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News Release
How well cancer patients fare after chemotherapy can be affected by their social interaction with other patients during treatment.
… patients fare after chemotherapy can be affected by their social interaction with other patients during treatment, … the National Human Genome Research Institute (NHGRI), part of the National Institutes of Health, and the University of Oxford in the United Kingdom. … Cancer …
Event
The Ethical Legal and Social Implications (ELSI) Research Program is hosting a webinar to gather specific feedback on four potential goals for the field of ELSI research over the next decade.
… related engagement events including town halls, meetings and workshops. NHGRI staff formed internal working groups … for the field of ELSI research over the next decade. … The Ethical Legal and Social Implications (ELSI) Research Program is …
Policy Issues
Most ethical discussions about genome editing center on human germline editing because changes are passed down to future generations.
… Most of the ethical discussions related to genome editing center around human germline because editing … has the potential to make such editing more accurate and even "easy" in comparison to older technologies. …
News Release
A 2018 workshop led by Alaska Native people provides a path towards collaborative, community-driven genomics research.
… research. … In August 2020 the Centers for Disease Control and Prevention identified that Indigenous groups such as … disparities, an associate investigator in the NHGRI's Social and Behavioral Research Branch and co-author on the … enhancing genomic research is framed around the ethical principles of tribal sovereignty and research …
Event
The purpose of this semi-annual lecture series is to bring distinguished researchers whose work sits at the interaction of genomics and the social and behavioral sciences to speak to the NIH community.
… The Social and Behavioral Research Branch (SBRB) Seminar Series is a semi-annual … researchers whose work sits at the interaction of genomics and the social and behavioral sciences to speak …
Event
On January 25, 2023, the National Human Genome Research Institute will hold a roundtable on social and behavioral genomics.
… 1:00 - 1:10 p.m. — Welcome and Introduction Eric Green, NHGRI Christopher Donohue, NHGRI … - 1:40 p.m. — Moderated Discussion: Genetics in postwar social and behavioral research Moderator: Nayanika Ghosh, … The Hastings Center Alexandra Minna Stern, University of California, Los Angeles Melinda Mills, University of …
News Release
The zebrafish is a powerhouse tool that helps researchers better understand the genes that are implicated in disease.
… Sheena Faherty Ph.D. … In the basement of a three-story brick building on the main campus of the … from an egg so small it is barely visible to the naked eye and are striped like a zebra. … Aptly named and tiny in … are implicated in disease. And, here at the National Human Genome Research Institute (NHGRI), researchers are advancing …
Research Funding
The Division of Genomics and Society focuses on the societal issues that need to be studied and addressed as genomics advances.
… The Division of Genomics and Society is responsible for exploring societal issues … to genomics, incorporating and extending the institute's Ethical, Legal and Social Implications (ELSI) research program and …
Event
To bring together communities of researchers working in machine learning (ML), NHGRI hosted the Machine Learning in Genomics: Tools, Resources, Clinical Applications and Ethics workshop on April 13-14, 2021.
… Institute Keynote Session: What are the opportunities and challenges for ML in genomics research? Moderator: … 2:15 p.m. - Q&A Session 2:45 p.m. - Break Session 2: Ethical, Legal and Social Implications (ELSI) of machine learning in …
Media Advisory
On January 25, 2023, the National Human Genome Research Institute will host a virtual roundtable to discuss social and behavioral genetics and genomics, including their benefits, limitations and potential for misuse.
… The National Human Genome Research Institute (NHGRI) of the National Institutes of Health will host a virtual roundtable to discuss social and behavioral genetics and genomics, including their …