Search Results
FAQ
Frequently asked questions from the May 23, 2023 informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… standards available for qualitative interview data? NHGRI recognizes that methods for de-identification of … Services NIST’s tools for de-identification Guidance on sharing images from the National Cancer Imaging Archive The … identifier to facilitate attribution of data use … Is raw genomic sequence data considered identifiable or …
Organizational Structure
NHGRI’s Office of Genomic Data Science (OGDS) provides leadership, strategic guidance and coordination for NHGRI activities, programs and policies in genomic data science.
… selected as a @GA4GH Driver Project! These are real-world genomic data initiatives that help develop and pilot GA4GH standards … Provide guidance for NHGRI’s implementation of NIH data sharing policies , and promote the proper governance, …
Office of Genomic Data Science
NHGRI is committed to increase the availability of educational and research opportunities in computational genomics and data science (CGDS).
… and research opportunities in computational genomics and data science (CGDS). Through recent funding announcements for … cloud workspaces, tools, and services available on NHGRI's Genomic Data Science Analysis, Visualization, and Informatics … based CGDS analyses. Together, the Hub, Sites and NHGRI’s Genomic Data Science Community Network will create a …
News Release
The NHGRI-ASHG Genetics and Public Policy Fellowship prepares scientists for careers in science policy.
… and medical care of Americans is greatly influenced by the policy decisions that guide genomic research and its use in the clinical setting. Understanding the interplay of policy and scientific research is critical to defining good …
About Genomics
NHGRI considers the ethical, legal and social aspect of genomics research in our work, including these key policy issues
… our work, including these key issues. … Related Content … Policy Issues in Genomics … NHGRI considers the ethical, … of genomics research in our work, including these key policy issues. … NHGRI considers the ethical, legal and … of genomics research in our work, including these key policy issues … About Genomics …
Policies and Guidance
Text, graphics, videos, illustrations and other information on NHGRI websites are in the public domain, unless indicated.
… will abide by the same provisions as the NHGRI Copyright Policy. Please read our full external link disclaimer for … product or process disclosed.  … Disclaimers … Copyright Policy … Text, graphics, videos, illustrations and other … the public domain, unless indicated. ​ … NHGRI Copyright Policy, Image Use Policy, Public Domain Imagery, Genomics …
Policies and Guidance
NHGRI does not collect personally identifiable information about you on genome.gov unless you volunteer to provide it.
… Thank you for visiting genome.gov and reviewing our privacy policy. The U.S. Department of Health and Human Services, of … as google.com or bing.com); and, Demographic and interest data. We use this information to measure the number of … or general issues related to genomics research and genomic medicine. In effort to bring science education to the …
NEWS RELEASE
Cristina Kapustij, M.S., was named chief of the NHGRI's Policy and Program Analysis Branch.
… … Cristina Kapustij, M.S., has been named chief of the Policy and Program Analysis Branch (PPAB) at the National … mission is to promote the understanding and application of genomic knowledge to advance human health and society. "Ms. … policy positions on issues arising from the translation of genomic research discoveries to uses within the public …
Policies and Guidance
Frequently Asked Questions regarding the GDS Policy expectations for NHGRI-funded genomic research.
… regarding the GDS Policy expectations for NHGRI-funded genomic research. … Data Types NHGRI encourages sharing of all genomic data and data types including, but not …
About NHGRI
The National Human Genome Research Institute is proposing a reorganization of the Division of Policy, Communications and Education.
… Institute is proposing a reorganization of the Division of Policy, Communications and Education . The proposed … aims to enhance synergies in the areas of bioethics, policy, education, engagement and communication. Notice of … and Comments … Proposed reorganization of the Division of Policy, Communications and Education … The National Human …