Search Results
Policy Issues
Hay leyes y polÃticas que sirven para proteger la privacidad de la información genómica de un individuo.
… de la Oficina Federal de Investigaciones ( Federal Bureau of Investigation , FBI) para las bases de datos de ADN de la … en Investigaciones ( Federal Policy for the Protection of Human Subjects ), también conocida como la " Regla Común … en 1966, la Ley de Libertad de Información ( Freedom of Information Act , FOIA) fue la primera ley estadounidense …
FAQ
Frequently asked questions from the May 23, 2023 informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… Resources ** Given the large number of resources available regarding the DMS Policy, where should … and 2) protective measures such as de-identification and Certificates of Confidentiality  would be insufficient. Investigators and …
News Release
NIH released a Request for Information seeking comments on the data submission and access process for dbGaP.
… Office of Science Policy … At the National Human Genome Research … with access to genomic data. The National Institutes of Health (NIH) Genomic Data Sharing Policy establishes a … genomics studies. Today, we need your help to improve one of NIH's central data sharing tools for human genomic data, …
Jobs at NHGRI
NHGRI is seeking applications for the Director of Genetics Education (DGE) position for the Medical Genetics Training Programs, which plays a critical role in leading and overseeing all aspects of our ACGME-accredited programs.
… applications from women and minorities. … The Director of Genetics Education (DGE) for the NHGRI Medical Genetics … a critical role in leading and overseeing all aspects of our ACGME-accredited programs. This key leadership … position provides a unique opportunity to shape the future of medical genetics education within a dynamic and innovative …
Healthcare Provider Genomics Education Resource
Genomics plays a role in every area of nursing, whether nurses are at the bedside providing one-on-one care, treating entire populations, teaching the next generation of nurses, or making discoveries in the lab.
… Dewell, Ph.D., MSc, RN Assistant Professor University of Northern British Columbia  … American Association of Critical-Care Nurses (AACN) defines entry-level nurses as … carrying out care.  Protection of rights of privacy and confidentiality: Privacy is the right to control access to …
Research at NHGRI
The Technology Transfer Office is responsible for transferring NHGRI technologies to the private sector and exchanging research materials with outside groups.
… academic, non-profit and private sectors for the benefit of the public health. … NHGRI's patented technologies are … microarrays for rapid molecular profiling, mouse models of inherited disorders and a diverse range of genes. … The … in negotiating Material Transfer Agreements (MTAs), Confidentiality Disclosure Agreements (CDAs) and other legal …
Staff
Jennifer Strasburger was the lead Genomic Program Administrator (GPA) for NHGRI as well as the co-chair for the NHGRI Data Access Committee (DAC).
… as a program director in 2020. She managed a portfolio of grants focused upon RNA epitranscriptomic modifications … development proposals to accelerate understanding of RNA function in complex biological systems and to harness … director in the National Cancer Institute’s Division of Cancer Biology, where she managed a portfolio of grants …
Clinical Research
An Observational Prospective Natural History Study of Metabolism, Infection and Immunity During the COVID19 Pandemic (At-home Participation).
… An Observational Prospective Natural History Study of Metabolism, Infection and Immunity During the COVID19 … is a serious public health problem and the implications of COVID19 in individuals with mitochondrial disease or their … updates with us after joining the study.  Privacy and confidentiality are very important to us. All information …
Careers and Training
NHGRI provides funding to support the development and implementation of modules aimed at providing healthcare professionals with genomic medicine training.
… funding to support the development and implementation of modules aimed at providing healthcare professionals with … genomic medicine training. Listed below are the details of the projects funded under NOT-HG-20-020 . … Project … credit available Description:  We are developing a suite of short educational modules entitled ‘Rapid Personalized …
Clinical Research
A study to learn more about the role of viral infection and biomarkers of immunity in mitochondrial disease, utilizing new technology with Neoteryxâ„¢ fingerstick at-home sampling.
… A study to learn more about the role of viral infection and biomarkers of immunity in mitochondrial disease using new technology … a physical exam by a physician via telehealth. Privacy and confidentiality are very important to us. All information …