Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status Sort descending | Summary |
---|---|---|---|---|
West Virginia | 2019 State Bills West Virginia 2019 HB 2224 | Health Insurance Coverage | Died | Requires insurance coverage of a comprehensive ultrasound screening of breast if a woman is believed to be at increased risk of cancer based on several factors, including positive genetic testing. Died. |
Connecticut | 2021 State Bills Connecticut 2021 SB 893 | Privacy | Died | Establishes a framework for controlling and processing personal data. Establishes responsibilities and privacy protection standards for data controllers and processors. Grants consumers the right to access, correct, delete and obtain a copy of personal data and to opt out of the processing of personal data for the purposes of targeted advertising. Sensitive data is defined as personal data that includes the processing of genetic or biometric data for the purpose of uniquely identifying a natural person. Died. |
Illinois | 2019 State Bills Illinois 2019 SB 2263 | Privacy | Died | Establishes consumer rights to copies of information held by persons who control and process data. Provides for the correction of inaccurate data. Provides for restrictions on the use of personal data. Defines health care information to include a patient's deoxyribonucleic acid. Died. |
Maryland | 2015 State Bills Maryland 2015 SB 548 | Privacy | Died | This bill amends the Personal Information Protection Act, which governs the use of personal information contained in the records of certain businesses. The definition of personal information is amended to include an individual's unique biometric or genetic print. In the Senate. Died. |
Massachusetts | 2019 State Bills Massachusetts 2019 S.939 | Employment Nondiscrimination | Died | Adds new section to unlawful employment practices statute. Prohibits any person whose business includes sponsoring, guaranteeing or granting funds or engaging in investment transactions from discriminating against any person in the sponsoring, guaranteeing or granting of funds or making available such funds, because of genetic information and other factors. 11/16/2020 Accompanied a study order, see S2953. Died. |
Mississippi | 2018 State Bills Mississippi 2018 SB 2406 | Health Insurance Coverage | Died | Requires group or individual policies, contracts or certificates of health insurance issued or renewed to cover comprehensive ultrasound screening of an entire breast or breasts if a woman is believed to be at increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing or other indications as determined by a woman's physician or advanced practice registered nurse. 1/30/2018 Died in committee. |
New Jersey | 2020 State Bills New Jersey 2020 A1170 | Privacy | Died | Makes DNA samples and genetic information resulting from DNA analysis property of the person sampled or analyzed. Died. |
New York | 2017 State Bills New York 2017 A1803 | Health Insurance Coverage | Died | Requires accident and health insurance policies to cover the cost of genetic testing of persons with a family history of cancer. Coverage must include testing and any subsequent treatment based on the results of the test for people with a significant risk of contracting cancer. Died. |
Oklahoma | 2019 State Bills Oklahoma 2019 HB 2455 | Other Topics | Died | Prohibits unlawful housing discriminatory practices based on genetic information. Died. |
Virginia | Virginia HB 1077 | Parentage law | Died | Provides that |
California | 2019 State Bills California 2019 AB 1020 | Employment Nondiscrimination | Died | Prohibits licensing boards from requiring an examination or establishing any qualification for licensing that has an adverse impact on any class because of various attributes, including genetic information. Died. |
Georgia | 2014 State Bills Georgia 2014 SB 167 | Privacy, Use of Residual Newborn Screening Specimens | Died | Prohibits the collection of student or family information by any state agency, local school system or educational institution, including biometric data (defined to include DNA sequence and newborn screening information), except as may be necessary to facilitate the instruction of special needs students or students participating in school physical education and athletic programs. Died. |
Louisiana | 2021 State Bills Louisiana 2021 HB 455 | Other Lines of Insurance Nondiscrimination | Died | Applies provisions that prohibit the use of genetic testing for health insurance and underwriting purposes to life and long-term care insurance policies. Applies prohibitions for unfair or deceptive acts or practices on the basis of genetic information to life and long-term care insurance policies. Died. |
