Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status Sort descending | Summary |
---|---|---|---|---|
New Jersey | 2018 State Bills New Jersey 2018 AJR181 | Other Topics | Died | Establishes New Jersey Pharmacogenomics Commission. Died. |
New York | 2015 State Bills New York 2015 A312 | Use of Residual Newborn Screening Specimens | Died | Requires parental consent for newborn DNA storage. The bill states that no test, DNA, blood spot, or other genetic information may be retained with an infant's identifying information other than for the purpose of newborn screening without parental consent. Died. |
Oklahoma | 2013 State Bills Oklahoma 2013 HB 1342 | Health Insurance Nondiscrimination, Research | Died | A health carrier offering health benefit plans providing individual market health_insurance_coverage may not (1) impose a pre-existing condition exclusion on the basis of genetic information, (2) establish rules for the eligibility, including continued eligibility, of any individual to enroll for coverage based on genetic information, (3) adjust premium or contribution amounts for an individual on the basis of genetic information concerning the individual or a family member of the individual, (4) request or require an individual or a family member of an individual to undergo a genetic test, or (5) request or require or purchase genetic information for underwriting purposes or to determine eligibility. A health carrier may request, but not require, that an individual or a family member of the individual undergo a genetic test if the request is made pursuant to research that complies with Part 46 of Title 45, Code of Federal Regulations or equivalent federal regulations and any applicable state or local law or regulations for the protection of human subjects in research and other criteria are met. Died. |
Virginia | 2007 State Bills Virginia 2007 HB 2121 | Health Insurance Nondiscrimination | Died | This bill prohibits the treatment of genetic information as a preexisting condition in the Small Employer Health Insurance Exchange in the absence of a diagnosis of the condition related to such information. Measure failed. |
Colorado | 2015 State Bills Colorado 2015 HB 1199 | Privacy | Died | This bill requires a state agency or educational institution to obtain consent from parents or eligible students prior to collecting certain data, including biometric records. Biometric records are defined to include DNA. Died. |
Hawaii | 2020 State Bills Hawaii 2020 SB 2539 | Health Insurance Coverage | Died | Requires individual policies of accident and health or sickness insurance to provide coverage for genetic counseling and testing related to the BRCAl or BRCA2 genetic mutation, if indicated. Died. |
Maryland | 2009 State Bills Maryland 2009 SB 1 | Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Died | This bill prohibits an insurer from requesting or requiring a genetic test or from using a genetic test, the results of a genetic test, genetic information, or a request for genetic services to deny or limit life insurance coverage or benefits or to charge a different rate for the same coverage or benefits under an annuity contract; defining terms; and providing for an exception if the use is based on sound actuarial principles. Measure failed. |
Massachusetts | 2013 State Bills Massachusetts 2013 H.974 | Health Insurance Coverage | Died | Individual or group policies of accident and sickness insurance, except policies providing supplemental coverage to Medicare or to other government programs, delivered, issued or renewed by agreement within or without the commonwealth must provide coverage for breast cancer screening technology, including, but not limited to, Magnetic Resonance Imaging (MRI) for high risk women. Coverage must be provided not less than once annually to women 25 years and older. High risk women, include, but are not limited to women who test positive for BRCA 1 or 2 or who have one or more first degree relatives that have tested positive for BRCA 1 or 2. Reporting date extended to Thursday July 31, 2014, pending concurrence. Died. |
Minnesota | 2019 State Bills Minnesota 2019 SF 1883 | Other Topics | Died | Establishes a pharmacogenetics task force. Died. |
New Hampshire | 2014 State Bills New Hampshire 2014 HB 1586 | Privacy | Died | This bill establishes procedures for protecting the privacy of student and teacher personally-identifiable data, including DNA. As of October 30, 2014, Interim Study Report: Recommended for Legislation in 2014 (Vote 15-0). |
New York | 2011 State Bills New York 2011 A2325 | Health Insurance Coverage | Died | This bill requires accident and health insurance policies to cover the cost of genetic testing of people with a family history of cancer when his or her physician determines that there is a significant risk of developing cancer. Measure failed. |
