Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status Sort descending | Summary |
---|---|---|---|---|
Virginia | 2019 State Bills Virginia 2019 HB 2083 | Employment Nondiscrimination | Died | Requires each legislative branch agency to adopt and implement the Commonwealth Workplace Harassment Policy established by the Department of Human Resource Management. Workplace harassment is defined to include harassment based on genetic information. Died. |
California | 2017 State Bills California 2017 AB 728 | Health Insurance Coverage | Died | Prohibits a health care service plan contract or a health insurance policy that covers prescription drug benefits from denying or otherwise limiting coverage of a genetically targeted drug for the treatment of Duchenne muscular dystrophy under specified circumstances. Died. |
Florida | 2021 State Bills Florida 2021 HB 969 | Privacy | Died | Creates the Florida privacy Protection Act. Requires collectors to provide notice to consumers about data collection and selling practices. Provides consumers right to request data be disclosed, deleted, or corrected and to opt-in or opt-out of sale or sharing of such data. Provides nondiscrimination measures, methods for requesting data and opting-in or opting-out of sale or sharing of such data, private cause of action, enforcement, and jurisdiction. Personal information is defined to include biometric information such as DNA. 4/30/21 Died in returning messages. |
Louisiana | 2012 State Bills Louisiana 2012 HB 637 | Employment Nondiscrimination | Died | This bill changes the person in charge of promulgating regulations for genetic monitoring from the executive director of the Louisiana Workforce Commission to the chairman of the Louisiana Commission on Human Rights. Measure failed. |
Maryland | 2020 State Bills Maryland 2020 HB 784 | Privacy | Died | Requires certain businesses that collect a consumer's personal information, including biometric information such as an individual's DNA, to provide certain clear and conspicuous notices to the consumer at or before the point of collection. Authorizes a consumer to submit a certain request for information to a business that collects the consumer's personal information. Requires a business to comply with a request for information within 45 days after receiving a request. Died. |
Massachusetts | 2011 State Bills Massachusetts 2011 S.1080 | Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination, Privacy, Research, Use of Residual Newborn Screening Specimens | Died | This bill creates the Genetic Bill of RIghts. Genetic information is declared the exclusive property of the individual from whom the information is obtained. The bill also prohibits disclosure of genetic information without informed written consent. The bill excludes newborn screening blood specimens from the definition of genetic information. The bill also excludes research from consent requirements when genetic information is held by particular entities if the information is confidential research information for use in epidemiological or clinical research conducted for the purpose of generating scientific knowledge about genes or learning about the genetic basis of disease or for developing pharmaceutical and other treatments of disease. Measure failed. |
Minnesota | 2019 State Bills Minnesota 2019 HF 112 | Privacy | Died | Modifies existing law pertaining to the use of genetic information by government entities and enacts a new consumer protection law regarding the use of genetic information. Died. |
New Hampshire | 2013 State Bills New Hampshire 2013 HB 312 | Privacy | Died | This bill restricts the collection of biometric data, including DNA or RNA, by state agencies, municipalities, and political subdivisions. Died. |
New York | 2009 State Bills New York 2009 S935 | Health Insurance Nondiscrimination | Died | his bill prohibits the use of genetic information for community rating to develop small group health insurance premiums. The bill also prohibits pre-existing condition exclusions in small group health insurance policies based on genetic predisposition. Measure failed. |
Illinois | 2021 State Bills Illinois 2021 HB 2880 | Privacy | Died | Amends the Personal Information Protection Act. Provides that individuals and entities have intellectual property rights in their digital identity assets. Provides for the payment of royalties to individuals and entities for access, for the purpose of commercial advertising, to their digital assets. Digital assets include, but are not limited to, information accumulated regarding an individual's or entity's personal information. Personal information includes medical history such as RNA and DNA profiles and genetic history. Carries over to 2022 session. |
New York | 2020 State Bills New York 2020 A10583 | Privacy | Died | Imposes requirements for the collection and use of emergency health data and personal information and the use of technology to aid during the COVID-19 public health emergency. Requires entities using technology to get consent from individuals and to disclose certain information including the right to privacy and who will have access to the data. Emergency health data is defined to include genetic data. Died. |
