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News Release
The Clinical Sequencing Exploratory Research Consortium has offered an ethical framework to guide pediatricians in pursuing clinical sequencing studies.
… states. Pediatricians, in particular, face complicated ethical questions about what information they should disclose, and to whom, when genome sequencing uncovers signs of … McEwen, J.D., Ph.D., program director for the Ethical, Legal and Social Implications (ELSI) Research Program in the …
Event
On December 11, 2023, NHGRI, in collaboration with several other NIH Institutes and Offices, recently renewed the three Notices of Funding Opportunity (NOFOs) used to support investigator-initiated research on the ethical, legal and social implications (ELSI) of human genome research.
… the NOFOs to Zo.Bly@nih.gov .  A recording of the webinar and a list of questions and answers have been made available. … used to support investigator-initiated research on the ethical, legal and social implications (ELSI) of human genome …
Research Funding
The Division of Genomics and Society focuses on the societal issues that need to be studied and addressed as genomics advances.
… The Division of Genomics and Society is responsible for exploring societal issues … to genomics, incorporating and extending the institute's Ethical, Legal and Social Implications (ELSI) research program and
Event
To bring together communities of researchers working in machine learning (ML), NHGRI hosted the Machine Learning in Genomics: Tools, Resources, Clinical Applications and Ethics workshop on April 13-14, 2021.
… Institute Keynote Session: What are the opportunities and challenges for ML in genomics research? Moderator:  …    2:15 p.m. - Q&A Session 2:45 p.m. - Break Session 2: Ethical, Legal and Social Implications (ELSI) of machine learning in …
Event
The purpose of this semi-annual lecture series is to bring distinguished researchers whose work sits at the interaction of genomics and the social and behavioral sciences to speak to the NIH community.
… Ph.D. Chair, Department of Nutritional Sciences Professor and Susan T. Jastrow Chair for Excellence in Nutritional … R Study Henning Tiemeier, M.D., Ph.D. Professor of Social and Behavioral Science and the Summer and Esther Feidberg …
Event
On January 25, 2023, the National Human Genome Research Institute will hold a roundtable on social and behavioral genomics.
… 1:00 - 1:10 p.m. — Welcome and Introduction Eric Green, NHGRI Christopher Donohue, NHGRI … - 1:40 p.m. — Moderated Discussion: Genetics in postwar social and behavioral research Moderator: Nayanika Ghosh, Harvard …
Staff
Leonard Ross is the director of the Ethics Branch at the National Human Genome Research Institute. ​
… Ross, J.D., M.B.A., is the director of the Ethics Branch and the ethics coordinator of the National Human Genome … Institutes of Health (NIH). Mr. Ross has a Bachelor's and Master's degree in Business Administration (Health Care … National Human Genome Research Institute. … standards of ethical conduct, human resources, conflicts of interest, …
Event
The Ethical Legal and Social Implications (ELSI) Research Program is hosting a webinar to gather specific feedback on four potential goals for the field of ELSI research over the next decade.
… related engagement  events  including town halls, meetings and workshops. NHGRI staff formed internal working groups … for the field of ELSI research over the next decade. … The Ethical Legal and Social Implications (ELSI) Research Program is …
Event
The Ethical Legal and Social Implications (ELSI) Research Program is hosting a webinar to gather specific feedback on four potential goals for the field of ELSI research over the next decade.
… related engagement  events  including town halls, meetings and workshops. NHGRI staff formed internal working groups … for the field of ELSI research over the next decade. … The Ethical Legal and Social Implications (ELSI) Research Program is …
Event
November is Family Health History Awareness Month! To celebrate, the National Human Genome Research Institute will host several engagement events over social media on Wednesday, November 17.
… Institute will host several engagement events over social media on Wednesday, November 17. We encourage you and your organizations to join in and help amplify our Institute’s mission to increase genomic …