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Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
… Participating in genomics research is an opportunity to support scientific exploration … to commit? This very much varies from study to study. For any study you are considering, it is important that you … is separated from your sample to protect your privacy. In other studies, scientists may need sensitive personal …
Policy Issues
Clinical research may yield new health-related information about volunteers who have chosen to participate in the studies.
… When conducting clinical research studies, scientists may discover new health-related … This raises the question of when and how it is appropriate for the scientists to look for and share such research … Sequencing Exploratory Research ( CSER) consortium  Among other aspects of clinical sequencing, the consortium …
Clinical Research
FAQs for Autoinflammatory Diseases Study providers and researchers.
… interested in patients with multiple affected family members, giving a stronger indication of genetic disease; … Ivona Aksentijevich if you would like to further discuss research opportunities. … FAQ for Providers and Researchers … FAQs for Autoinflammatory …
Research at NHGRI
NHGRI's research focuses on the understanding of human biology and developing new methods for treating disease.
… The National Human Genome Research Institute (NHGRI) conducts a broad program of laboratory and clinical research to translate genomics … understanding of human biology and develop better methods for the detection, prevention and treatment of heritable and …
Research Training
The NHGRI Social and Behavioral Research Branch invites recent graduates to pursue multidisciplinary training in genomics and health.
… The Social and Behavioral Research Branch (SBRB), an intramural research branch of the National Human Genome Research Institute (NHGRI), … factors that facilitate translation of genomic discoveries for health promotion, disease prevention, genetic counseling, …
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… 13, 2016, was to strengthen privacy protections law for research participants. The new law specifically requires … policy will prohibit researchers from disclosing names or other identifying characteristics of research subjects in …
Research Training
NHGRI funds training and career development programs at academic, medical and other institutions throughout the U.S.
… Lynae Hanks   ✔ University of Florida Training Program for Applied Research and Development in Genomic Medicine Julie Johnson … of Alabama at Birmingham Summer Undergraduate Research Experiences in Genomic Medicine (SURE-GM) Bruce Korf Gregory …
News Release
NIH lost a key member of its broader genomics team when Robert Blakesley, Ph.D., director of the NISC sequencing group at NIH, retired on Dec. 31, 2015.
… Jeannine Mjoseth … Genomics research is a quintessential team science. Contributing to … NISC generated more than 57 million DNA sequence reads for 76 researchers using the Sanger dideoxy sequencing … a good team member, NISC shared its information with the other centers. "The real benefit to team science is that you …
Research Funding
Contacts by Research Area
… Looking for a contact in your research area? Select a category below to … to that topic. About the Categories   … Contacts by Research Area: Search … Contacts by Research Area … Contacts …
Research Funding
The three research domains to be considered for support by the NHGRI Ethical, Legal and Social Implications Research Program.
… and Economics … Program Contact: Nicole Lockhart … Genomic Research Design and Implementation Diversity and Inclusion in … of Genomic Healthcare Practices Costs and Coverage for Genomic Healthcare … Click on the research areas and … of genomic research studies is shaped by the values and experiences of individual researchers regarding social …