Search Results
Policies and Guidance
For FY22, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… of disease; the implementation and effectiveness of genomic medicine, genomic data science and bioinformatics; training, … To facilitate the implementation of this NIH-wide policy, NHGRI is very flexible in the support of early stage …
Policies and Guidance
For FY2023, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… of disease; the implementation and effectiveness of genomic medicine, computational genomics and data science; … and ethical, legal, and social issues related to genomic advances. … The NHGRI Extramural Research Program is … of Award issued in FY2022 as described in the FY23 Fiscal Policy . Small Business Innovation Research (SBIR) and Small …
Staff
Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office of Genomic Data Science (OGDS) at the National Human Genome Research Institute (NHGRI)
​
… Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office of Genomic Data Science (OGDS) at the National Human Genome … For the last three years, she has advised the NHGRI Genomic Data Science Analysis, Visualization and Informatics …
Policies and Guidance
NHGRI links to external websites to supplement the information found on our website.
… organizations. You are subject to external site's privacy policy when you leave our site. We proudly comply with 508 … … External Link Disclaimer, Non-federal Websites, Website Policy, Federal Policy, NIH Website Policy … NHGRI links to external websites …
Organizational Structure
NHGRI’s Office of Genomic Data Science (OGDS) provides leadership, strategic guidance and coordination for NHGRI activities, programs and policies in genomic data science.
… selected as a @GA4GH Driver Project! These are real-world genomic data initiatives that help develop and pilot GA4GH … September 29, 2023 … LinkedIn … The Office of Genomic Data Science (OGDS) was established in 2021 to: … career researchers September 7, 2023 NIH data management policy commits to making research results available February …
The Genomics Landscape
In the December 3, 2020 edition of The Genomics Landscape, Dr. Eric Green spotlights on ELSIhub.
… out that we have added a new temporary section to The Genomic Landscape , one that highlights the “Guiding … opportunities, solicit expert commentary, obtain advice on policy or legislation, and arrange mentor/mentee … on January 25, 2023. NHGRI has a long history of sharing genomic data and strongly supports NIH’s in these increased …
Events
Data sharing has been a central tenet of the field of genomics since the Human Genome Project.
… Human Genome Project. While many recognize that sharing genomic data is critical to scientific progress, considerable … privacy and other concerns have been raised over sharing genomic data too broadly and openly. It is immensely … to balance these benefits and risks while crafting genomic data sharing policies. In this session, the four …
About NHGRI
The Genomics and Society Working Group advises on planning and priorities for genomics and society activities at NHGRI.
… of Genomics and Society in light of changes in genomics, genomic medicine, and the policy landscape, aiming to identify emerging issues or gaps. … among the different Genomics and Society research and policy components of NHGRI (noting that formal oversight of …
Policy Issues
Genome editing is a method that lets scientists change the DNA of many organisms, including plants, bacteria, and animals.
… human deafness so that they can better understand the genomic basis of deafness.  … Scientists are developing … tools have the potential to help treat diseases with a genomic basis, like cystic fibrosis and diabetes. There are … many organisms, including plants, bacteria, and animals. … Policy Issues …
Policy Issues
Scientists have edited genomes for many years, but CRISPR technology has improved the speed, cost, accuracy, and efficiency of genome editing
​
… CRISPR-Cas9, Genome Editing Technology, Genome Editing, Genomic Technology, Gene Editing, Gene Therapy, DNA Editing … … cost, accuracy, and efficiency of genome editing ​ … Policy Issues …