Texas | 2017 State Bills Texas 2017 HB 3491 | Privacy | Died | Limits the use of biometric identifiers by governmental bodies. Biometric identifiers are defined to include a DNA sample. Died. |
West Virginia | 2021 State Bills West Virginia 2021 SB 567 | Health Insurance Nondiscrimination | Died | Requires health benefit plans to provide insurance to persons without regard to their health status. Prohibits insurers from using genetic information in decisions regarding premium, deductible, copay or coinsurance. 3/5/2021 To Senate Banking and Insurance Committee. Died. |
Connecticut | 2021 State Bills Connecticut 2021 HB 5364 | Other Topics | Died | Creates a penalty for the unauthorized public photography of an individual with a genetic or medical condition. Died. |
Illinois | 2015 State Bills Illinois 2015 HB 887 | Privacy | Died | Requires health insurance providers to protect health information related to sensitive services. A 2016 House Amendment would define sensitive services to include genetic testing. Died. |
Maryland | 2014 State Bills Maryland 2014 SB 227 | Other Topics | Died | Repeals a prohibition on advertising for or soliciting business related to direct to consumer genetic testing in the State. Died. |
Maryland | 2017 State Bills Maryland 2017 SB 660 | Research | Died | Requiring hospital administrators to provide patients with a specified patient's bill of rights. The bill of rights addresses patient participation in research. Died. |
Michigan | 2017 State Bills Michigan 2017 SB 322 | Employment Nondiscrimination | Died | Requires employers of 50 people or more to post a notice that it is illegal under federal law to pay employees different wages for the same work based on certain criteria, including genetic information. Died. |
Missouri | 2019 State Bills Missouri 2019 HB 783 | Privacy | Died | Prohibits school districts from collecting biometric information on students without the express written consent of parents or legal guardians. Biometric information is defined to include a DNA sequence. Died. |
New Mexico | 2011 State Bills New Mexico 2011 SB 205 | Employment Nondiscrimination | Died | This bill enacts the Uniform Protection of Genetic Information in Employment Act on employee access to genetic information, confidentiality and retention of genetic information and disclosure of genetic information. Measure failed. |
New York | 2018 State Bills New York 2018 S7555 | Privacy | Died | Enacts the Personal Information Protection Act. Establishes a personal information bill of rights requiring parties having custody of residents' personal identifying information to ensure the security of this information. Personal information includes DNA samples. Died. |
South Dakota | 2007 State Bills South Dakota 2007 HB 1166 | Health Insurance Nondiscrimination | Died | This bill prohibits pre-existing condition exclusions based on genetic information in the absence of a diagnosis. Measure failed. |
Washington | 2019 State Bills Washington 2019 HB 2046 | Privacy | Died | Seeks to increase consumer data transparency. The bill address consumer biometric information, which is defined to include DNA. Died. |
Connecticut | 2021 State Bills California 2021 HB 5017 | Health Insurance Coverage | Died | Requires health_insurance_coverage for genetic cystic fibrosis screenings for women. Died. |
Hawaii | 2017 State Bills Hawaii 2017 HB 1573 | Health Insurance Coverage | Died | Requires all individual accident and health or sickness insurance policies, all individual and group hospital and medical service corporation contracts, and all group or blanket disability policies that provide coverage for reproductive health to include certain services in reproductive health service coverage. The services listed include genetic screening and counseling related to BRCA1 and BRCA2 genetic mutations. Died. |
Maine | 2021 State Bills Maine 2021 LD 1655 | Privacy | Died | Establishes annual registration of data brokers. Requires data brokers to develop, implement and maintain a comprehensive information security program to protect personally identifiable information. Personally identifiable information includes genetic identifiers. Ought Not to Pass Pursuant To Joint Rule 310, Jun 2, 2021. |
Massachusetts | 2017 State Bills Massachusetts 2017 H.3575 | Health Insurance Coverage | Died | The public employee retirement commission, individual and group accident and sickness insurers, individual or group hospital service plans, individual or group medical service agreements, and individual or group health maintenance contracts must cover colorectal cancer screening as determined medically necessary by a physician. Coverage requirements include KRAS, BRAF, and PIK3CA arrays. 7/18/2018 Accompanied a study order, see H4778. |
