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Staff
Cristina Kapustij is the chief of the Policy and Program Analysis Branch at the National Human Genome Research Institute.
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… policy positions on issues arising from the translation of genomic research discoveries to uses within the public … Genome Research Institute. … Elena Ghanaim, NIH Genomic Data Sharing (GDS) Policy, Informed Consent, health privacy …
Research at NHGRI
Families Sharing Health Assessment and Risk Evaluation (SHARE) helps you and your family learn how your family health history affects your risk for diseases.
… Disease Worksheets … Families SHARE Workbooks … Families Sharing Health Assessment and Risk Evaluation (SHARE) helps … diseases. … Families SHARE … Families SHARE … Families Sharing Health Assessment and Risk Evaluation (SHARE) helps … health history affects your risk for diseases. … Families Sharing Health Assessment and Risk Evaluation (SHARE) helps …
News Release
The Genetics and Public Policy and Genetics and Education Fellowships provide a pathway for scientists to pursue careers in science policy or education.
… Sheena Faherty, Ph.D. … Rapid advances in genomic research have led to a wealth of potential clinical … curriculums can be established. … A Pathway to Science Policy and Education Careers One way to ensure that genomic discoveries in the lab drive policy and education for …
The Genomics Landscape
In the April 2024 issue of The Genomics Landscape, NHGRI Director Eric Green details how the Office of Genomic Data Science (OGDS) is becoming the epicenter for genomic data science at the institute, with numerous collaborations, projects and activities.
… of Charles Rotimi, Ph.D. …  With rapid advances in genomic technologies seen over the last two decades, … are now regularly generating massive amounts of genomic data. To meet the growing needs of the field, NHGRI … in genomic data science; and implementing NIH data sharing policies. Now onto its third year of operation, OGDS …
The Genomics Landscape
In the December 3, 2020 edition of The Genomics Landscape, Dr. Eric Green spotlights on ELSIhub.
… out that we have added a new temporary section to The Genomic Landscape , one that highlights the “Guiding … genetics and genomics. The platform facilitates resource sharing and community building among ELSI scholars, … from active and collaborative ELSI community members. …  Data sharing is a critical part of the research process that …
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… the National Institutes of Health (NIH) put forth a new policy which requires that all NIH-funded investigators who … researcher request to cover studies collecting sensitive data; however, under the new policy, as of October 1, 2017, … ​ … 21st Century Cures Act, genetic privacy, genomic privacy, researchers and privacy, researchers' …
Research Funding
Policies and guidance regarding research funding from the NHGRI and the National Institutes of Health.
… The National Institutes of Health (NIH) Grants Policy Statement is the definitive resource for grants policy. Those interested in applying for a specific grant … the grantee has a working knowledge of the NIH Grants Policy Statement , understands whether an action requires …
News Release
Cari Young and Julie Nadel join NHGRI as public policy and education fellows.
… Society of Human Genetics (ASHG)/NHGRI Genetics and Public Policy Fellow. She will spend her first four months with the Policy and Program Analysis Branch (PPAB) within the Division … audiences, further developing her passion for genetic and genomic literacy and education. "My goal is to help improve …
Professional Development Programs
The Genetics and Public Policy Fellowship is designed for individuals interested in the development and implementation of genetics-related health and research policies at a national level.
… to improve health are deeply influenced by important policy decisions at the national level. From guiding research … ASHG and NHGRI co-sponsor the Genetics and Public Policy Fellowship to give genetics/genomics professionals an opportunity to contribute to the policy-making process. The fellowship is designed as a bridge …
Administrative
NHGRI branch responsible for policy development and analysis related to advances in genomics research.
… The Policy and Program Analysis Branch (PPAB) of the Division of … PPAB promotes policies that facilitate the uptake of genomic technologies into the clinic and broader society, the protection of research participants in genomic studies, and the integration of genomic knowledge …