personal information such as biometric information that it collects about the consumer, the categories of sources from which that information is collected, the business purposes for collecting or selling the information, and the categories of third parties with which the information is shared. Biometric information is defined to include an individual's deoxyribonucleic acid. Carries over to 2022. |
New York | 2009 State Bills New York 2009 S3731 | Employment Nondiscrimination, Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Died | This bill creates the genetics advisory council. The council, if created, will study and make recommendations on various issues, including unfair discrimination by insurers and employers. Measure failed. |
New York | 2019 State Bills New York 2019 S4768 | Health Insurance Coverage | Died | Requires health insurance policies to cover comprehensive genetic screening for ovarian and prostate cancers. Died. |
New York | 2019 State Bills New York 2019 S6448 | Research | Enacted | Amends the public health law, in relation to authorizing human research in compliance with federal law. 9/13/2019 Signed by the Governor. |
New York | 2018 State Bills New York 2018 A9780 | Privacy | Died | Enacts the Personal Information Protection Act. Establishes a personal information bill of rights requiring parties having custody of residents' personal identifying information to ensure the security of this information. Personal information includes DNA samples. Died. |
New York | 2021 State Bills New York 2021 S567 | Privacy | Pending | Grants a consumer a right to request a business to disclose the categories and specific pieces of personal information such as biometric information that it collects about the consumer, the categories of sources from which that information is collected, the business purposes for collecting or selling the information, and the categories of third parties with which the information is shared. Biometric information is defined to include an individual's deoxyribonucleic acid. Carries over to 2022. |
New York | 2013 State Bills New York 2013 A2931 | Research | Died | This bill regulates the use of human subjects for medical research and experimentation, including subjects with mental disorders and children. The bill addresses exclusion or inclusion of subjects to participate in human research based on race, ethnicity or sex; requires reporting certain information relating to the collection of data, and provides that no greater than minimal risk non-therapeutic human research may be conducted on a child without consent of a parent or guardian. Died. |
New York | State StatuteNew York: NYCL (ISC) 2615 | Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Statute | No insurer may request or require an individual proposed for insurance coverage to submit to a genetic test without prior written informed consent. Further disclosures require additional consent. If an adverse underwriting decision is based on the results of a genetic test, the insurer must notify the individual. No insurer who lawfully possesses information derived from a genetic test on a biological sample may incorporate the information into the record of a non-consenting individual. Penalties for violations are set forth. |
New York | 2015 State Bills New York 2015 A1219 | Employment Nondiscrimination, Health Insurance Nondiscrimination, Other Topics, Other Lines of Insurance Nondiscrimination, Privacy | Died | Establishes a genetics advisory council and requires the council to report to the Governor on several topics, including (1) creating an environment in which there is equitable access to the benefits of genetic tests to all citizens regardless of race, ethnicity or economic status; and (2) the use of any genetic test by insurers, employers or educational institutions, including the potential for compromising the individual liberties and civil rights of individuals or causing individuals to suffer unfair discrimination. Died. |
New York | 2007 State Bills New York 2007 A3113 | Health Insurance Coverage | Died | This bill requires health insurers to cover genetic testing of persons with a family history of cancer when the attending physician determines such person has a significant risk of cancer. Measure failed. |
New York | 2019 State Bills New York 2019 A5651 | Health Insurance Coverage | Died | Requires health insurance policies to cover comprehensive screening for ovarian cancer for persons at high risk, including genetic testing. Died. |
New York | 2017 State Bills New York 2017 A1882 | Health Insurance Coverage | Died | Requires health insurance policies to cover comprehensive screening for ovarian cancer. Additional coverage for computed tomography, barium enema X-rays, magnetic resonance imaging (MRI), positron emission tomography, laparoscopy, colonoscopy and biopsy if a person is at increased risk for ovarian cancer due to specified factors, including positive genetic testing. Died. |