Mississippi | 2008 State Bills Mississippi 2008 HB 364 | Health Insurance Nondiscrimination, Privacy | Died | This bill creates the Genetic Information Nondiscrimination in Health Insurance Act, which prohibits health benefits plans from denying, refusing or canceling health insurance benefits or coverage on the basis of genetic information or a request or receipt of genetic services. The bill also prohibits health benefit plan insurers from requesting or requiring a genetic test and from disclosing genetic information without prior written authorization. Penalties for violations are set forth. Measure failed. |
New Hampshire | 2019 State Bills New Hampshire 2019 SB 316 | Privacy | Died | Prohibits information or service providers from directly or indirectly transferring, disclosing or otherwise making available to any person or government any personal information, including genetic profiles and DNA/RNA, related to individuals without written consent. Died. |
New York | 2013 State Bills New York 2013 A3761 | Health Insurance Coverage | Died | Requires health insurance policies to cover comprehensive genetic screening for breast, ovarian, prostate, colon and lung cancers if recommended by a board-certified geneticist or board-certified genetic counselor. Died. |
North Carolina | 2017 State Bills North Carolina 2017 SB 84 | Employment Nondiscrimination, Health Insurance Nondiscrimination, Other Topics, Other Lines of Insurance Nondiscrimination | Died | Declares that it is the public policy of the State to protect and safeguard the right and opportunity of all individuals to (1) enjoy fully and equally the goods, services, facilities, privileges, advantages, and accommodations of places of public accommodations free of discrimination; and 2) seek, obtain and hold employment without discrimination or abridgement on account of certain characteristics, including genetic information. Also prohibits insurers from refusing to insure or refusing to continue to insure an individual, limit the amount, extent, or kind of coverage available to an individual, or charge an individual a different rate for the same coverage, based on genetic information. School boards also must adopt a policy to establish that the local board of education and school personnel employed by the local board may not discriminate based on genetic information. Charter and nonpublic schools may not discriminate based on genetic information. Died. |
Utah | 2020 State Bills Utah 2020 HB 231 | Employment Nondiscrimination, Health Insurance Nondiscrimination | Died | Removes provisions regulating an employer's and a health insurer's use of personal genetic information. Died. |
Wisconsin | 2019 State Bills Wisconsin 2019 AB 396 | Employment Nondiscrimination | Died | Allows the Department of Workforce Development or an individual who is alleged or was found to have been discriminated against or subjected to unfair honesty or genetic testing to bring an action in circuit court in addition to or in lieu of filing an administrative complaint, with some exceptions. 4/1/2020 Failed to pass pursuant to Senate Joint Resolution 1. |
Alaska | 2016 State Bills Alaska 2016 HB 369 | Privacy | Died | Excludes DNA samples collected in the course of the person's business of determining genetic genealogy from the state genetic privacy law. Died. |
Florida | 2010 State Bills Florida 2010 SB 2268 | Employment Nondiscrimination | Died | This bill prohibits appointments, terminations, assignments, and maintenance of status, compensation, privileges and other terms and conditions of employment in the state personnel system based on genetic information. Measure failed. |
Indiana | 2019 State Bills Indiana 2019 SB 204 | Health Insurance Nondiscrimination | Died | Specifies that a state employee health plan, a policy of accident and sickness insurance, and a health maintenance organization contract must provide for availability, renewability, premium rating, and coverage without regard to health status, including genetic information. Died. |
New York | 2015 State Bills New York 2015 A299 | Health Insurance Coverage | Died | The bill requires every policy of hospital, surgical or medical care or policies that provide reimbursement for laboratory tests or diagnostic X-rays must provide coverage for testing of familial dysautonomia, Canavan's disease and Tay-Sachs. Died. |
Oklahoma | 2011 State Bills Oklahoma 2011 SB 836 | Employment Nondiscrimination | Died | This bill amends statutes pertaining to discriminatory practices in employment, housing, and public accommodations. The bill provides exclusive remedies for individuals alleging discrimination in employment on the basis of genetic information. Measure failed. |
Virginia | 2007 State Bills Virginia 2007 HB 2120 | Health Insurance Nondiscrimination | Died | This bill prohibits the treatment of genetic information as a preexisting condition in the Small Employer Health Insurance Exchange in the absence of a diagnosis of the condition related to such information. Measure failed. |
