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Research at NHGRI
The Democratizing Education for Sickle Cell Disease Gene Therapy project utilizes a deliberative stakeholder-engagement approach to develop patient educational materials for sickle cell disease gene therapy.
… to help them make such decisions. … The Democratizing Education Project welcomes your feedback about the sickle … provider or a clinical trial team. … The Democratizing Education for Sickle Cell Disease Gene Therapy project … and deliberation. … About this project … Patient education materials … Sickle cell disease gene therapy …
Professional Development Programs
Provides exposure to the broader genomics community and experts in the field, with the opportunity to work on a genetics/genomics-related education projects under the mentorship of an ISCC-PEG member.
… Training, Diversity and Health Equity Office; Donna: Education and Community Involvement Branch National Human … Kathleen Blazer, Ed.D., M.S., CGC Director Cancer Genomics Education Program, Division of Clinical Cancer Genomics, City of Hope National Medical Center, Duarte, …
For Health Professionals
Essential genomics competencies, practice guidelines, and curricular resources for a variety of health professions.
… providers (HCPs) will increasingly use knowledge about genomics to meet the needs of their patients. This page … and their educators. Healthcare Professionals' Genomics Education Week Building on the success of the 2022 social … counselors, nurses, pharmacists, physician assistants, and physicians. Global Genetics and Genomics Community (G3C) …
News Release
NHGRI will provide approximately $5.8 million over five years to create an educational hub for computational genomics and data science. The hub will provide new educational and research opportunities for students of diverse backgrounds, including those from groups historically underrepresented in the biomedical sciences.
… five years to create an educational hub for computational genomics and data science. The hub will provide new … sciences, and are invested in genomic data science education. The hub will facilitate educational and research … which strives to enhance the diversity of backgrounds in genomics. A more inclusive genomic workforce fosters more …
Healthcare Provider Genomics Education Resource
Genomics plays a role in every area of nursing, whether nurses are at the bedside providing one-on-one care, treating entire populations, teaching the next generation of nurses, or making discoveries in the lab.
… The Inter-Society Coordinating Committee for Practitioner Education in Genomics (ISCC-PEG) provides a venue for individuals to … update to the Essentials book highlights the importance of genomics in nursing: Nurses must apply foundational knowledge …
Staff
Rosann Wise is a program analyst in the Education and Community Involvement Branch at the National Human Genome Research Institute.
… National Human Genome Research Institute (NHGRI) in the Education and Community Involvement Branch (ECIB). In her … providing tools, resources and programs that encourage genomics literacy, dialogue and education. She is the lead … … Related Projects … Rosann Wise, M.A. … Rosann Wise, genomics education, genomic literacy, genomics resources for …
Research Training
A one-year fellowship program that trains highly motivated physicians to diagnose, manage, and counsel patients with inborn errors of metabolism.
… a one-year fellowship program that trains highly motivated physicians to diagnose, manage, and counsel patients with … Counseling skills will be improved by teaching referring physicians and parents about positive test results and … Debra Regier, M.D., Ph.D. Metabolic disorders, genetics education Oleg Shchelochkov, M.D. Propionic acidemia Ellen …
Healthcare Provider Genomics Education Resource
This FAQ was designed to answer questions regarding how nurses integrate genomics into their education and practice.
… Experts participating in the ISCC-PEG Nursing Genomics Project Group created a video containing all the … to expand upon questions raised in the “Nursing Genomics FAQs”. To view the individual expert … the Inter-Society Coordinating Committee for Practitioner Education in Genomics ( ISCC-PEG ) has created a Nursing …
Healthcare Provider Genomics Education Resource
Discipline-specific genomic competencies are knowledge and skills that a provider needs in order to perform specific functions in genomic healthcare. Competency-based healthcare education is an outcomes-based approach that uses competencies to organize and structure curricula and continuing education.
… in genomic healthcare. Competency-based healthcare education is an outcomes-based approach that uses … for undergraduate medical education in genetics and genomics October 2022 The published updated competencies … in Genomic Medicine 2014 Published guidance for physicians and their educators that establishes genomics …
Staff
Dr. Belen Hurle is an associate investigator in NHGRI's Division of Intramural Research, an educational outreach specialist in the Education and Community Involvement Branch and a training program coordinator in the Intramural Training Office.
… Ph.D., develops models of public engagement related to genomics, genetics and public health. Specifically, she … target populations and public health issues in need of education programs and develops partnerships between the … to recruiting underrepresented populations to the genomics workforce. … Biography … Related Projects … Belen …