Maryland | 2020 State Bills Maryland 2020 SB 274 | Privacy | Died | Amends the definition of biometric information under the Maryland Data privacy act. The definition of biometric information referring to a genetic print is stricken. The revised definition of biometric information includes physiological, biological, or behavioral characteristics, including an individual's DNA, that can be used singly, in combination with each other, or with other identifying data to establish individual identity. Died. |
Massachusetts | 2017 State Bills Massachusetts 2017 H.1985 | Privacy | Died | Adds biometric indicators to the state data security protection law. Biometric indicator is defined as any unique biological attribute or measurement that can be used to authenticate the identity of an individual, including but not limited to fingerprints, genetic information, iris or retina patterns, facial characteristics, or hand geometry. Died. |
Minnesota | 2020 State Bills Minnesota 2020 SF 4247 | Privacy | Died | Establishes the Minnesota Consumer Data privacy Act. Gives various rights to consumers regarding personal data. Personal data includes the processing of genetic or biometric data for the purpose of uniquely identifying a person. Places obligations on businesses regarding consumer data. Died. |
New Hampshire | 2019 State Bills New Hampshire 2019 HB 536 | Privacy | Died | Adds biometric information to the Consumer Protection Act. Died. |
New York | 2013 State Bills New York 2013 A1153 | Employment Nondiscrimination, Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Died | This bill establishes a genetics advisory council to study various topics, including the use of any genetic test by insurers, employers or educational institutions, including the potential for compromising the individual liberties and civil rights of individuals or causing individuals to suffer unfair discrimination. Died. |
North Carolina | 2017 State Bills North Carolina 2017 HB 82 | Employment Nondiscrimination, Health Insurance Nondiscrimination, Other Topics, Other Lines of Insurance Nondiscrimination | Died | Prohibits discriminatory housing practices based on protected status, which includes genetic information. Declares that it is the public policy of the State to protect and safeguard the right and opportunity of all individuals to seek, obtain and hold employment without discrimination or abridgement on account of certain characteristics, including genetic information. Also prohibits insurers from refusing to insure or refusing to continue to insure an individual, limit the amount, extent, or kind of coverage available to an individual, or charge an individual a different rate for the same coverage, based on genetic information. School boards also must adopt a policy to establish that the local board of education and school personnel employed by the local board may not discriminate based on genetic information. Charter and nonpublic schools may not discriminate based on genetic information. Died. |
Texas | 2021 State Bills Texas 2021 SB 16 | Privacy | Died | Prohibits a state agency from disseminating to any person any personal data of an individual without the individual �s written consent. A state agency must retain the written consent of an individual obtained per certain requirements. A state agency may not require an individual to consent to dissemination of the individual�s personal data in exchange for access to the services provided by the agency or to the agency�s Internet website. 3/3/2021 Referred to Finance. Died. |
Wisconsin | 2017 State Bills Wisconsin 2017 AB 363 | Health Insurance Nondiscrimination | Died | Amends health insurance law pertaining to pre-existing conditions. Insurers may not treat genetic information as a pre-existing condition. Provision stating "without a diagnosis of a condition related to the information" is stricken. 3/28/2018 Failed to pass pursuant to Senate Joint Resolution 1. |
Arizona | 2007 State Bills Arizona 2007 HB 2629 | Health Insurance Coverage | Died | This bill requires hospital or medical service corporations, health care service organizations, and individual, group and blanket disability insurers who provide health care coverage to pregnant women to cover the cost of genetic testing for thrombophilia if it is ordered by a physician. Measure failed. |
Florida | 2013 State Bills Florida 2013 SB 982 | Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Died | This bill amends Florida's health_insurance_nondiscrimination law. The bill removes the exemption for life, disability and long-term care insurance under existing law and states that the law applies to other lines of insurance. Died. |
Iowa | 2018 State Bills Iowa 2018 HF 2352 | Health Insurance Nondiscrimination | Died | Establishes the Healthy Iowa program. Residents of the state are entitled to enroll. Discrimination is prohibited with respect to members and providers based on genetic information. Died. |
