Search Results
Policy Issues
Clinical research may yield new health-related information about volunteers who have chosen to participate in the studies.
… When conducting clinical research studies, scientists may discover new health-related … to participate in the studies. This raises the question of when and how it is appropriate for the scientists to look … policymakers, and research participants about the return of individual research results (IRRs) and incidental findings …
Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
… Participating in genomics research is an opportunity to support scientific exploration of the genome and to help NIH in its mission to understand, … may also gain some individual benefit, such as diagnosis of a disease or access to a treatment in development. … A …
Staff
Shirley Freeman is an Intramural Program Assistant for NHGRI's Center for Research on Genomics and Global Health.
… Shirley Freeman is an Intramural Program Assistant for the Center for Research on Genomics and Global Health (CRGGH) housed under … Human Genome Research Institute, National Institutes of Health. Shirley brings over 12 years of administrative …
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… Sheena Faherty, Ph.D. … One goal of the 21st Century Cures Act, enacted December 13, 2016, was to strengthen privacy protections law for research participants. The new law specifically requires … information that is collected from participants as part of federally-funded research. … To implement one of the law's …
News Release
Laura Koehly, Ph.D., has been named chief of NHGRI's Social and Behavioral Research Branch.
… Mjoseth … Laura Koehly, Ph.D., has been named chief of the Social and Behavioral Research Branch (SBRB) in the Intramural Research Program at the National Human Research …
News Release
NHGRI's Stacy Desine earned first place after the finals on June 29, 2018, becoming the first postbac to win the TmT competition.
… students and postdocs at the National Human Genome Research Institute (NHGRI) and other institutes at the National Institutes of Health compete in a high-energy science communications … Academy Enrichment Program, funded by the NIH Office of Intramural Training and Education. Three other postdoctoral …
Clinical Research
FAQs for Autoinflammatory Diseases Study providers and researchers.
… patients who are older than 1 month and who have evidence of autoinflammatory disease (such as persistently elevated … affected family members, giving a stronger indication of genetic disease; however, we will also consider individual … Ivona Aksentijevich if you would like to further discuss research opportunities. … FAQ for Providers and Researchers … …
Clinical Research
This team-based clinical service os provided by NHGRI to Intramural Investigators employing exome/genome sequencing.
… is a team-based clinical service provided by NHGRI to Intramural Investigators employing exome/genome sequencing to accomplish their research goals. The SGFS will annotate de-identified research exome/genome data for the presence of possible actionable secondary variants. Any secondary …
Research Funding
Contacts by Research Area
… Looking for a contact in your research area? Select a category below to find a program … to that topic. About the Categories  … Contacts by Research Area: Search … Contacts by Research Area … Contacts by Research Area … Research Funding …
Research at NHGRI
The Social and Behavioral Research Branch conducts research to apply genomic discoveries to improve health and clinical care.
… The Social and Behavioral Research Branch (SBRB) aims to develop optimal approaches for the integration of genomic discoveries into clinical and community contexts. … Our research focuses on a spectrum of disorders from those that have a major public health …