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News Release
NIH issues a notice seeking public comment on a proposed update to the data management of genomic summary results under the NIH Genomic Data Sharing Policy.
… summary results under the NIH Genomic Data Sharing (GDS) Policy. The proposed update to the GDS policy's data management practices would help support NIH's … NIH chief of staff and associate director for science policy, and NHGRI director, Dr. Eric Green. Additionally, …
Policy Issues
There are laws and policies that serve to protect the privacy of individuals' genomic information.
… of the research participants (see Genomic Data Sharing Policy below). In addition, NIH issues Certificates of … Database . The Common Rule Published in 1991, the Federal Policy for the Protection of Human Subjects, also known as … for Genomics Research Resource . NIH Genomic Data Sharing Policy The NIH Genomic Data Sharing Policy sets guidelines …
News Release
Today, we are updating the way we manage data related to the NIH Genomic Data Sharing Policy.
… way we manage data related to the NIH Genomic Data Sharing Policy to again allow unrestricted access to genomic summary … Carrie D. Wollinetz, Ph.D., Associate Director for Science Policy, National Institutes of Health … Related Content … … way we manage data related to the NIH Genomic Data Sharing Policy. … Eric Green, Genome Data Sharing Policy, privacy, …
Event
On December 11, 2023, NHGRI, in collaboration with several other NIH Institutes and Offices, recently renewed the three Notices of Funding Opportunity (NOFOs) used to support investigator-initiated research on the ethical, legal and social implications (ELSI) of human genome research.
… and Offices, recently renewed the three Notices of Funding Opportunity (NOFOs) used to support … hosted an online webinar to provide an overview of the funding opportunities: R01 ( PAR-23-293 ) R21 ( PAR-23-294 ) … ET. … Virtual … Informational Session on the Renewed ELSI Funding Opportunities … On December 11, 2023, NHGRI, in …
Staff
Rebecca Hong is a scientific program analyst in the Policy and Program Analysis Branch at the National Human Genome Research Institute.
… Rebecca Hong is a scientific program analyst for the Policy and Program Analysis Branch (PPAB) at the National … Institute (NHGRI). Her responsibilities in PPAB include policy analysis, policy development, coding and reporting, … coordinate annual budget requests for HIV/AIDS research funding. Ms. Hong graduated from Georgetown University School …
About NHGRI
Answers to frequently asked questions on how the NHGRI receives and uses its funding.
… the testimony, the House of Representatives determines a funding level for NHGRI and sends its recommendation to the … hearings, both bodies of Congress meet to agree on funding levels for all of the institutes and centers of the … implications of the human genome research; consumers; and policy experts. The NIH Center for Scientific Review manages …
Staff
Cristina Kapustij is the chief of the Policy and Program Analysis Branch at the National Human Genome Research Institute.
… Cristina Kapustij, M.S., is chief of the Policy and Program Analysis Branch at the National Human … Kapustij spearheads the branch’s efforts to understand the policy implications of genomics research and technologies, assess policy needs for the field, and develop policy positions on …
Policies and Guidance
NHGRI links to external websites to supplement the information found on our website.
… organizations. You are subject to external site's privacy policy when you leave our site. We proudly comply with 508 … … External Link Disclaimer, Non-federal Websites, Website Policy, Federal Policy, NIH Website Policy … NHGRI links to external websites …
About NHGRI
Information about how the NHGRI receives its funding and decides how to spend its annual budget.
… Human Genome Research Institute (NHGRI) receives its funding through annual Congressional appropriation. … Every … of genetic research, which informs the creation of policy recommendations on the use of genetic information. The NHGRI budget provides funding for a dynamic intramural research program in genetic …
Media Advisory
Researchers from the NIH-funded Human Pangenome Reference Consortium will answer questions about a set of papers to be published in the Nature Portfolio journals and Genome Research. The papers and the briefing are under embargo until May 10, 2023, at 11 a.m. E.T.