Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status Sort descending | Summary |
---|---|---|---|---|
Massachusetts | 2019 State Bills Massachusetts 2019 S.616 | Health Insurance Coverage | Died | Requires insurance coverage for mammograms and breast cancer screening if the patient has additional risk factors for breast cancer such as family history and positive genetic testing. Died. |
Mississippi | 2018 State Bills Mississippi 2018 HB 522 | Health Insurance Nondiscrimination | Died | Prohibits health plans from denying coverage for a preexisting condition unless certain conditions are met. Genetic information may not be excluded as a preexisting condition in the absence of a diagnosis of the condition related to the genetic information. 1/30/2018 Died in Committee. |
Connecticut | 2021 State Bills Connecticut 2021 HB 5687 | Health Insurance Coverage | Died | Requires health_insurance_coverage, without any out-of-pocket expense, for: (1) diagnostic and screening mammograms, breast ultrasounds and magnetic resonance imaging of breasts for all insureds; (2) breast biopsies for all insureds, and (3) prophylactic mastectomies and breast reconstruction surgery for all insureds who have the harmful variant of breast cancer gene one (BRCA1), breast cancer gene two (BRCA2) or any similar gene variant that materially increases breast cancer risk. 1/27/2021 Referred to Joint Committee on Insurance and Real Estate. |
New Jersey | 2019 State Bills New Jersey 2019 A5804 | Privacy | Died | Establishes personal property rights to DNA samples and genetic information resulting from DNA analysis. Requires consent for use of samples and information from person sampled or analyzed. Died. |
Illinois | 2018 State Bills Illinois 2018 SB 2924 | Privacy | Died | Amends the Genetic Information privacy Act provisions concerning uses and disclosures. Provides that various uses or disclosures of a patient's genetic information may not (rather than may) occur without the patient's consent. Died. |
New York | 2017 State Bills New York 2017 A1220 | Privacy | Died | Requires written notification to parents of infant's whose DNA or blood spots are retained. Died. |
Maryland | 2014 State Bills Maryland 2014 SB 387 | Privacy | Died | Allows the Motor Vehicle Administration to offer enhanced identification. An individual who applies for enhanced identification may be asked to provide biometric identification, which is defined to include DNA. Died. |
Oklahoma | 2017 State Bills Oklahoma 2017 HB 1816 | Other Topics | Died | Prohibits discrimination based on genetic information in housing and the full and equal enjoyment of the goods, services, facilities, privileges, advantages, and accommodations of a place of public accommodation. Died. |
Virginia | 2010 State Bills Virginia 2010 HB 455 | Employment Nondiscrimination | Died | This bill amends the state employment genetic nondiscrimination law by adding the Commonwealth or any of its agencies, institutions, or political subdivisions, or any public body to the list of entities covered under the law. Measure failed. |
Maryland | 2021 State Bills Maryland 2021 SB 16 | Privacy | Died | Requires certain private entities in possession of biometric identifiers or biometric information to develop a written policy, made available to the public, establishing a certain retention schedule and guidelines for permanently destroying biometric identifiers and biometric information. Biometric identifier is defined to includes a genetic print. The bill defines confidential and sensitive to include a genetic marker and genetic testing information. In the Senate - Hearing 1/27 at 1:00 p.m. Died. |
Minnesota | 2014 State Bills Minnesota 2014 HF 2526/SF 2047 | Research, Use of Residual Newborn Screening Specimens | Died | The bill provides options to parents regarding blood samples collected for the purpose of newborn screening, including the right to authorize in writing that the blood sample and test results may be used for public health studies or research. Died. |
California | 2017 State Bills California 2017 SB 562 | Health Insurance Nondiscrimination | Died | Creates the Healthy California Board, which is responsible for the establishment of the Healthy California program to provide comprehensive universal single-payer health care coverage and a health care cost control system for the benefit of all residents of the state. Consistent with the Unruh Civil Rights Act, the Board must promote nondiscrimination with respect to members and health care providers on the basis of genetic information and other characteristics. Died. |
Nebraska | 2010 State Bills Nebraska 2010 LB 1038 | Privacy | Died | This bill amends section 71-551 of the statutes on genetic testing. Proposed changes address the types of genetic tests covered under law and and consent requirements. Measure failed. |
