Search Results
Event
The Ethical Legal and Social Implications (ELSI) Research Program is hosting a webinar to gather specific feedback on four potential goals for the field of ELSI research over the next decade.
… Over the previous year, the NHGRI held numerous related engagement events including town halls, meetings and … Plan. The internal working group that focused on ELSI, engagement and education issues in the Strategic Plan hosted …
Clinical Research
MINI Section invites caregivers of children with mitochondrial disease to participate in a survey about the use of immune therapies in children with mitochondrial disease.
… is to understand how widespread these therapies are in the community, why some people are receiving them and how they … Use of Immunoglobulin Therapy in the Mitochondrial Disease Community … MINI Section invites caregivers of children with …
Outreach
A list of high quality educational activities to engage students on DNA Day.
About Genomics
Educational resources that will spark scientific curiosity, improve genomic literacy, and foster engagement among learners.
… scientific curiosity, improve genomic literacy and foster engagement among learners. … Related Content … Educational … scientific curiosity, improve genomic literacy, and foster engagement among learners. … Educational resources that will … scientific curiosity, improve genomic literacy, and foster engagement among learners. … About Genomics …
Research Training
An opportunity for recent college graduates to spend a year engaged in biomedical research in NHGRI laboratories.
News Release
NIH-backed African scientists are engaged in a global research endeavor to understand the genetic basis of disease in all populations.
News Release
Researchers explored patients', parents' and physicians' perspectives on the use of CRISPR-Cas9 gene-editing to reverse sickle cell disease.
… published December 24 in Genetics in Medicine . "Bringing community voices to the design and recruitment of upcoming … study couldn't come at a better time for the research community." In September, NIH's National Heart, Lung, and … inclusion in the long-term benefits of research. "Engagement and meaningful bi-directional dialogue …
Community Outreach
NHGRI is proud to help support the PBS documentary, “Ken Burns presents The Gene: An Intimate History,” based on the book by Siddhartha Mukherjee, M.D.
… media. It can be adapted to a variety of venues, including community centers, libraries, coffee shops, hospitals, … or researchers to serve as subject matter experts at community panels and screenings. By including these experts in engagement activities, NHGRI hopes to increase genomic …
Tribute
A candid and kind genomics pioneer leaves a deep impact on NHGRI and the genomics community.
… (NHGRI) and a major positive force within the genomics community. Her influence on the lives of people and programs … was a strong catalyst for the University of Washington community. I benefitted from her mentorship in the mid-2000s … pioneer leaves a deep impact on NHGRI and the genomics community. … Debbie Nickerson … Remembering Debbie Nickerson …
News Release
Genome: Unlocking Life's Code exhibition is going on tour after having completed a 14-month engagement at the Smithsonian's National Museum of Natural History.
… is going on tour after having completed a 14-month engagement at the Smithsonian's National Museum of Natural … Genome: Unlocking Life's Code exhibition has enriched our engagement with the public," said Vence L. Bonham, Jr., chief of the Education and Community Involvement Branch in NHGRI's Division of Policy, …