New York | 2020 State Bills New York 2020 S4109 | Employment Nondiscrimination | Died | Prohibits discrimination or harassment based predisposing genetic characteristics of non-employees in the workplace. Died. |
Texas | 2017 State Bills Texas 2017 SB 281 | Privacy | Died | Limits the use of biometric identifiers by governmental bodies. Biometric identifiers are defined to include a DNA sample. Died. |
Wisconsin | 2011 State Bills Wisconsin 2011 AB 289 | Employment Nondiscrimination | Died | This bill would eliminate the compensatory and punitives damages for acts of employment discrmination or unfair honesty or genetic testing. Measure failed. |
Arizona | 2018 State Bills Arizona 2018 HB 2450 | Privacy | Died | Allows the release of genetic testing and information derived from genetic testing to the following, if the necessary requirements are met: an individual or entity that provides services to a health care provider or clinical laboratory, a statewide health information exchange, the health insurance carrier of the person tested, a nationally recognized accreditation organization, a health professional licensing board in the state, and an entity that is responsible for the payment of a health care provider charges. Died. |
Florida | 2018 State Bills Florida 2018 SB 1106 | Other Lines of Insurance Nondiscrimination | Died | Prohibits life insurers and long-term care insurers from canceling, limiting, or denying coverage, or establishing differentials in premium rates, based on genetic information, if there is no diagnosis of a condition related to the genetic information. The bill also prohibits these insurers from requiring or soliciting genetic information, using genetic test results, or considering a person�s decisions or actions relating to genetic testing for any insurance purpose. 3/10/2018 Died in Rules. |
Kansas | 2014 State Bills Kansas 2014 HB 2621 | Privacy | Died | The state board, the department of education, a unified school district or local education agency may not provide any personally identifiable information of any student or teacher, including a DNA sequence, to any federal agency, any Kansas state or local agency, state or local agency outside the state of Kansas, or any other organization or entity unless under specified circumstances. Died. |
Maryland | 2019 State Bills Maryland 2019 HB 716 | Privacy | Died | Amends the definition of personal information used in the state data privacy act. Personally identifiable information is defined to include an individual's DNA. Died. |
Massachusetts | 2020 State Bills Massachusetts 2020 S.2564 | Other Topics | Died | Requires that certain state entities make a dedicated effort to encourage diversity and advance equity based on race, color, religious creed, national origin, sex, gender identity, sexual orientation, genetic information, ancestry, disability, and language in any recommendations, policies, programs and initiatives developed. 1/5/2021 In Senate. No further action taken. Died. |
Missouri | 2007 State Bills Missouri 2007 SB 325 | Employment Nondiscrimination | Died | This bill authorizes designated administrators to take action if it is determined that a person has engaged, is engaging in, or has taken a substantial step toward engaging in an act of discrimination prohibited under the state genetic nondiscrimination laws that applies to employers. Measure failed. |
New Jersey | 2020 State Bills New Jersey 2020 AJR 155 | Other Topics | Died | Establishes New Jersey Pharmacogenomics Commission. Died. |
New York | 2017 State Bills New York 2017 A6878 | Research | Died | Regulates the use of human subjects for medical research and experimentation, including subjects with mental disorders and children. Died. |
Oregon | 2017 State Bills Oregon 2017 HB 2232 | Health Insurance Coverage | Died | A health benefit plan offered in Oregon must provide coverage for BRCA testing, if indicated. Died. |
Virginia | 2020 State Bills Virginia 2020 HB 473 | Privacy | Died | Gives consumers the right to access their data and determine if it has been sold to a data broker. Requires a controller, defined in the bill as a person that, alone or jointly with others, determines the purposes and means of the processing of personal data, to facilitate requests to exercise consumer rights regarding access, correction, deletion, restriction of processing, data portability, objection, and profiling. The measure also (i) requires transparent processing of personal data through a privacy notice, (ii) requires controllers to disclose if they process personal data for direct marketing or sell it to data brokers, and (iii) requires controllers to conduct a risk assessment of each of their processing activities involving personal data and an additional risk assessment any time there is a change in processing that materially increases the risk to consumers. The measure applies to any legal entity that conducts business in the Commonwealth or produces products or services that are intentionally targeted to residents of the Commonwealth and that (a) controls or processes personal data of not fewer than 100,000 consumers or (b) derives over 50 percent of gross revenue from the sale of personal data and processes or controls personal data of not fewer than 25,000 customers. Sensitive data includes genetic or biometric data. Died. |
