Search Results
Explainer
Appropriate use of population descriptors in research is a critical scientific issue that is important for advancing genomic science and improving healthcare across human populations.
… . 363:1551-1558, 2010. doi: 10.1056/NEJMra0911564. Language used by researchers to describe human populations … ancestry, genetic ancestry, indigenous , primary language spoken, nationality, geographic origin, sex at … Vyas DA, Eisenstein LG, Jones DS. Hidden in Plain Sight - Reconsidering the Use of Race Correction in …
News Release
American Indians and Alaska Natives IRB training programs at NIH ensure the welfare of people participating in federally regulated research.
… community benefits. We did this through the addition of language that acknowledges tribal authority over research …
Secondary Genomics Finding Service
Clinical Research Staff and Protocol Coordinators
… basic information, like the participant's name and what language they speak, etc. … 3. Getting a second sample We … of their participation in an NIH research study. Suggested language to incorporate into protocols and consent forms can …
Outreach
A list of high quality educational activities to engage students on DNA Day.
… The Talking Glossary is available in English and Spanish language versions online, and is available in English as a … "What is DNA?" and "What is Heredity?" These clear, plain language explanations are paired with helpful visuals …
The Genomics Landscape
In the December 8, 2022 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., looks back on the success of the Genome: Unlocking Life's Code exhibition as it came to a close in November.
… Informed Consent Resource to provide guidance and sample language for genomics research, including how to describe …
News Release
Mothers may be able to reduce guilt over their children's inherited obesity guilt by being more careful in the future about their children's diet.
… In a second study, Drs. Persky and Street reported that plain talk about genomic influences can lessen patients' …
History of Genomics Program
The NHGRI History of Genomics Archive is a digital archive that holds a wealth of materials from the early stages of the Human Genome Project and provides a unique and detailed look into how the field has developed in the decades following.
… aids and catalog records if they contain inappropriate language. Some documents in our collections may contain inaccurate, outdated, harmful and/or offensive language, such as sexist, racist, homophobic, ableist and dehumanizing language. In such cases, the language has been intentionally …
Fact Sheet
Informed consent is more than a form; it’s a process. What does it involve?
… and consent form, researchers should use appropriate language, videos or other educational materials that fall … written materials should strive to use simple but accurate language that describes the concepts. The amount of time …
File
… Sample Consent Document 4b (Spanish language version): Incorporación de la secuenciación genómica … Página 15 de 15 … Sample Consent Document 4b (Spanish language version) …
Event
NHGRI and the University at Buffalo Center for Disability Studies will hold a two-day symposium on October 6-7, 2022 to address historical constructions of disability and ableism, with a focus on the “irreducibility” of individuals with disability and the history of disability.
… Speakers will consider how scientific program funding language — and NIH communications — can better address the …