New York | 2021 State Bills New York 2021 A3802 | Research | Pending | Regulates the use of human subjects for medical research and experimentation, including subjects with mental disorders and children. Addresses exclusion or inclusion of subjects to participate in human research based on race, ethnicity or sex. Requires reporting certain information relating to the collection of data. Provides that no greater than minimal risk non-therapeutic human research may be conducted on a child without consent of a parent or guardian. Carries over to 2022. |
New York | 2009 State Bills New York 2009 S4782 | Health Insurance Nondiscrimination | Died | This bill prohibits group or blanket policies that cover 51 or more employees for hospital, medical, major medical, or similar type comprehensive coverage from excluding members or dependents or establishing rates based on predisposing genetic characteristics. The bill also prohibits health insurers from requiring or using tests for or information about predisposing genetic characteristics for underwriting. The same restrictions are imposed upon hospital service corporations, health services corporation and medical expense indemnity corporations covering 51 or more employees. Measure failed. |
New York | 2019 State Bills New York 2019 S7083-A | Employment Nondiscrimination | Died | Prohibits an employer, licensing agency, employment agency, or labor organization from subjecting an individual to discriminatory harassment based on various factors, including predisposing genetic characteristics. Prohibits subjecting domestic workers to unwelcome harassment based on genetic information. Died. |
New York | 2020 State Bills New York 2020 A9505 | Employment Nondiscrimination | Enacted | Declares that it is the policy of the state and all its political subdivisions to ensure a fair, non-biased compensation structure for all employees. Status within one or more protected class or classes may not be considered directly or indirectly in determining proper compensation or pay for any individual or group of employees, and no employee with status within one or more protected class to classes may be paid a wage at a rate less than the rate at which an employee without status within the protected class or classes in same establishment is paid for similar work. Protected class includes predisposing genetic characteristic. 4/3/2020 Signed by the Governor. |
New York | 2018 State Bills New York 2018 A9780 | Privacy | Died | Establishes a personal information bill of rights. Declares the right of all New Yorkers to have their personal information, including DNA, protected. Died. |
New York | 2021 State Bills New York 2021 S605 | Health Insurance Coverage | Pending | Requires health insurers to provide coverage for expenses incurred in obtaining a colonoscopy when a subscriber has a high-risk predisposition to colon cancer based on genetic or family history. Carries over to 2022. |
New York | 2013 State Bills New York 2013 A3760 | Health Insurance Coverage | Died | Requires policies of hospital, surgical or medical care to provide coverage for ovarian cancer screening. These policies also must provide coverage for specific services if a person is believed to be at increased risk of ovarian cancer to due to family history, personal history or positive genetic testing. Died. |
New York | State StatuteNew York: NYCL (ISC) 3221, 3232, 4305, and 4318 | Health Insurance Nondiscrimination | Statute | Insurers or corporations delivering group or blanket health policies that provide hospital, surgical or medical expense coverage may not establish rules for eligibility or continued eligibility based on a health status-related factor, including genetic information. Individual and group or blanket health insurance policies or contracts may not impose pre-existing condition exclusions based on genetic information in the absence of a diagnosis. |
New York | 2015 State Bills New York 2015 A291 | Health Insurance Coverage | Died | This bill requires health insurance policies to cover comprehensive genetic screening for breast, ovarian, prostate, colon and lung cancers. Died. |
New York | 2007 State Bills New York 2007 A4662 | Other Lines of Insurance Nondiscrimination | Died | This bill prohibits denial, cancellation or alteration of a life or disability insurance policy or group life or disability insurance policy, including renewals, on the basis of any genetic testing performed on a insured, applicant or family member of insured or applicant. Measure failed. |
New York | 2019 State Bills New York 2019 A5727 | Health Insurance Coverage | Died | Requires health insurance policies to cover comprehensive genetic screening for ovarian and prostate cancers. Died. |