Maryland | 2019 State Bills Maryland 2019 HB 1087 | Health Insurance Nondiscrimination | Died | Establishes the Healthy Maryland Program. Requires the Board to establish requirements and standards to consistent with state nondiscrimination laws, including those pertaining to genetic information. Participating providers may not refuse to provide health care services on the basis of genetic information. 3/28/2019 Unfavorable Report by Health and Government Operations. Withdrawn. |
Michigan | 2013 State Bills Michigan 2013 SB 568 | Privacy | Died | This bill requires the Department of Community Health to develop a model written, informed consent form for genetic testing. Health care professionals must have test subjects complete the form prior to ordering genetic testing. Died. |
Missouri | 2016 State Bills Missouri 2016 SB 989 | Privacy | Died | Requires state education agencies to obtain parental consent to collect biometric records from parents, K-12 students or through data sharing agreements with any other entity. Biometric records are defined to include DNA sequences. Died. |
New Jersey | 2021 State Bills New Jersey 2021 A5354 | Employment Nondiscrimination, Other Topics | Died | Requires adoption of and training on anti-discrimination and anti-harassment policy by certain campaign committees. Protected category includes genetic information. Died. |
New York | 2018 State Bills New York 2018 A8847 | Other Topics | Died | Prohibits the distribution of consumers' DNA profiles submitted to direct-to-consumer genetic testing companies. Requires companies to provide a copy of their privacy policy to any consumer that submits a DNA sample and provides for civil penalties for violations of these provisions. Died. |
South Carolina | 2010 State Bills South Carolina 2010 HB 4298 | Health Insurance Nondiscrimination, Privacy, Research | Died | This bill amends existing statute sections and creates new statute sections pertaining to health_insurance_nondiscrimination, genetic privacy, research issues and enforcement of these provisions. Measure failed. |
Washington | 2019 State Bills Washington 2019 HB 1854 | Privacy | Died | Protects consumer data. Original version of bill included genetic data in the definition of sensitive information, but it was removed from the substitute bill version. 1/13/2020 By resolution, reintroduced and retained in present status. Rules Committee relieved of further consideration. Died. |
California | 2021 State Bills California 2021 SB 480 | Other Topics | Died | require the Metropolitan Water District of Southern California to adopt rules relating to inappropriate conduct, as defined, by board members, officers, and employees. Inappropriate conduct is defined as any conduct toward others that is physical, verbal, or visual based on or because of various characteristics, including genetic information. Carries over to 2022. |
Hawaii | 2019 State Bills Hawaii 2019 HB 1087 | Health Insurance Coverage | Died | Requires health insurers, mutual benefit societies and health maintenance organizations to provide coverage for: (1) screening to determine whether counseling and testing related to the BRCA1 or BRCA2 genetic mutation is indicated; and (2) genetic counseling and testing related to the BRCA1 or BRCA2 genetic mutation, if indicated. Died. |
Maryland | 2009 State Bills Maryland 2009 HB 11 | Health Insurance Nondiscrimination | Died | This bill provides an individual with a right to civil if the state genetic nondiscrimination insurance statutes are violated. Measure failed. |
Washington | 2020 State Bills Washington 2020 SB 6664 | Privacy | Died | Establishes the parent's bill of rights. Requirements set forth in the bill include parental written consent before any record of a minor child's blood or DNA is made, shared or stored unless required by law or court order. Died. |
Connecticut | 2017 State Bills Connecticut 2017 SB 586 | Health Insurance Coverage | Died | Requires individual and group health insurers to provide coverage for breast cancer chemoprevention counseling, risk assessment, genetic testing and counseling for any woman who is at increased risk for breast cancer due to family history, prior personal history of breast cancer, positive genetic testing or other indications as determined by a health care provider. Died. |
Illinois | 2007 State Bills Illinois 2007 SB 940 | Privacy | Died | This bill was introduced as an amendment to the Genetic Information privacy Act. All language was stricken in a senate amendment and new language was added related to firearms. |
Maryland | 2013 State Bills Maryland 2013 HB 959 | Privacy | Died | Sets forth requirements for governmental units, including an executive, legislative or judicial agency, a department, a board, a commission, an authority, a public institution of higher education, or a unit or instrument of the state that collects or discloses personal information. Defines personal information to include an individual's genetic print. Died. |
