Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status Sort descending | Summary |
---|---|---|---|---|
New Hampshire | New Hampshire SB 240 | Genetic data storage/privacy/sharing (medicine) | Approved | Relative to conditions for genetic testing. |
Texas | Texas HB 2545 | Genetic data storage/privacy/sharing (industry) | Approved | Relating to an individual's genetic data, including the use of that data by certain genetic testing companies for commercial purposes and the individual's property right in DNA; authorizing a civil p... |
Pennsylvania | Pennsylvania SB 8 | Coverage and reimbursement | Approved | An Act amending the act of May 17, 1921 (P.L.682, No.284), known as The Insurance Company Law of 1921, in casualty insurance, further providing for coverage for mammographic examinations and diagnost... |
Montana | Montana HB 682 | Neonatal sequencing | Approved | Revise laws related to collection of genetic material for newborn screenings. |
Maryland | 2013 State Bills Maryland 2013 SB 676 | Privacy | Died | Sets forth requirements for governmental units, including an executive, legislative or judicial agency, a department, a board, a commission, an authority, a public institution of higher education, or a unit or instrument of the state that collects or discloses personal information. Defines personal information to include an individual's genetic print. Died. |
Massachusetts | 2019 State Bills Massachusetts 2019 H.287 | Privacy | Died | Amends data security protections to include biometric information, which is defined to include genetic information. 10/26/2020 Accompanied a study order, see H5043. Died. |
Mississippi | 2017 State Bills Mississippi 2017 HB 175 | Health Insurance Nondiscrimination | Died | Creates the small business health insurance pool. Health benefit plans covering small employers may not exclude genetic information as a preexisting condition in the absence of a diagnosis of the condition related to the genetic information. 1/31/2017 Died in Committee. |
New Jersey | 2018 State Bills New Jersey 2018 SJR115 | Other Topics | Died | Establishes the New Jersey Pharmacogenomics Commission. Died. |
New York | 2015 State Bills New York 2015 A323 | Health Insurance Coverage | Died | Requires policies that provide coverage for hospital, surgical or medical to cover screening for ovarian cancer, including genetic testing. Additional coverage is required if genetic testing is positive. Died. |
Oklahoma | 2015 State Bills Oklahoma 2015 HB 1742 | Other Topics | Died | The Office of Management and Enterprise Services must contract with a vendor to conduct a pilot project to determine incentives to both health care providers and patients for each care encounter in which the provider and patient incorporate genetic testing for ability to metabolize prescription drugs, drug testing of persons prescribed narcotics and other proven medical interventions made available and recorded through the program in the rendering and utilization of health care. Died. |
Virginia | 2008 State Bills Virginia 2008 SB 578 | Health Insurance Nondiscrimination | Died | This bill prohibits the establishment of rules for eligibility or continued eligibility based on a health status-related factor, including genetic information, in Virginia share health insurance policies. This bill also prohibits pre-existing condition exclusions in these policies based on genetic information in the absence of a diagnosis of a condition related to such information. Measure failed. |
California | 2012 State Bills California 2012 SB 1267 | Privacy, Research | Died | This bill creates the Genetic Information privacy Act. The bill prohibits any person from obtaining, analyzing, or disclosing genetic information without the written authorization of the individual to whom the information pertains and requires a separate written authorization for each separate disclosure of an individual's genetic information, with some exceptions such as for law enforcement. The bill permits disaggregated and anonymized data to be used in the manner specified that was collected before the bill's enactment without the authorization described above. The bill also permits the use of disaggregated and anonymized data, as specified, if written authorization is obtained and the data is used for a purpose authorized by the individual to whom the information pertains. Measure failed. |
Florida | 2020 State Bills Florida 2020 SB 1564 | Other Lines of Insurance Nondiscrimination, Privacy | Died | Specifies criteria that must be met before a life insurer, long-term care insurer, or disability income insurer may use genetic information for underwriting purposes. Prohibits a life, long-term care, or disability income insurer from canceling coverage based solely on genetic information; requiring an applicant to take a genetic test as a condition of insurability; or obtaining, requesting, or otherwise requiring the complete genome sequence of an applicant�s DNA. Requires written consent for companies providing direct-to-consumer commercial genetic testing to share information about a consumer with a life insurer or health insurer. HB 1189 Substituted. Died. |
Kentucky | 2020 State Bills Kentucky 2020 HB 21 | Health Insurance Nondiscrimination | Died | Amends language pertaining to pre-existing condition exclusions in group health insurance. Prohibits group health benefit plan coverage from adjusting premium or contribution amounts for a group covered under the plan on the basis of genetic information. Died. |
Maryland | 2020 State Bills Maryland 2020 HB 1656 | Privacy | Died | Requires certain businesses that collect a consumer's personal information, including biometric information such as an individual's DNA, to provide certain clear and conspicuous notices to the consumer at or before the point of collection. Authorizes a consumer to submit a certain request for information to a business that collects the consumer's personal information. Requires a business to comply with a request for information within 45 days after receiving a request. Died. |