Georgia | 2007 State Bills Georgia 2007 HB 276 | Employment Nondiscrimination, Other Lines of Insurance Nondiscrimination, Privacy | Died | This bill creates guidelines such as consent requirements for the creation and storage of biometric information, which is defined to include DNA samples. The bill also prohibits life insurers from requiring genetic information to determine an applicants eligibility or rates to be charged for life insurance; however, any pre-existing genetic information must be supplied to the insurance company upon application. The bill forbids employers or employment agencies from using information derived from genetic testing for identification purposes or as a condition of employment. The bill provides remedies for individuals whose genetic information is inappropriately used. Measure failed. |
Massachusetts | 2015 State Bills Massachusetts 2015 H.938 | Health Insurance Coverage | Died | Requires insurance coverage for magnetic resonance imaging for certain persons for the detection of breast cancer, including women who have tested positive for Breast Cancer Gene 1 or Breast Cancer Gene 2 mutations or one or more first degree relatives test positive for Breast Cancer Gene 1 or Breast Cancer Gene 2 mutations. 3/28/2016 Accompanied a study order, see H4111. |
Minnesota | 2020 State Bills Minnesota 2020 HF 3936 | Privacy | Died | The controller of a legal entity that conducts business in the state may not process sensitive data concerning a consumer without obtaining the consumer's consent, or, in the case of the processing of personal data concerning a known child, without obtaining consent from the child's parent or lawful guardian, in accordance with the children's online privacy protection act requirements. Sensitive data is defined to include genetic or biometric data for the purpose of uniquely identifying a person. The law does not apply to various types of information and entities such as protected health information under HIPAA and identifiable private information according to federal policy for the protection of human subjects. Died. |
California | 2020 State Bills California 2020 AB 2222 | Privacy | Died | Requires a genealogy company, defined as a person that is not subject to HIPAA and obtains the DNA of a person through submission of a saliva sample or other methods, to display a notice in all advertising, it�s privacy policies, at the point of sale of the product, and on product packaging. The notice must contain information about the company's privacy policy. Died. |
New Hampshire | 2018 State Bills New Hampshire 2018 HB 1373 | Privacy | Died | Establishes and individual's property right to his or her genetic information and DNA sample, except as expressly otherwise provided in statute. Requires consent to acquire, retain, or disclose a person's genetic information or DNA sample. 5/2/2018 Refer to Interim Study, MA, VV. |
Hawaii | 2018 State Bills Hawaii 2018 HB 2127 | Health Insurance Coverage | Died | Requires health insurers, mutual benefit societies, and health maintenance organizations to provide coverage for genetic counseling and testing related to the BRCA1 or BRCA2 genetic mutation, if indicated. Died. |
New York | 2011 State Bills New York 2011 A6478 | Health Insurance Nondiscrimination | Died | This bill prohibits any group or blanket health insurance policy from excluding coverage for any group member based on a predisposing genetic characteristic, and prohibits any hospital service corporation, health service corporation or medical expense indemnity corporation contract from excluding coverage for any group member based on predisposing genetic characteristics. Measure failed. |
Maine | 2021 State Bills Maine 2021 LD 1714 | Privacy | Died | Establishes consumer rights with respect to personal information collected by a business. Personal information includes biometric information. Biometric information is defined to include deoxyribonucleic acid. Died Between Houses, Jun 2, 2021. |
North Carolina | 2017 State Bills North Carolina 2017 HB 186 | Employment Nondiscrimination, Other Topics | Died | Creates the Equal Employment and Equal Access to Public Accommodations Act. Declares that it is the public policy of the State to protect and safeguard the right and opportunity to all individuals to seek, obtain and hold employment without discrimination or abridgment and to enjoy fully and equally the goods, services, facilities, privileges, advantages, and accommodations of places of public accommodations free of discrimination because of race, sex, national origin, citizenship, religion, age, veteran status, genetic information, pregnancy, handicap, or disability. Declares that it is the policy of the State Board of Community Colleges, local boards of trustees of the State of North Carolina, and the Board of Governors of the University of North Carolina not to discriminate among students. Died. |
Texas | 2021 State Bills Texas 2021 HB 3742 | Other Lines of Insurance Nondiscrimination | Died | Relates to a prohibition on the use of genetic information gathered from direct-to-consumer genetic tests by a long-term care benefit plan issuer or a life insurance company. 5/17/2021 Received from the House. Died. |
Wisconsin | 2016 State Bills Wisconsin 2016 AB 570 | Employment Nondiscrimination | Died | Authorizes the circuit court to order a person who engages in discrimination in employment, unfair honesty testing, or unfair genetic testing to pay compensatory and punitive damage. 4/13/2016 Failed to pass pursuant to Senate Joint Resolution 1. |
