Search Results
Careers and Training
The Health Disparities Unit (HDU) in the Social and Behavioral Research Branch (SBRB) of the National Human Genome Research Institute (NHGRI) is recruiting a postdoctoral fellow interested in the study of the intersection of genomics, social determinants of health and health inequities.
… The Health Disparities Unit (HDU) in the Social and Behavioral Research Branch (SBRB) of the … fellow interested in the study of the intersection of genomics, social determinants of health and health inequities … genetic therapies into health care, as well as societal issues of genomics, race and human genetic variation. …
Policy Issues
In 2008, the Genetic Information Nondiscrimination Act was passed into law, prohibiting discrimination by employers and health insurers.
… Many Americans wonder if participating in genetics research or undergoing genetic testing will lead … genetics-based clinical tests or volunteer to participate in the research needed for the development of new tests, … from discrimination based on their genetic information in both health insurance (Title I) and employment (Title II). …
Policy Issues
Most genetic tests today are not regulated, meaning that they go to market without any independent analysis to verify the claims of the seller.
… As the field of genomics advances, genetic and genomic tests are becoming more common in, and out of, the clinic. Yet most genetic tests today are … oversight of the clinical validity of most genetic tests. In light of this, FDA has proposed new policies to enhance …
Policy Issues
Revisions to the Common Rule modernize, simplify, and enhance oversight for human subjects research in the United States.
… The final version of the Common Rule was published in the Federal Register on January 19, 2017, following the … and enhance" oversight for human subjects research in the United States to address changes in the nature of research since the original publication of …
Policy Issues
Informed consent shows respect for personal autonomy and is an important ethical requirement in research.
… Researchers and research participants should engage in a dialogue to understand the specific considerations … In designing an effective informed consent process for genomics research, researchers should consider the … For instance, the NIH Genomic Data Sharing (GDS) policy expects that researchers obtain consent when they plan …
The Genomics Landscape
In the June 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D. details the upcoming appointment of acting NHGRI Deputy Director, Vence Bonham Jr., J.D. and what it means for the institute.
… is the 5th session of the “ Bold predictions for human genomics by 2030 ” seminar series, which takes place on … fairs.” The second event is the 2021 Healthcare Provider Genomics Education Week , which takes place June 7-11 and … include webinars and Twitter chats (see additional details in the story below). All the best, …
Policy Issues
The GINA is an important U.S. civil rights law that protects individuals from discrimination based on their genetic information.
… It was first introduced into the U.S. Congress in the 1990s at a time when genetic testing and genetics … for their leadership on genetic nondiscrimination issues, but they were assisted by other members of Congress … , S. 1053 ). This same year marks a historical moment for genomics. On April 14th, 2003, the International Human Genome …
The Genomics Landscape
In the December 2024 issue of The Genomics Landscape, NHGRI Director Eric Green highlights the keynote speaker at the institute's annual symposium, Kate Rubins, a biologist and NASA astronaut who was the first person to sequence DNA in space.
… had a wonderful time catching up with so many genetics and genomics colleagues at the American Society of Human Genetics (ASHG) Annual Meeting last month in snowy Denver. In addition to meeting with the ASHG Board of Directors, I … Examining epigenetic aging in the post-mortem brain in attention deficit hyperactivity …
Policy Issues
El uso de seres humanos en las investigaciones biomédicas, clínicas y socioconductuales puede ofrecer entendimiento y descubrimientos que no pudieran obtenerse de ninguna otra manera.
… Protección de Seres Humanos en Investigaciones ( Federal Policy for the Protection of Human Research Subjects ) o … Norteamericanos ( National Congress of American Indians Policy Research Center ), en colaboración con el NHGRI, ha … ( Presidential Commission for the Study of Bioethical Issues ) publicó un informe titulado, Anticipar y comunicar: …
The Genomics Landscape
In the July 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., reflects on the legacy the LINCS program leaves as it has completed its goal of creating a large-scale, systematically generated molecular and cellular dataset.
… telework over the last 17 months will undoubtedly result in some changes to how NIH staff members function, as (like for many aspects in society) we begin defining a “new normal” for our work and lives. Also, in last month’s The Genomics Landscape , I reported my intention to appoint Vence …