Arizona | 2020 State Bills Arizona 2020 SB 1617 | Other Topics | Died | Prohibits placing an inmate in isolated confinement based on certain factors, including genetic information. Died. |
Florida | 2019 State Bills Florida 2019 HB 879 | Other Lines of Insurance Nondiscrimination | Died | Prohibits life insurers and long-term care insurers from basing decisions on genetic information. Prohibits these insurers from taking certain actions related to genetic information for any insurance purpose. Died. |
Kentucky | 2017 State Bills Kentucky 2017 SB 59 | Privacy | Died | Any agency that collects, maintains, or stores personal information that determines or is notified of a security breach relating to personal information collected, maintained, or stored by the agency or by a nonaffiliated third party on behalf of the agency must take specified actions. Personal information includes a genetic print or image. Agencies covered under the law include the executive branch of state government, local government and public educational institutions. Died. |
Maryland | 2019 State Bills Maryland 2019 SB 613 | Privacy | Died | Enacts the Online Consumer Protection Act. Defines biometric information to include an individual's DNA. Died. |
Maryland | 2021 State Bills Maryland 2021 HB 1256 | Other Topics | Died | Requires the Maryland Department of Health to do the following: (1) by January 1, 2023, develop gene sequence and customer screening guidelines for gene synthesis providers and manufacturers of gene synthesis equipment that include certain requirements; (2) develop a process to certify that gene synthesis providers and manufacturers of gene synthesis equipment are in compliance with the guidelines requiring, on or after January 1, 2024, the Department to certify certain gene synthesis providers and equipment manufacturers. Gene synthesis provider does not include a research scientist making gene synthesis products for the research scientist's own use or for use by another research scientist. In the House - Withdrawn by Sponsor. Died. |
Minnesota | 2010 State Bills Minnesota 2010 HF 1681 | Other Topics | Died | This bill requires any person who provides a specimen collection kit to a resident of Minnesota for the purpose of collecting genetic material to perform a genetic test to first provide the resident with the disclosure, as described in the legislation. The bill also requires a study to determine which companies and laboratories are providing direct-to-consumer genetic tests to Minnesota residents. Measure failed. |
Montana | 2015 State Bills Montana 2015 HB 501 | Privacy | Died | This bill requires parental consent or consent from a student 18 years or older prior to collecting or recording biometric data, which is defined to include a DNA sequence. Died. |
New York | 2007 State Bills New York 2007 S2696 | Health Insurance Nondiscrimination | Died | This bill prohibits the use of genetic information for community rating to develop small group health insurance premiums. The bill also prohibits pre-existing condition exclusions in small group health insurance policies based on genetic predisposition. Measure failed. |
New York | 2019 State Bills New York 2019 A5976 | Employment Nondiscrimination | Died | Prohibits discrimination or harassment based predisposing genetic characteristics of non-employees in the workplace. Died. |
Tennessee | 2020 State Bills Tennessee 2020 HB 2567 | Privacy | Died | Establishes the parent's bill of rights. Requirements set forth in the bill include parental written consent before any record of a minor child's blood or DNA is made, shared or stored unless required by law or court order. Died. |
West Virginia | 2009 State Bills West Virginia 2009 HB 2720 | Employment Nondiscrimination, Health Insurance Nondiscrimination, Privacy, Research | Died | This bill creates the Genetic Information privacy Act. Genetic testing and genetic information derived from testing may be released only to the individual tested or people specifically given written authorization to receive the information by the individual. Accident and health insurers may not request or seek information derived from genetic testing. If the federal government or others propose guidelines, the bill authorizes the insurance commissioner to propose rules to authorize further disclosure of information derived from genetic testing for insurance purposes beyond what is permitted in the legislation. The bill requires employers to treat information derived from genetic testing in a manner consistent with federal law, including but not limited to the Americans with Disabilities Act. Exclusions under the definition of genetic testing includes research governed by the Common Rule, tests conducted purely for research, tests for somatic as opposed to heritable mutations, tests where direct personal identifiers that reveal the patients identity are encoded or encrypted and tests that are composed of de-identified or anonymized information. Penalties for violations are set forth. Measure failed. |
Last updated: February 8, 2024