New York | 2017 State Bills New York 2017 A2461 | Other Topics | Died | Authorizes the department of health to establish a program for familial dysautonomia, Canavan's and Tay-Sachs disease screening and counseling. Participation in the program is voluntary, and all information is confidential. Died. |
New York | 2021 State Bills New York 2021 A404 | Health Insurance Coverage | Pending | Requires health insurance policies to cover comprehensive screening for ovarian cancer, including genetic testing. Carries over to 2022. |
New York | 2009 State Bills New York 2009 S935 | Health Insurance Nondiscrimination | Died | his bill prohibits the use of genetic information for community rating to develop small group health insurance premiums. The bill also prohibits pre-existing condition exclusions in small group health insurance policies based on genetic predisposition. Measure failed. |
New York | 2020 State Bills New York 2020 A10583 | Privacy | Died | Imposes requirements for the collection and use of emergency health data and personal information and the use of technology to aid during the COVID-19 public health emergency. Requires entities using technology to get consent from individuals and to disclose certain information including the right to privacy and who will have access to the data. Emergency health data is defined to include genetic data. Died. |
New York | 2020 State Bills New York 2020 A9506 | Other Topics | Enacted | Requires the state university of New York to issue a request for proposals to partner with hospitals both within the state university of New York and other not-for-profit hospitals and non-profit higher education research institutions to map the genomes of individuals suffering from or at risk of Alzheimer's. 4/3/2020 Signed by the Governor. |
New York | 2018 State Bills New York 2018 S7555 | Privacy | Died | Enacts the Personal Information Protection Act. Establishes a personal information bill of rights requiring parties having custody of residents' personal identifying information to ensure the security of this information. Personal information includes DNA samples. Died. |
New York | 2021 State Bills New York 2021 S6681 | Employment Nondiscrimination, Other Topics | Pending | Declares that it is an unlawful discriminatory practice for a hiring party to subject a model to harassment based on various characteristics, including predisposing genetic characteristics. Carries over to 2022. |
New York | 2013 State Bills New York 2013 A3761 | Health Insurance Coverage | Died | Requires health insurance policies to cover comprehensive genetic screening for breast, ovarian, prostate, colon and lung cancers if recommended by a board-certified geneticist or board-certified genetic counselor. Died. |
New York | 2015 State Bills New York 2015 A299 | Health Insurance Coverage | Died | The bill requires every policy of hospital, surgical or medical care or policies that provide reimbursement for laboratory tests or diagnostic X-rays must provide coverage for testing of familial dysautonomia, Canavan's disease and Tay-Sachs. Died. |
New York | 2007 State Bills New York 2007 S2696 | Health Insurance Nondiscrimination | Died | This bill prohibits the use of genetic information for community rating to develop small group health insurance premiums. The bill also prohibits pre-existing condition exclusions in small group health insurance policies based on genetic predisposition. Measure failed. |
New York | 2019 State Bills New York 2019 A5976 | Employment Nondiscrimination | Died | Prohibits discrimination or harassment based predisposing genetic characteristics of non-employees in the workplace. Died. |
New Mexico | State StatuteNew Mexico: NMSA 59A-23C-5.1, 59A-23C-7.1, 59A-23E-2, 59A-23E-11, … | Health Insurance Nondiscrimination | Statute | A health benefit plan that is offered by a carrier or an approved health plan offered to a small employer and plans subject to the Health Insurance Portability Act may not impose a pre-existing condition exclusion based on genetic information in the absence of a diagnosis. A group health plan and a health insurance issuer offering group health_insurance_coverage may not establish rules for eligibility or continued eligibility based a health status-related factor, including genetic information. A group health benefits plan or a health insurance issuer that offers group health_insurance_coverage in connection with a group health benefits plan from adjusting premiums or contribution amounts for the group covered under the plan on the basis of genetic information. Under the Small Group Rate and Renewability Act, provisions allowing a carrier to use health status in establishing the amount an employer may be charged for coverage under a group health plan exclude genetic information from the definition of health status. |
