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News Release
NIH will hold a Reddit "Ask Me Anything" with members of its NHGRI Ethical, Legal and Social Implications Research Program.
… Anything" (AMA) with members of the National Human Genome Research Institute's (NHGRI) Ethical, Legal and Social … our society? What are the ethical implications of using genomic information to help manage the prevention, control … research - to study the potential societal implications of genomic information and research. Image credit: Darryl Leja, …
The Informed Consent Resource
Explore genomics-relevant considerations for informed consent and guidance on how to approach them.
… about the risks and benefits of participating in a research project. … The informed consent process and consent … form should reflect the research uses for which samples, genomic data, and health information might be shared. … to obtain consent for future uses and broad sharing of genomic and phenotypic data. For more information on genomic …
Research at NHGRI
The Social and Behavioral Research Branch conducts research to apply genomic discoveries to improve health and clinical care.
… The Social and Behavioral Research Branch (SBRB) aims to develop optimal approaches for the integration of genomic discoveries into clinical and community contexts. … … aligned with the four themes below. The social context of genomic discovery We approach research with a social genomics …
The Genomics Landscape
In the June 2018 issue of The Genomics Landscape, NHGRI Director Eric Green highlights the success of The Cancer Genome Atlas.
… has been hugely successful in its mission to catalog the genomic changes underlying multiple cancer types. Ambitious … as a three-year pilot study that focused on studying the genomic changes in three types of human cancers: brain, lung, … 15, 2018 and can be submitted here . …  The All of Us  Research Program, a historic effort to gather data from one …
Diversity Center
The University of Texas Rio Grande Valley (UTRGV) has established a Diversity Center for Genome Research that will build UTRGV’s genomics research capacity by 1) expanding genomic research capabilities and discoveries in two innovative research projects; and 2) enhancing the size and quality of the available genomics workforce.
… (UTRGV) has established a Diversity Center for Genome Research that will build UTRGV’s genomics research capacity by 1) expanding genomic research capabilities and discoveries in two … … Build research capacity by expanding the pool of diverse genomic professionals through providing a wide range of …
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… 13, 2016, was to strengthen privacy protections law for research participants. The new law specifically requires … is collected from participants as part of federally-funded research. … To implement one of the law's privacy provisions, … ​ … 21st Century Cures Act, genetic privacy, genomic privacy, researchers and privacy, researchers' …
News Release
Researchers with support from NIH will conduct research into the genetic underpinnings of Alzheimer's disease.
… support from the National Institutes of Health to conduct research into the genetic underpinnings of Alzheimer's … participants free of the disorder. They also will study genomic data from 111 large families, a portion of which are … of the Alzheimer's genome in families. By identifying genomic regions that are likely to contain rare high-risk or …
Research Funding
Fosters basic and applied research on the ethical, legal and social implications of genetic and genomic research. ​
… The Centers of Excellence in ELSI Research bring investigators from multiple disciplines … interpretation, understanding and use of genetic and genomic information and associated technologies.  Genomics … governments, systems or other organized stakeholders.  Genomic Research Design and Implementation These projects may …
Research at NHGRI
NHGRI center focused on computationally intensive approaches to analyze large-scale genomic data and identifying genetic contributions to human disease.
… The Center for Genomics and Data Science Research focuses on the development and application of … intensive approaches to analyze large-scale genetic and genomic data, with a particular focus on identifying genetic … As computational biologists, they employ comparative genomic approaches to understand the evolution and function …
Research Funding
NHGRI's programs and projects support research in one of six domains to advance the field of genomics and improve human health.
… NHGRI's programs and projects support research in one of six domains to advance the field of … Molecular Libraries Program (MLP) Newborn Sequencing in Genomic Medicine and Public Health (NSIGHT) The Cancer Genome … and Projects … NHGRI's programs and projects support research in one of six domains to advance the field of …