Search Results
News Release
NIH released a Request for Information seeking comments on the data submission and access process for dbGaP.
… Institute, we believe that broadly sharing research data will result in maximum public benefit, and we're committed to providing researchers with access to genomic data. The National Institutes of Health (NIH) Genomic Data … dbGaP is a controlled-access data repository that serves as a central portal to submit, …
Policies and Guidance
Broad data sharing promotes maximum public benefit from federally funded genomics research. NHGRI supports the broadest appropriate genomic data sharing with timely data release through widely accessible data repositories. These repositories may be open access (unrestricted) or, if more appropriate, controlled access.
… Broad data sharing promotes maximum public benefit from federally … research. NHGRI supports the broadest appropriate genomic data sharing with timely data release through widely … data repositories. These repositories may be open access (unrestricted) or, if more appropriate, controlled …
Event
The Encyclopedia of DNA Elements (ENCODE) Consortium presented a half-day workshop on the accessibility & utilization of ENCODE data.
… workshop on the accessibility & utilization of ENCODE data. The workshop included an introduction to the ENCODE project and resources available to access ENCODE data, as well as specific research applications using ENCODE … ENCODE Data Utilization Workshop …
Staff
Jennifer Strasburger was the lead Genomic Program Administrator (GPA) for NHGRI as well as the co-chair for the NHGRI Data Access Committee (DAC).
… and intramural investigators in depositing genomic data into public repositories such as dbGaP and AnVIL . Ms. … (GPA) for NHGRI as well as the co-chair for the NHGRI Data Access Committee (DAC). … Jennifer Strasburger, Data Access Committee (DAC), informatics, epigenetic, …
Data Sharing
The NHGRI Data Sharing Governance Committee is responsible for the activities necessary for the Institute to implement and maintain NIH and NHGRI data sharing policies.
… The NHGRI Data Sharing Governance Committee is responsible for the … for the Institute to implement and maintain NIH and NHGRI data sharing policies. These activities include:  Promoting standard data sharing practices and operating procedures across NHGRI. … Thomas, Ph.D. (DAC Chair*) Co-Chair Office of Genomic Data Science  Elena Valdez, M.A. Executive Secretary Office …
Policies and Guidance
NHGRI ensures that our website is in compliance with Section 508 of the Rehabilitation Act (29 U.S.C. 794d).
… employees or members of the general public) have access to and use of information and data comparable to that provided to individuals without … electronic information products, visit the United States Access Board  or the official Section 508  website.  … NIH is renewing its commitment to providing meaningful access to its programs and activities for people with limited …
About NHGRI
The Genomic Data Science Working Group facilitates engagement of the National Advisory Council for Human Genome Research on genomics and data science issues.
… The NHGRI Genomic Data Science Working Group facilitates a deeper engagement of … on complex issues at the interface between genomics and data science. … The NHGRI Genomic Data Science Working Group was created in 2017 as a … trans-National Institutes of Health issues related to data science, for which NHGRI is frequently called upon for …
News Release
Today, we are updating the way we manage data related to the NIH Genomic Data Sharing Policy.
… Today, we are updating the way we manage data related to the NIH Genomic Data Sharing Policy to again allow unrestricted access to genomic summary results for most of the studies we … (if the researcher had access to the individual's genomic data). In response, we decided that while we assess the state …
Research Funding
Funded in 2016 to harmonize, access, and analyze the data produced by the sequencing centers.
… Centers (GSPACs) were funded in 2016 to harmonize, access, and analyze the data produced by the sequencing centers. The GSPACs undertake … investigator-initiated computational analyses on GSP data and develop methods to discover variants underlying … Funded in 2016 to harmonize, access, and analyze the data produced by the sequencing centers. ​ …
News Release
NIH issues a final Genomic Data Sharing policy to speed the translation of data into knowledge, improve health and protect patient privacy.
… Institutes of Health has issued a final NIH Genomic Data Sharing (GDS) policy to promote data sharing as a way to speed the translation of data into knowledge, products and procedures that improve … human and non-human projects that generate genomic data. This includes research conducted with the support of …