Michigan | 2011 State Bills Michigan 2011 SB 429 | Health Insurance Nondiscrimination | Died | This bill allows a health insurer to request a genetic test as additional information for prior authorization. (See version passed by the Senate). Measure failed. |
Alaska | 2021 State Bills Alaska 2021 HB 159 | Privacy | Died | Establishes the Consumer Data privacy Act. Requires businesses to notify consumers before the collection of personal information. Consumers may opt out of the sale of personal information. Businesses must maintain privacy policies available online describing consumer's privacy rights such as the designated methods in which the consumer can request access or deletion of personal information. Biometric information, including deoxyribonucleic acid, is considered personal information. Carries over to 2022 session. |
Missouri | 2015 State Bills Missouri 2015 SB 530 | Privacy | Died | Protects the privacy of student data, which encompasses biometric records. Biometric records is defined to include DNA. Died. |
Florida | 2013 State Bills Florida 2013 HB 857 | Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Died | This bill amends Florida's health_insurance_nondiscrimination law. The bill removes the exemption for life, disability and long-term care insurance under existing law and states that the law applies to other lines of insurance. Died. |
New Jersey | 2020 State Bills New Jersey 2020 S 3078 | Employment Nondiscrimination | Died | Creates the State Anti-Harassment and Workplace Discrimination Act. Declares that it is an unlawful employment practice and unlawful discrimination, for any person, whether an employee or applicant for employment, or intern or volunteer, in any State agency or Gubernatorial Transition Office, or person doing business with the State to discriminate against or harass an employee or applicant for employment, or intern or volunteer, based upon certain protected categories, genetic information. Died. |
Iowa | 2010 State Bills Iowa 2010 SF 2068 | Health Insurance Nondiscrimination, Privacy, Research | Died | This bill prohibits health insurers from discriminating based on genetic information or tests. Authorization is required to obtain genetic information or samples. Consent requirements are established to collect, retain, transmit or use genetic information. Exceptions under consent requirements include medical or scientific research and eduction and for use in medical repositories and registries if it does not contain personally identifiable information. Health insurers may not release genetic information without prior written authorization. Exceptions for release requirements include (1) if an individual is participating in research settings, including those governed by the federal policy for the protection of human subjects, and (2) tests conducted purely for research. Measure failed. |
New York | 2018 State Bills New York 2018 A10229 | Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Died | Prohibits discrimination based on the results of a genetic test or the provision of genetic information. Insurers may not require and applicant to undergo a genetic test or answer questions about genetic testing. Died. |
Maryland | 2018 State Bills Maryland 2018 HB 1516 | Health Insurance Nondiscrimination | Died | Establishing Healthy Maryland as a public corporation and a unit of State government to provide comprehensive universal health coverage for every Maryland resident. The Health Maryland Board must develop rules to promote nondiscrimination with respect to genetic information among members and providers. Died. |
Rhode Island | 2021 State Bills Rhode Island 2021 H5081 | Health Insurance Coverage | Died | Establishes a rare disease medication reinsurance fund. Creates and establishes funding for a rare disease medication advisory council. Based on information from the Secretary of Health and Human Services, the council must recommend the drugs to be covered, an assessment rate, and a funding distribution method. The council must recommend for inclusion only those medications that are high cost prescription drugs, gene therapies or cell therapies designated as orphan drugs by the federal drug administration. 2/23/2021 Committee recommended measure be held for further study. Died. |
Washington | 2018 State Bills Washington 2018 HB 2565 | Health Insurance Coverage | Died | Substitute bill version: Requires the drug utilization review board to consider the safety, efficacy, and cost-effectiveness of drugs and gene therapies in its recommendations to the director of the authority regarding coverage for medical assistance programs. Died. |
Massachusetts | 2017 State Bills Massachusetts 2017 S.95 | Privacy | Died | Protects biometric information under the security breach law. Biometric information includes genetic information. Died. |
Mississippi | 2013 State Bills Mississippi 2013 HB 1532 | Employment Nondiscrimination, Health Insurance Nondiscrimination | Died | Prohibits any employer or insurer from using the results of DNA testing against a patient or against the patient's consanguineous family members for any discriminatory purpose. Any employer who violates this section may, upon conviction, be fined up to Five Thousand Dollars ($5,000.00) or imprisoned for not more than one (1) year, or both. Died. |