New Mexico | 2019 State Bills New Mexico 2019 HB 436 | Health Insurance Nondiscrimination | Enacted | Aligns health insurance law with federal law. Prohibits a group health benefits plan or a health insurance issuer that offers group health_insurance_coverage in connection with a group health benefits plan from adjusting premiums or contribution amounts for the group covered under the plan on the basis of genetic information. April 4, 2019 Signed by Governor - Chapter 259. Effective June 5, 2019. |
New Mexico | 2012 State Bills New Mexico 2012 SB 290 | Health Insurance Nondiscrimination | Died | This bill removes language in several sections of the statutes related to health insurance, which state that genetic information is not a health status factor. Measure failed. |
New Mexico | 2013 State Bills New Mexico 2013 HB 168 | Health Insurance Nondiscrimination | Died | Prohibits pre-existing condition exclusions in qualified health plans in the New Mexico Health Insurance Exchange Act. Genetic information is not included as a preexisting condition for the purposes of limiting or excluding benefits in the absence of a diagnosis of the condition related to the genetic information. (Provision related to genetic information is in Committee Substitute version) Died. |
New Mexico | 2013 State Bills New Mexico 2013 HB 366 | Health Insurance Coverage | Died | An individual or group health insurance policy, health care plan or certificate of health insurance that is delivered or issued for delivery in New Mexico must provide certain benefits that have, in effect, a rating of "A" or "B" in the current recommendations of the United States preventive services task force, for various services, including genetic counseling and evaluation for breast cancer BRCA-gene testing for women whose family histories are associated with an increased risk for deleterious mutations in BRCA1 or BRCA2 genes. Died in Committee. |
New Mexico | 2013 State Bills New Mexico 2013 SB 445 | Employment Nondiscrimination, Privacy | Died | Enacts the Uniform Protection of Genetic Information in Employment Act. The bill also amends the Genetic Information privacy Act. Died in Consumer and Public Affairs Committee. |
New Mexico | 2019 State Bills New Mexico 2019 HB 141 | Privacy | Died | Prohibits the disclosure of sensitive personal information by a state agency employee acquired by virtue of the employee's position with a state agency to anyone outside the state agency except under specified circumstances. Died. |
New Mexico | 2019 State Bills New Mexico 2019 SB 24 | Employment Nondiscrimination | Died | Creates the Workplace Harassment Prevention and Education Section of the Human Rights Bureau. The section is responsible for enforcing unlawful workplace harassment policies, including those that pertain to harassment based on genetic information. Died. |
New Mexico | 2021 State Bills New Mexico 2021 SB 408 | Employment Nondiscrimination, Other Topics, Privacy | Died | Establishes that every person, whether a minor or an adult, has the right of bodily integrity and the freedom to assert that right. A person may not be discriminated agains or denied public accommodation, housing accommodation, employment, government services or any other services offered to the general public or otherwise penalized for the assertion of the right of bodily integrity, including the right not to provide samples of bodily fluids, bodily tissue or genetic material. Died. |
New Mexico | State StatuteNew Mexico: NMSA 24-21-1 et seq. | Employment Nondiscrimination, Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination, Privacy, Research | Statute | The statutes contain provisions on the acquisition, collection, retention, transmission or use of genetic information. Consent requirements provide an exemption (1) if DNA, genetic information or results of genetic analysis are not identified with the person or person's family members or (2) for the purpose of medical or scientific research and education (including retention of gene products, genetic information or genetic analysis if the identity of the person or person's family members is not disclosed.) Discrimination by an insurer against a person or his/her family member based on genetic analysis, genetic information or genetic propensity is prohibited. Life, disability income or long-term care insurance are exempt if use is based on sound actuarial principles or related to actual or reasonably anticipated experience. Upon request a persons genetic information or samples must be promptly destroyed with some exceptions, including if retention is authorized under a research protocol approved by an institution review board pursuant to federal law. It is unlawful for a person to use genetic information in employment or recruiting. A person whose rights under the provisions of the Genetic Information privacy Act have been violated may bring a civil action for damages or other relief. |
Last updated: February 8, 2024