Missouri | 2020 State Bills Missouri 2020 HB 2375 | Privacy | Died | Prohibits a person or entity from disclosing, obtaining, retaining, or using any biometric data about an individual, including DNA, with whom the person or entity is engaged in trade or commerce for any purpose other than that which the individual reasonably expects. Died. |
New Mexico | 2013 State Bills New Mexico 2013 HB 168 | Health Insurance Nondiscrimination | Died | Prohibits pre-existing condition exclusions in qualified health plans in the New Mexico Health Insurance Exchange Act. Genetic information is not included as a preexisting condition for the purposes of limiting or excluding benefits in the absence of a diagnosis of the condition related to the genetic information. (Provision related to genetic information is in Committee Substitute version) Died. |
New York | 2019 State Bills New York 2019 A1890 | Employment Nondiscrimination | Died | Prohibits discrimination or harassment based predisposing genetic characteristics of non-employees in the workplace. Died. |
South Dakota | 2012 State Bills South Dakota 2012 HB 1260 | Health Insurance Nondiscrimination | Died | This bill repeals the authority of the director of the Division of Insurance to promulgate rules governing use of genetic information and enacts certain provisions regarding the use of genetic information. Measure failed. |
Washington | 2019 State Bills Washington 2019 SB 5805 | Health Insurance Nondiscrimination | Died | Making state law consistent with selected federal consumer protections in the patient protection and affordable care act. Prohibits a health carrier or health plan from establishing rules for eligibility based on health-status related factors such as genetic information. Died. |
Connecticut | 2019 State Bills Connecticut 2019 SB 369 | Other Topics | Died | Establishes a task force to require a study of the link between the abnormal genes associated with breast and ovarian cancers and the nerve death associated with Alzheimer's disease to improve diagnosis, risk assessment and treatment of such disease. Died. |
Illinois | 2014 State Bills Illinois 2014 HB 5998 | Privacy | Died | Amends the Genetic Information privacy Act. Makes a technical change in a section concerning the short title. Died. |
Maryland | 2014 State Bills Maryland 2014 HB 1120 | Other Topics, Privacy | Died | Requires the Motor Vehicle Administration to offer to an applicant for a driver's license, identification card, or moped operator's permit the opportunity to upgrade to an enhanced identification document. The enhanced ID will be embedded with memory and a microprocessor chip that stores biometric identifiers, which may include DNA. Died. |
Massachusetts | 2017 State Bills Massachusetts 2017 H.3969 | Health Insurance Coverage | Died | Requires coverage for the diagnosis of Alfi's Syndrome, including genetic testing. 7/18/2018 Accompanied a study order, see H4778. |
Mississippi | 2010 State Bills Mississippi 2010 HB 378 | Health Insurance Nondiscrimination | Died | This bill creates the genetic nondiscrimination in health insurance act. No health benefit plan may cancel, deny or refuse to renew benefits or coverage based on genetic information. This bill also places restrictions on health benefit plan's ability to request or require disclosure of genetic information. Measure failed. |
New Hampshire | 2020 State Bills New Hampshire 2020 HB 1680 | Privacy | Died | Grants consumers the right to request that a business disclose the type of personal information it collects, the purpose for which it is collected, and the categories of third parties with which it is shared. Authorizes consumers to opt out of the sale of their personal information. Personal information is defined to include biometric information such as an individual's DNA. 10/29/2020 Interim Study Report: Recommended for Future Legislation (Vote 10-5). Died. |
New York | 2013 State Bills New York 2013 A506 | Use of Residual Newborn Screening Specimens | Died | This bill requires written parental consent to store a newborn's test, blood spot or other genetic information for any purpose other than newborn screening. Died. |
North Carolina | 2019 State Bills North Carolina 2019 HB 514 | Other Topics | Died | Prohibits unlawful discriminatory practice based on protected status, including genetic information. Died. |
