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Research Funding
The three research domains to be considered for support by the NHGRI Ethical, Legal and Social Implications Research Program.
… and Genomic Healthcare Genomic Information and Healthcare Decision-making Interpretation and Use of Genomic Health Information … direction of genomic research, genomic healthcare and non-medical uses of genomics. International approaches to the …
Healthcare Provider Genomics Education Resource
An FAQ designed to help healthcare professionals understand the diverse landscape of direct-to-consumer (DTC) genetic testing and the benefits and limitations of these tests.
… by the clinical lab within the context of published medical guidelines and by the healthcare professionals with … pharmacogenomic testing by a clinical laboratory before making medication adjustments. Healthcare professionals … may impact drug response. These results may inform the decision to pursue additional testing. However, it is …
Event
On February 9-10, 2021, NHGRI will host it's 13th Genomic Medicine Meeting - Genomic Medicine XIII: Developing a Clinical Genomic Informatics Research Agenda.
… Strategic Vision Eric D. Green, M.D., Ph.D. Session 1: Making the case for a clinical genomic informatics research … of Genetic Information in Clinical Informatics Decision Making Be Different? Presenter: Janina M. Jeff, … Siddharth Pratap, Ph.D., M.S. 3:40 - 4:55 p.m.    Clinical decision support for genomics:  Clinical workflows and …
Healthcare Provider Genomics Education Resource
Discipline-specific genomic competencies are knowledge and skills that a provider needs in order to perform specific functions in genomic healthcare. Competency-based healthcare education is an outcomes-based approach that uses competencies to organize and structure curricula and continuing education.
… to successfully practice as a genetic counselor. Medical School Education 2022 Association of Professors of Human and Medical Genetics (APHMG) consensus-based update of the core competencies for undergraduate medical education in genetics and genomics October 2022 The …
News Release
Researchers are asking if the precision medicine approach will reduce or eliminate the role that race plays in prescribing drugs and in health care overall.
… us toward individualized care and away from race-based decision-making on what is the best medication for a patient. It doesn't mean that the use of race in medical care will entirely go away, but its role will likely …
News Release
The Clinical Sequencing Exploratory Research Consortium has offered an ethical framework to guide pediatricians in pursuing clinical sequencing studies.
… the best interests of the child standard; surrogate decision-making by parents; and pediatric assent. With the framework … associate director for education, Dalton Tomlin Chair in Medical Ethics and Health Policy at Baylor College of …
Professional Development Programs
The JHU/NHGRI Genetic Counseling Training Program prepares students for a M.S in Genetic Counseling from Johns Hopkins Bloomberg School of Public Health.
… methodology, bioethics and health communication and decision-making as well as thesis and rotation credits. Counseling and … cancer genetics, screening and treatment. Introduction to Medical Genetics  (1st year, NIH) reviews teratology, …
Staff
Dr. Klein is an Adjunct Investigator in NHGRI’s Center for Precision Health Research, where he collaborates on several projects involving genetic risk communication
… to the processing of health communications, to health decision-making and to health behavior; how social processes influence … in the areas of social psychology, health psychology and decision-making. Prior to 2002, Dr. Klein was chair of the …
News Release
NIH is awarding $18.9 million towards research that aims to accelerate the use of genome sequencing in clinical care for all individuals.
… and in healthcare settings that extend beyond academic medical centers. … The research is being funded as part of … data to build a shared evidence base for clinical decision making. With the help of the coordinating center, which …
Administrative
The Intramural Administrative Management Branch provides administrative management support to the NHGRI Division of Intramural Research.
… of Health scientific community in the early stages of decision-making for resource allocation and strategic planning. … …