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Policies and Guidance
Copyright Policy
Text, graphics, videos, illustrations and other information on NHGRI websites are in the public domain, unless indicated.
… responsibility of the user to examine the copyright and licensing restrictions of linked pages and to secure all …
Event
NHGRI Genomic Consultation Research Working Group
On February 16, 2023, the National Human Genome Research Institute (NHGRI) held a follow-up working group consultation after the 14th Genomic Medicine meeting, Genomic Medicine XIV: Genomic Learning Healthcare Systems.
… barriers and solutions to operational issues such as licensing, liability, sustainability Propose key outcome …
Policy Issues
Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.
… To find information about state genetic counselor licensing laws, visit the National Society of Genetic …
Policy Issues
Genome Statute and Legislation Database OLD
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.
… To find information about state genetic counselor licensing laws, visit the National Society of Genetic …
Secondary Genomics Findings Service
Laboratory and Bioinformatics Staff
The Secondary Genomics Finding Service (SGFS)
News Release
Pregnant women want physicians’ advice on receiving fetal genomic information
Most pregnant women want recommendations from their doctors when deciding which information to receive from prenatal whole genome sequencing.
Secondary Genomics Findings Service
What happens after my protocol is accepted?
How to send data, confirming preliminary results, and returning results
Research Training
Medical Genetics Residency Program
Three-year residency program in medical genetics that trains physicians to diagnose, manage and counsel patients with genetic disorders.
Research Training
Medical Biochemical Genetics Fellowship
A one-year fellowship program that trains highly motivated physicians to diagnose, manage, and counsel patients with inborn errors of metabolism.
Event
eConsult Webinar FAQs
On Tuesday, February 6, 2024, the National Human Genome Research Institute hosted an eConsult webinar to provide an overview of three notice of funding opportunities (RFA-HG-24-001, PAR-24-106 and PAR-24-107). Questions were answered during the webinar.