Maryland | 2021 State Bills Maryland 2021 HB 810 | Other Topics | Died | Alters the definition of "practice pharmacy" to include the ordering and administering of certain laboratory tests. Requires the State Board of Pharmacy, on or before January 1, 2022, to adopt regulations authorizing a pharmacist to order and administer laboratory tests, without a written, oral or electronically transmitted prescription from an authorized prescriber that measure biomarkers, including deoxyribonucleic acid. |
Minnesota | 2013 State Bills Minnesota 2013 HF 589/SF 1017 | Privacy, Research, Use of Residual Newborn Screening Specimens | Died | This bill specifies that newborn screening activities are subject to state law on the collection, storage, use, and dissemination of genetic information. A new statute section also is created on the treatment of biological specimens and health data held by the health department and health boards. The new statute section allows the commissioner to collect, use, store, and disseminate biological specimens and health data to conduct research in a manner that is consistent with the federal common rule for the protection. Died. |
Montana | 2019 State Bills Montana 2019 HB 609 | Health Insurance Nondiscrimination | Died | Amends state health insurance law by deleting provision related to restrictions on pre-existing condition exclusions, including those based on genetic information. The new law would prohibit any pre-existing condition exclusions. Died. |
New York | 2009 State Bills New York 2009 A1769 | Other Lines of Insurance Nondiscrimination | Died | This bill prohibits denial, cancellation or alteration of a life or disability insurance policy or group life or disability insurance policy, including renewals, on the basis of any genetic testing performed on an insured, applicant or family member of insured or applicant. Measure failed. |
New York | 2019 State Bills New York 2019 A8169 | Privacy | Died | Requires every personal information recipient to protect the security and integrity of all personal information in their custody from unauthorized access or unauthorized use. Places strict liability on companies where breaches of security allow for personal information to be compromised. Personal information is defined to include biometric information such as DNA. Died. |
Tennessee | 2020 State Bills Tennessee 2020 SB 2726 | Privacy | Died | Establishes the parent's bill of rights. Requirements set forth in the bill include parental written consent before any record of a minor child's blood or DNA is made, shared or stored unless required by law or court order. Died. |
West Virginia | 2014 State Bills West Virginia 2014 HB 3121 | Privacy | Died | Provides that all parental rights are reserved to a parent of a minor child without obstruction or interference from this state, a political subdivision of this state, other governmental entity or other institution including, but not limited to, the right to consent before DNA is created, stored or shared. Died. |
Connecticut | 2019 State Bills Connecticut 2019 HB 6544 | Privacy | Died | Prohibits a consumer genetic-testing company from sharing any genetic data or other personally identifiable information about a consumer with any health or life insurance company. Died. |
Illinois | 2009 State Bills Illinois 2009 SB 2493 | Health Insurance Nondiscrimination | Died | This bill deletes provisions in the statutes related to pre-existing conditions and the treatment on genetic information as such a condition. Measure failed. |
Minnesota | 2020 State Bills Minnesota 2020 HF 3096 | Privacy | Died | Establishes requirements with regard to collection, sale of, and access to personal information by businesses. Personal information is defined to include genetic information. Died. |
New Hampshire | 2016 State Bills New Hampshire 2016 HB 1494 | Privacy | Died | Provides that an individual has an expectation of privacy in personal information, including DNA/RNA and other identifying information unique to the individual. Died. |
New York | 2011 State Bills New York 2011 A5065 | Research | Died | This bill regulates the use of human subjects for medical research and experimentation, including subjects with mental disorders and children. Measure failed. |
New York | 2020 State Bills New York 2020 S9073 | Privacy | Died | Establishes the It's Your Data Act for the purposes of providing protections and transparency in the collection, use, retention, and sharing of personal information. Biometric information, which is defined to include DNA, is considered protected information. Died. |
Texas | 2019 State Bills Texas 2019 HB 4127 | Health Insurance Nondiscrimination | Died | Creates the Healthy Texas Program. The board for the program must create policies that promote nondiscrimination with respect to members and providers with regard to genetic information. Died. |
Alabama | 2016 State Bills Alabama 2016 HB 267 | Privacy | Died | Prohibits state agencies, local education agencies, or local education institutions from administering any student survey, assessment, analysis, evaluation, or similar instrument that solicits certain information about the student or the family of the student, including biometric records. Biometric records are defined to include a DNA sequence. Died. |
Wisconsin | 2013 State Bills Wisconsin 2013 SB 143 | Employment Nondiscrimination | Died | Permits the Department of Workforce Development (DWD) or a person who has been discriminated against or subjected to unfair honesty or genetic testing to bring an action in circuit court to recover compensatory and punitive damages caused by the act of discrimination or unfair honesty or genetic testing after the completion of all administrative proceedings before DWD and the Labor and Industry Review Commission concerning the violation. Failed to pass pursuant to Senate Joint Resolution 1. |
Delaware | 2019 State Bills Delaware 2019 SB 144 | Other Lines of Insurance Nondiscrimination | Died | Prohibits discrimination based upon genetic information in the issuance or renewal of disability, long-term care, and life insurance. Died. |
