Search Results
Policies and Guidance
Frequently Asked Questions regarding the GDS Policy expectations for NHGRI-funded genomic research.
… Frequently Asked Questions regarding the GDS Policy expectations for NHGRI-funded genomic research. … Data … according to the NIH guidance regarding scope of the GDS Policy . Investigators should consult with appropriate NHGRI … appropriate point to promote maximum public benefit from federal investment in genomics research. As a leader in GDS …
News Release
The Genetics and Public Policy and Genetics and Education Fellowships provide a pathway for scientists to pursue careers in science policy or education.
… curriculums can be established. … A Pathway to Science Policy and Education Careers One way to ensure that genomic discoveries in the lab drive policy and education for our benefit is to strengthen the … between genomic research and science education and policy. The National Human Genome Research Institute (NHGRI) …
Policy Issues
Federally-funded research with human participants must comply with regulations that protect the rights and welfare of the participants.
… funded by or carried out at NIH, is subject to the Federal Policy for the Protection of Human Research Subjects, or 'Common Rule' ( Code of Federal Regulations, Title 45, Part 46 ). This regulation …
News Release
Cari Young and Julie Nadel join NHGRI as public policy and education fellows.
… Society of Human Genetics (ASHG)/NHGRI Genetics and Public Policy Fellow. She will spend her first four months with the Policy and Program Analysis Branch (PPAB) within the Division of Policy, Communications and Education (DPCE). She will then …
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… the National Institutes of Health (NIH) put forth a new policy which requires that all NIH-funded investigators who … studies collecting sensitive data; however, under the new policy, as of October 1, 2017, NIH-funded researchers and … research. Compliance with the requirements of the policy will become a term and condition of award for grant …
Policies and Guidance
NHGRI links to external websites to supplement the information found on our website.
… external websites. … Our website has links to many other federal agencies, and in a few cases we link to private … organizations. You are subject to external site's privacy policy when you leave our site. We proudly comply with 508 … for Section 508 compliance (accessibility) on other federal or private Web sites. Reference in this website to …
The Genomics Landscape
In the October 2018 edition of The Genomics Landscape, NHGRI Director Dr. Eric Green highlights Dr. Dan Kastner as the Federal Employee of the Year.
… Aside from anticipating cooler weather, those of us in the federal government spend this time of year closely monitoring … NHGRI's Scientific Director, Dr. Dan Kastner, as the Federal Employee of the Year. Often referred to as the … in 'omics' research. … Each year, NHGRI's Division of Policy, Communications, and Education  partners with the …
Professional Development Programs
The Genetics and Public Policy Fellowship is designed for individuals interested in the development and implementation of genetics-related health and research policies at a national level.
… to improve health are deeply influenced by important policy decisions at the national level. From guiding research … activities, such as the development of the institute’s federal budget justification. Advocacy at ASHG: Fellows will … Employment offers will be contingent upon a satisfactory federal background check. ASHG is an Equal Opportunity …
Research Funding
Policies and guidance regarding research funding from the NHGRI and the National Institutes of Health.
… The National Institutes of Health (NIH) Grants Policy Statement is the definitive resource for grants … within the grant announcement. … The NIH is the principal federal agency responsible for biomedical and behavioral … and the general public for responsible stewardship of federal research dollars. Sound management of research funds …
Policies and Guidance
Broad data sharing promotes maximum public benefit from federally funded genomics research. NHGRI supports the broadest appropriate genomic data sharing with timely data release through widely accessible data repositories. These repositories may be open access (unrestricted) or, if more appropriate, controlled access.
… primary study, if consistent with study design. When the policy applies NHGRI encourages sharing of all data types. However, at this time the NIH GDS Policy and NHGRI implementation plans apply particularly to … with other data sets. Projects that are subject to the GDS Policy NHGRI finds value in and encourages the sharing of …