Utah | 2021 State Bills Utah 2021 HB 274 | Privacy | Died | Requires a government agency to make an annual report to the state auditor regarding: the government agency's collection, use, and disclosure of personal identifying information; any misuse or improper disclosure of personal identifying information; and measures taken to notify individuals of any misuse or improper disclosure. Personal identifying information includes DNA. 3/5/2021 House filed. |
Wisconsin | 2019 State Bills Wisconsin 2019 SB 366 | Employment Nondiscrimination | Died | Allows the Department of Workforce Development or an individual who is alleged or was found to have been discriminated against or subjected to unfair honesty or genetic testing to bring an action in circuit court in addition to or in lieu of filing an administrative complaint, with some exceptions. 4/1/2020 Failed to pass pursuant to Senate Joint Resolution 1. |
California | 2013 State Bills California 2013 SB 799 | Health Insurance Coverage | Died | Requires every health care service plan contract, except a specialized health care service plan contract to provide coverage for genetic testing for hereditary nonpolyposis colorectal cancer (HNPCC) under certain circumstances. Died. |
Florida | 2021 State Bills Florida 2021 SB 1140 | Other Topics, Privacy | Died | This bill prohibits DNA analysis and disclosure of DNA analysis results without authorization; prohibits the collection or retention of a DNA sample of another person without authorization for specified purposes; prohibits specified DNA analysis and disclosure of DNA analysis results without authorization, etc. |
Kentucky | 2020 State Bills Kentucky 2020 SB 116 | Privacy | Died | Establishes the parent's bill of rights. Requirements set forth in the bill include parental written consent before any record of a minor child's blood or DNA is made, shared or stored unless required by law or court order. Died. |
Maryland | 2020 State Bills Maryland 2020 HB 255 | Other Topics | Died | Prohibits a hospital or related institution from discriminating in admitting or providing care for an individual based on various factors, including genetic information. Died. |
Michigan | 2019 State Bills Michigan 2019 SB 333 | Employment Nondiscrimination | Died | Requires employers of 50 or more individuals to post a notice that wage discrimination based on genetic information is prohibited under federal law. Died. |
California | 2020 State Bills California 2020 SB 1423 | Employment Nondiscrimination | Died | Requires any contracting entity that contracts with independent contractors to provide services to, on behalf of, or through the contracting entity on a freelance or per-gig basis, or virtual platform that enables third parties, including independent contractors, to transact with one another for services, or through which independent contractors can market, promote, or advertise their services to third parties, to maintain a written policy against the discrimination of an independent contractor on the basis of genetic information and other factors. Summary based on version of bill as amended on 5/6/2020 when all language from prior introduced version of bill was stricken. Died. |
Hawaii | 2014 State Bills Hawaii 2014 HB 1944 | Employment Nondiscrimination, Health Insurance Nondiscrimination, Privacy | Died | The bill requires contractors and prospective contractors with the state or counties to comply with the Genetic Information Nondiscrimination Act of 2008. Died. |
Maine | 2017 State Bills Maine 2017 LD 146 | Privacy | Died | Clarifies that certain personal information of municipal employees is confidential and a record or portion of a record containing that information in the possession of a municipal government is not a public record. Personal information includes genetic information. Died. |
Maryland | 2021 State Bills Maryland 2021 HB 218 | Privacy | Died | Requires certain private entities in possession of biometric identifiers or biometric information to develop a written policy, made available to the public, establishing a certain retention schedule and guidelines for permanently destroying biometric identifiers and biometric information. Biometric identifier is defined to includes a genetic print. The bill defines confidential and sensitive to include a genetic marker and genetic testing information. In the House - Withdrawn by Sponsor. Died. |
Minnesota | 2012 State Bills Minnesota 2012 HF 3025 | Privacy | Died | This bill amends the definition of genetic test in the statutes regarding government data practices. Measure failed. |
Montana | 2017 State Bills Montana 2017 HB 392 | Other Lines of Insurance Nondiscrimination | Died | Creates the Montana family and medical leave insurance fund. Applicants for coverage must provide eligibility documentation. The department may not require documentation that exceeds the right to privacy allowed under HIPAA, the ADA and GINA. Died. |
Last updated: February 8, 2024