Illinois | 2020 State Bills Illinois 2020 HB 5603 | Privacy | Died | Creates the Consumer privacy Act. Personal information is defined to include biometric information such as deoxyribonucleic acid. Provides consumers rights with regard to the collection and use of personal information businesses. Died. |
Maryland | 2016 State Bills Maryland 2016 SB 153 | Privacy | Died | Requires the Motor Vehicle Administration to make available to an applicant for a driver's license, an identification card, or a moped operator's permit the opportunity to upgrade to an enhanced identification document. A person who applies for enhanced identification must provide a biometric identifier, which may include DNA. Died. |
Massachusetts | 2020 State Bills Massachusetts 2020 S.2820 | Privacy | Died | Prohibits an agency, executive office, department, board, commission, bureau, division or authority of the commonwealth or a political subdivision thereof, or any agent, contractor or subcontractor thereof, from acquiring, possessing, accessing or using any biometric surveillance system or any information derived from a biometric surveillance system operated by another entity. Allows certain exceptions such as the use of facial recognition technology by the registrar or motor vehicles. Biometric data is defined to include deoxyribonucleic acid. 11/30/2020 Reported out of Senate Conference Committee. See S2963 for report. Died. |
Missouri | 2014 State Bills Missouri 2014 SB 819 | Privacy | Died | This bill requires a state agency or education institution to obtain written consent from parents or eligible students before collecting any certain data points, including a biometric record (defined to include DNA). Died. |
New Jersey | 2020 State Bills New Jersey 2020 S2069 | Privacy | Died | Exempts certain health information, including genetic information, contained in 9-1-1 calls from definition of government record. Died. |
New York | 2017 State Bills New York 2017 S1264 | Other Topics | Died | A Transportation Network Company (TNC) may not discriminate against passengers or potential passengers on the basis of a genetic predisposition. TNC drivers must comply with the anti-discrimination law. Died. |
Rhode Island | 2019 State Bills Rhode Island 2019 S929 | Health Insurance Coverage | Died | Requires nonprofit hospital service contract, plan, or insurance policy delivered, issued for delivery, or renewed in this state must provide coverage of all blood testing services, including specified genetic tests. Died. |
Washington | 2015 State Bills Washington 2015 HB 1094 | Privacy | Died | Establishes protections for the use of biometric identifiers of an individual for commercial purposes. Biometric identifier is defined to include DNA. Died. |
California | 2020 State Bills California 2020 AB 2640 | Health Insurance Coverage | Died | Prohibits an individual or group health care service plan contract or health insurance policy issued, amended, delivered, or renewed on or after January 1, 2021, from requiring prior authorization for genetic biomarker testing for an enrollee or insured with metastatic or advanced stage 3 or 4 cancer. Died. |
Hawaii | 2012 State Bills Hawaii 2012 HB 1810 | Health Insurance Nondiscrimination | Died | This bill requires health benefit plans to include lower deductibles and co-payments for non-tobacco smokers and others at low risk. Genetic factors and pre-existing conditions may not be considered a behavior. Measure failed. |
Maine | 2017 State Bills Maine 2017 LD 1340 | Employment Nondiscrimination, Other Topics, Privacy | Died | No member, officer, employee or agent of a municipal housing authority may knowingly divulge or disclose personnel information declared confidential with some specified exceptions. Personal information, including genetic information, is considered confidential. Died. |
Massachusetts | 2015 State Bills Massachusetts 2015 H.1900 | Privacy | Died | Ensures patient privacy and control in health information exchanges by protecting health care information, including genetic information. 5/5/2016 Accompanied a study order, see H4242. |
Massachusetts | 2017 State Bills Massachusetts 2017 S.554 | Health Insurance Coverage | Died | Requires health_insurance_coverage of screening breast ultrasounds and breast MRI, in addition to mammograms, if the patient is at increased risk of cancer based on certain factors such as positive genetic testing. 4/30/2018 In Senate. Accompanied a study order, see S2496. |
Mississippi | 2011 State Bills Mississippi 2011 HB 904 | Health Insurance Nondiscrimination | Died | Genetic information may not be excluded as a preexisting condition in the absence of a diagnosis of the condition related to the genetic information. Measure failed. |
New Jersey | 2013 State Bills New Jersey 2013 A 4306 | Privacy | Died | This bill sets forth requirements for government collection of biometric identifiers, including DNA. No governmental entity shall obtain a biometric identifier of an individual without authorization of the individual, with some exceptions such as law enforcement. Died. |
New York | 2013 State Bills New York 2013 S2642 | Privacy | Died | Establishes the office of data protection and privacy for intelligence data centers to protect the privacy of personal information and biometric identifiers, including DNA. Died. |
North Carolina | 2020 State Bills North Carolina 2020 S786 | Employment Nondiscrimination | Died | Amends genetic nondiscrimination in employment statute. Deletes existing provision related to genetic information and adds protected classes or protected categories, which is defined to include predisposing genetic characteristics. Died. |
Vermont | 2011 State Bills Vermont 2011 H368 | Privacy | Died | This bill creates personal property rights to genetic information. The bill also prohibits disclosure of genetic information without informed written consent. Measure failed. |
Last updated: February 8, 2024