Search Results
Research Funding
The ELSI Publications and Products Database organizes publications for ELSI projects and activities by the last name of the principle investigator.
… Since its creation in 1990, the Ethical, Legal and Social Implications (ELSI) Research Program has funded hundreds of research projects, conferences, and other … and radio programs and educational materials. Many of these products are included in this database (updates are …
Educational Resources
An animal model is a non-human species used in medical research because it can mimic aspects of a disease found in humans.
… used in medical research because it can mimic aspects of a disease found in humans. … Biomedical Research, Ethics, … used in biomedical research because it can mimic aspects of a biological process or disease found in humans. Animal … to a pathogen that researchers can extrapolate the results of animal model studies to better understand human physiology …
15 Ways Genomics Influences Our World
Genomics is fostering an appreciation for what our DNA means for our health, identities and culture.
… sequence raises many issues regarding the social context of genomics. Information about our genomes is starting to become part of our everyday life. Genomic information shapes societal … are treated within your society? Continued studies of the ethical, legal, and social implications of genomic advances …
Research Funding
The following are research areas of interest that have been identified by the participating NIH institutes and centers (ICs). Program Officer contact information is also included.
… The following are research areas of interest that have been identified by the participating … and Implementation: These projects may investigate the ethical, legal, social and policy issues that arise in connection with the design and conduct of genetic and genomic research.  Genomic …
Event
On December 11, 2023, NHGRI, in collaboration with several other NIH Institutes and Offices, recently renewed the three Notices of Funding Opportunity (NOFOs) used to support investigator-initiated research on the ethical, legal and social implications (ELSI) of human genome research.
… may have about the NOFOs to Zo.Bly@nih.gov . A recording of the webinar and a list of questions and answers have been made available. … … used to support investigator-initiated research on the ethical, legal and social implications (ELSI) of human genome …
News Release
NHGRI has selected Charles Rotimi, Ph.D., as the next scientific director. In this role, he will lead the institute’s Intramural Research Program, which conducts basic and clinical research to enable a greater understanding of human disease and to develop better methods to detect, prevent and treat genetic disorders.
… and clinical research to enable a greater understanding of human disease and to develop better methods to detect, prevent and treat genetic disorders. NHGRI is part of the National Institutes of Health. Dr. Rotimi is a leading … Research Program supports more than 50 investigators who conduct a wide range of research at the forefront of …
Staff
Dr. Nicole Lockhart is a program director in NHGRI's Division of Genomics and Society.
… (NHGRI) in 2012 as a program director in the Division of Genomics and Society. Dr. Lockhart oversees a portfolio of research and career development grants related to the ethical, legal and social (ELSI) implications of genomic …
Fact Sheets
Cloning describes a number of different processes that can be used to produce genetically identical copies of a biological entity.
… The term cloning describes a number of different processes that can be used to produce genetically identical copies of a biological entity. The copied material, which has the … both reproductive and therapeutic cloning raise important ethical issues, especially as related to the potential use of …
Staff
Joy Boyer was a program director in NHGRI's Division of Genomics and Society.
… with the National Human Genome Research Institute (NHGRI) Ethical, Legal and Social Implications (ELSI) Research … since 1996. As a program director in the NHGRI Division of Genomics and Society, Joy oversees a portfolio of research, training and career development grants related …
Educational Resources
The Genetic Information Nondiscrimination Act (GINA) is federal legislation that makes it unlawful to discriminate against individuals on the basis of their genetic profiles in regard to health insurance and employment.
… unlawful to discriminate against individuals on the basis of their genetic profiles in regard to health insurance and … are intended to encourage Americans to take advantage of genetic testing as part of their medical care. GINA was signed into law on May 22, …