Massachusetts | 2018 State Bills Massachusetts 2018 H.3024 | Other Topics | Died | Prohibits a local or state administrative, legislative or regulatory body or instrumentality to engage in a discriminatory land use practice, including discrimination based on genetic information. Died. |
Mississippi | 2013 State Bills Mississippi 2013 HB 311 | Employment Nondiscrimination | Died | Creates a small business health insurance pool. WIth regard to the pool, genetic information may not be excluded as a preexisting condition in the absence of a diagnosis of the condition related to the genetic information. Died. |
New Jersey | 2017 State Bills New Jersey 2017 S2909 | Employment Nondiscrimination | Died | A person may not refuse to refer a job seeker for employment or to discriminate against a job seeker in compensation or in terms, conditions or privileges of employment to which the job seeker is referred because of certain characteristics, including genetic information. Died. |
New York | 2014 State Bills New York 2014 A8472 | Health Insurance Coverage | Died | Requires health insurance policies to cover comprehensive genetic screening for breast, ovarian, prostate, colon and lung cancers, if recommended by a board-certified geneticist or board-certified genetic counselor. Died. |
Ohio | 2013 State Bills Ohio 2013 SB 88 | Health Insurance Nondiscrimination | Died | This bill creates the Ohio Health Benefit Exchange. The exchange must meet the minimum requirements of the Patient Protection and Affordable Care Act of 2010. Died. |
Vermont | 2021 State Bills Vermont 2021 H233 | Other Topics, Privacy | Died | Protects consumer privacy by requiring that a business that collects genetic data from a Vermont consumer to provide ancestry or similar information protects the data and keeps it confidential. Carries over to 2022. |
California | 2009 State Bills California 2009 SB 145 | Other Topics | Died | This bill prohibits the denial of a workers' compensation claim solely because the motivation behind what caused the employee's injury or injury resulting in death was related to an immutable characteristic of the employee. The bill also states that physicians assigning apportionment to the causes of permanent disability by finding what approximate percentage of the disability is a direct result of the employment-related injury versus other factors may not consider genetic predisposition a cause or other factor of disability. Measure failed. |
Florida | 2019 State Bills Florida 2019 SB 258 | Other Topics, Other Lines of Insurance Nondiscrimination | Died | Prohibits life insurers, long-term care insurers, and disability income insurers from certain actions relating to genetic information or genetic testing of applicants. Prohibits these insurers from taking certain actions relating to coverage or rates unless certain conditions are met. Requires entities providing direct-to-consumer genetic testing to obtain prior written authorization to disclose identifying health information to life or health insurers. Died. |
Kentucky | 2019 State Bills Kentucky 2019 SB 152 | Privacy | Died | Creates a parent's right to consent in writing before any record of the minor child�s blood or deoxyribonucleic acid is created, stored, or shared, unless authorized pursuant to a court order or an ongoing criminal investigation. Died. |
Maryland | 2019 State Bills Maryland 2019 SB 953 | Other Topics | Died | A hospital or related institution may not discriminate in admitting or providing personal care based on genetic information. Died. |
Maryland | 2020 State Bills Maryland 2020 SB 738 | Health Insurance Nondiscrimination, Other Topics | Died | Declares that it is the policy of the state to provide affordable health care to all regardless of various factors, including genetic information. Prohibits discrimination based on genetic information by a hospital; a person licensed or otherwise regulated by the Maryland Department of Health; and a person, including a health maintenance organization, that provides health benefits and has a certificate of authority from issued by the Maryland Department of Insurance. Died. |
Minnesota | 2009 State Bills Minnesota 2009 HF 901 | Privacy | Died | This bill amends the definition of genetic information and creates a new section of the state genetic privacy law to separate the provisions that apply to government entities versus any person. The requirements imposed on government entities and any person with respect to written informed consent and appropriate use of genetic information are identical. Measure failed. |
Last updated: February 8, 2024