Connecticut | 2015 State Bills Connecticut 2015 HB 5832 | Health Insurance Coverage | Died | Adds tomosynthesis to health_insurance_coverage requirements if a woman is believed to be at increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing or other indications as determined by a woman's physician or advanced practice registered nurse. Died. |
New Jersey | 2017 State Bills New Jersey 2017 A2073 | Privacy | Died | Makes confidential any part of a 9-1-1 audio recording or transcript that discloses a person's health status, medical conditions, health care services or treatments, medical history, genetic information, or current health insurance plan information by excluding it from the definition of a government record. Died. |
Idaho | 2014 State Bills Idaho 2014 SB 1385 | Privacy | Died | Unless explicitly mandated by federal statute, a state agency, district or education institution must obtain written consent from parents or eligible students before collecting biometric records, defined to include a DNA sequence. Died. |
New York | 2013 State Bills New York 2013 S4284 | Privacy | Died | Prohibits the release of personally identifiable student information, including DNA sequence, where parental consent is not provided. Died. |
Maryland | 2010 State Bills Maryland 2010 HB 504 | Employment Nondiscrimination | Died | This bill amends the employment discrimination law to state that an unlawful employment practice is established, including discrimination based on genetic information, when the complainant demonstrates that genetic information was a motivating factor for any employment practice even though other factors motivated the practice. Measure failed. |
North Dakota | 2021 State Bills North Dakota 2021 HB 1147 | Health Insurance Coverage | Died | Requires the public employees retirement board to provide coverage for the expenses of the diagnosis of infertility, fertility treatment, and standard fertility preservation services if recommended and medically necessary. Fertility treatment includes genetic testing. Died. |
Vermont | 2020 State Bills Vermont 2020 H625 | Health Insurance Coverage | Died | Requires health insurance and Medicaid coverage for chromosomal microarray analysis. Died. |
Wisconsin | 2020 State Bills Wisconsin 2020 SB 851 | Privacy | Died | Establishes requirements for businesses related to personal information such as biometric information collected about consumers. Biometric information is defined to include DNA. 4/1/2020 Failed to pass pursuant to Senate Joint Resolution 1. |
Minnesota | 2009 State Bills Minnesota 2009 HF 1341 | Use of Residual Newborn Screening Specimens | Died | This bill excludes the health department's collection, use, storage and dissemination of genetic information and blood specimens for testing infants for heritable and congenital disorders from the law governing genetic information collected by a government entity. The bill also requires that parents are provided information about how specimens may be used and allows parents to opt out of public health studies or research. Measure failed. |
Arkansas | 2015 State Bills Arkansas 2015 HB 1827 | Privacy | Died | Enacts the Parents' Bill of Rights. A parent must consent in writing before a biometric scan of a minor child or a record of a minor child's blood or DNA is created, shared, or stored. April 2, 2015 Recommended for study in the Interim by Joint Interim Committee on JUDICIARY COMMITTEE- HOUSE |
Montana | 2010 State Bills Montana 2010 HB 128 | Health Insurance Nondiscrimination | Died | This bill amends the health insurance statutes and prohibits a group health plan or a health insurance issuer offering group health_insurance_coverage from imposing a preexisting condition exclusion on an individual under 19 years of age because of a preexisting condition. Genetic information may not be treated as a pre-existing condition under existing law. Measure failed. |
Florida | 2019 State Bills Florida 2019 SB 1486 | Health Insurance Nondiscrimination | Died | Creates Healthy Florida Program for purpose of comprehensive universal single-payer health care coverage. The Board of the program must establish requirements and standards to promote nondiscrimination, including based on genetic information. Died. |
New Mexico | 2019 State Bills New Mexico 2019 SB 24 | Employment Nondiscrimination | Died | Creates the Workplace Harassment Prevention and Education Section of the Human Rights Bureau. The section is responsible for enforcing unlawful workplace harassment policies, including those that pertain to harassment based on genetic information. Died. |
Kentucky | 2018 State Bills Kentucky 2018 HB 188 | Privacy | Died | Requires certain information holders to encrypt personally identifiable data, which is defined to include a genetic print. Information holders must report a breach of personally identifiable information to consumers. Died. |
Last updated: February 8, 2024