Search Results
Clinical Research
The Attention Deficit/Hyperactivity Disorder (ADHD) Genetic Research Study explores the genetic factors contributing to ADHD to improve treatment in the future.
… in the future. … ADHD often appears to run in families, and research studies have suggested that there may be a … goals of this study is to facilitate the diagnosis of ADHD and the development of improved treatments, possibly … By Mail: Research Coordinator/ADHD Genetic Research Study NHGRI / NIH Building 10, Room 10C103 10 Center Drive …
The Genomics Landscape
In the September 2018 edition of The Genomics landscape, NHGRI Director Eric Green highlights five new educational videos that use poetry and dance.
… Eric Green, M.D., Ph.D. … As summer winds to an end and fall beckons, NHGRI will 'shift gears' a bit in its strategic planning … Mayosi led the H3Africa project entitled " RHDGen: The Genetics of Rheumatic Heart Disease Network ." A …
Policy Issues
Most genetic tests today are not regulated, meaning that they go to market without any independent analysis to verify the claims of the seller.
… As the field of genomics advances, genetic and genomic tests are becoming more common in, and out of, … criteria, adapted from the National Library of Medicine's Genetics Home Reference . Analytical Validity: Refers to how … tests, the FTC has made available the following consumer education resources: Consumer Education, Direct-to-Consumer …
For Patients and Families
​Genetic tests may be used to identify increased risks of health problems, to choose treatments, or to assess responses to treatments.
… are the DNA instructions you inherit from your mother and your father. … Genetic tests may be used to identify … hard to understand, however specialists like geneticists and genetic counselors can help explain what results might mean to you and your family. Because genetic testing tells you …
News Release
NHGRI will provide approximately $5.8 million over five years to create an educational hub for computational genomics and data science. The hub will provide new educational and research opportunities for students of diverse backgrounds, including those from groups historically underrepresented in the biomedical sciences.
… to create an educational hub for computational genomics and data science. The hub will provide new educational and … within the National Human Genome Research Institute (NHGRI). “Instead of requiring their college or university to … sciences, and are invested in genomic data science education. The hub will facilitate educational and research …
Professional Development Programs
The JHU/NIH Genetic Counseling Training Program addresses the growing need for genetic counseling services.
… the National Human Genome Research Institute (NHGRI) and National Cancer Institute (NCI) at the National … of undergraduate level courses in biochemistry and genetics. Counseling experience, either paid or voluntary. …
News Release
NHGRI researchers have released new educational materials to help the sickle cell disease community learn about gene therapies for the disease.
… Collaborative effort aims to help patients and their support networks navigate emerging developments in … at the National Human Genome Research Institute (NHGRI), part of the National Institutes of Health. The Democratizing Education for Sickle Cell Disease Gene Therapy Project, led …
Policy Issues
Payers such as insurance companies and Medicare need systematic ways of evaluating genetic tests for reimbursement.
… of genetic testing, payers such as insurance companies and Medicare need systematic ways of evaluating genetic tests … and under what circumstances they should be covered. NHGRI hopes to serve as a resource for advancing genomic … Tests and Services  (HHS Secretary's Advisory Committee on Genetics, Health, and Society) An Evidence Framework for …
The Genomics Landscape
In the June 2, 2022 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., highlights the new and improved Talking Glossary of Genomic and Genetic Terms - one of the premier educational resources offered by NHGRI, and it aims to help users better understand the basics of genomics and genetics.
… As the heat rises and the summer arrives, you might be looking for some indoor … the online materials generated from an April virtual NHGRI workshop entitled “Future Directions in Genomics and … to help users better understand the basics of genomics and genetics. While reformatted and expanded a few times over the …
Staff
Beth Tuck is the chief of the Education and Community Involvement Branch at NHGRI.
… M.A. … Beth Tuck (she/her) is the chief of the Education and Community Involvement Branch at NHGRI. Previously she was executive director and director of … at Washington University in St. Louis was focused on the genetics and molecular mechanisms of neurological and …