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Staff
Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office of Genomic Data Science (OGDS) at the National Human Genome Research Institute (NHGRI)
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… Elena Ghanaim is the Policy Advisor for Data Science and Sharing … policy development, oversight, and implementation. Ms. Ghanaim collaborates with international, NIH and grantee … University in 2018. … Biography … Additional Resources … Elena Ghanaim, M.A. … Elena Ghanaim is the Policy Advisor for …
Staff
Cristina Kapustij is the chief of the Policy and Program Analysis Branch at the National Human Genome Research Institute.
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… Branch at the National Human Genome Research Institute. … Elena Ghanaim, NIH Genomic Data Sharing (GDS) Policy, Informed …
AnVIL
The Data Use Oversight System (DUOS) is a semi-automated study registration and DAR management service informed by the GA4GH DUO standard, which enables the secondary use of human genomics and other controlled-access data in compliance with the informed consent of a study’s participants.
… GA4GH 8th Plenary Meeting - DUOS Project  (16:32 - 19:13) Elena Ghanaim, Health Science Policy Analyst, NHGRI NHGRI Policy …
Data Sharing
The NHGRI Data Sharing Governance Committee is responsible for the activities necessary for the Institute to implement and maintain NIH and NHGRI data sharing policies.
… Division of Genomics and Society  Executive Secretary  Elena Ghanaim, M.A. Office of Genomic Data Science  … NHGRI Data …
The Genomics Landscape
In the April 7, 2022 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., highlights the Telomere-to-Telomere (T2T) consortium's publishing of a collection of papers that reported the first truly complete sequence of the human genome.
… Genomic Data Science has recently added new staff members. Elena Ghanaim, M.A. , will serve as the policy advisor for data …
Policies and Guidance
Frequently Asked Questions regarding the GDS Policy expectations for NHGRI-funded genomic research.
… the GDS Policy, contact the NHGRI GDS Policy Analyst, Elena Ghanaim, or the NIH Office of Science Policy’s GDS Mailbox. …
Event
On November 1-5, 2023, the National Human Genome Research Institute (NHGRI) will participate in the ASHG Annual Meeting - the world's largest human genetics and genomics meeting and exposition.  The annual meeting provides a forum for the presentation and discussion of cutting-edge science in all areas of human genetics.Â
… Level 2 November 2, 2023, 7:00 - 8:30 a.m Lisa Chadwick Elena Ghanaim Everything You Ever Wanted to Know About Applying for …
Educational Resources
NHGRI participates in the South By Southwest (SXSW) conference to help increase genomic literacy.
… science and our own healthcare? Panelists: Larry Brody, Elena Ghanaim, Benjamin Berkman … … SXSW 2020 was cancelled due to …
File
… Ganguly , DPCE Sylvia Garvey , ERP Tina Gatlin , ERP Elena Ghanaim , DPCE Bettie Graham , ERP Linda Hall , ERP Lucia …
Strategic Vision
Staff within the institute and colleagues in the genomics community organized and contributed to the >50 events associated with the strategic planning process (e.g., town halls, dedicated workshops, conference sessions, and webinars) and provided critical feedback.
… Francesco NHGRI Malia Fullerton University of Washington Elena Ghanaim NHGRI Katrina Goddard Kaiser Permanente Melissa … of Washington  Eric Gamazon Vanderbilt University Elena Ghanaim NHGRI Richard Gibbs Baylor College of Medicine …