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Staff
Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office of Genomic Data Science (OGDS) at the National Human Genome Research Institute (NHGRI)
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… … Elena Ghanaim, NIH Genomic Data Sharing (GDS) Policy, Informed Consent, health privacy regulations, human research …
MINC
MINC resources for educators
… Resource Title File Type Educator Letter PDF Educators - …
MINC
MINC resources for administrators.
… Resource Title File Type Administrator Business Case MS Word …
Educational Resources
A family history is a record of medical information about an individual and their biological family.
Educational Resources
Deoxyribonucleic acid (abbreviated DNA) is the molecule that carries genetic information for the development and functioning of an organism.
15 Ways Genomics Influences Our World
Genomics is fostering an appreciation for what our DNA means for our health, identities and culture.
… major areas of study in ELSI research  are questions about consent and privacy. For example, what do you need to know … your DNA before you agree to participate? That's called " informed consent ." As new areas of genomics have developed in recent …
The Genomics Landscape
In the December 3, 2020 edition of The Genomics Landscape, Dr. Eric Green spotlights on ELSIhub.
… aspects of genetics and genomics. The platform facilitates resource sharing and community building among ELSI scholars, … utility of generated data while maintaining privacy and consent. In an effort to improve data sharing in biomedical …
Educational Resources
Gene expression is the process by which the information encoded in a gene is used to direct the assembly of a protein molecule.
Event
On December 11, 2023, NHGRI, in collaboration with several other NIH Institutes and Offices, recently renewed the three Notices of Funding Opportunity (NOFOs) used to support investigator-initiated research on the ethical, legal and social implications (ELSI) of human genome research.
Staff
​Christina R. Daulton is an education outreach specialist in the Education and Community Involvement Branch at the National Human Genome Research Institute.
… Native tribal leaders and their citizens to make more informed decisions about research, to better understand the …