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About NHGRI
The Genomic Data Science Working Group facilitates engagement of the National Advisory Council for Human Genome Research on genomics and data science issues.
… Advisory Council for Human Genome Research on complex issues at the interface between genomics and data science. … The NHGRI Genomic Data Science Working Group was created in 2017 as a subcommittee of the National Advisory Council … challenges (from data management to data usage, including policy-related elements) as they relate to all areas of …
Policy Issues
NHGRI wants to ensure that all populations benefit from the advances of genomics research.
… is also necessary to understand ethical, legal and social issues including utilization of genomic information, access … genomics research, and have the opportunity to participate in various ways, such as becoming research scientists, research participants and policy makers. It is important for everyone to be informed …
Research Funding
The Division of Genomics and Society focuses on the societal issues that need to be studied and addressed as genomics advances.
… Genomics and Society is responsible for exploring societal issues related to genomics, incorporating and extending the … research program and integrating NHGRI-wide activities in these areas. … The Division of Genomics and Society is one … will also collaborate closely with the Division of Policy, Communications, and Education to ensure that the …
Staff
Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office of Genomic Data Science (OGDS) at the National Human Genome Research Institute (NHGRI)
… Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office … and grantee partners on data sharing and privacy policy issues. For the last three years, she has advised the NHGRI … matters. Within NHGRI, she holds a joint appointment in the Policy and Program Analysis Branch (PPAB), where she …
Policy Issues
Scientific institutions are developing recommendations to support the responsible use of human gene-editing research.
… In the United States and around the world, scientific … different groups including patients, community leaders and policy makers. NHGRI uses the term "genome editing" to … implications, international perspectives, governance, and issues related to equity and access to technology. On …
News Release
The Genomics and Society: Expanding the ELSI Universe conference focused on issues arising from the ethical, legal and social implications of genomic research.
… testing of women with family histories of breast cancer, genomics is rapidly becoming a fixture in our lives. Genomics and Society: Expanding the ELSI … Universe, a three-day conference on the vast number of issues that spring from the ethical, legal and social …
The Genomics Landscape
In the April 2024 issue of The Genomics Landscape, NHGRI Director Eric Green details how the Office of Genomic Data Science (OGDS) is becoming the epicenter for genomic data science at the institute, with numerous collaborations, projects and activities.
… late last month. This budget provides $48.6 billion in base funding across NIH, which is an increase of … credits” that allow researchers to conduct cloud-based genomics research on the AnVIL platform. In partnership with … input about computational genomics and data science issues. Recently, members of the working group published a …
The Genomics Landscape
In the January 2024 issue of The Genomics Landscape, NHGRI Director Eric Green announces the appointment of Dr. Adam Phillippy as the founding director of the Center for Genomics and Data Science Research (CGDSR).
… yours — and here’s to a 2024 featuring many breakthrough genomics advances! Last year ended with exciting news from … of two events that I had the pleasure of participating in last month. Brendan Lee, MD., Ph.D. , and I recorded an … available genomic screening technologies and costs, issues with false-positive results, and future research …
Policy Issues
Genetic information is used by law enforcement to investigate criminal acts and exonerate those who have been convicted of crimes they did not commit.
… and arrestees, or with DNA detected at other crime scenes, in order to identify criminal suspects. The technology's … or the practice of IGG. The Department of Justice Interim Policy on investigative genetic genealogy went into effect in … been convicted of crimes they did not commit. … Policy Issues …
The Genomics Landscape
In the August 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., spotlights the NHGRI Extramural Research Program and how it takes a dynamic approach to it's research portfolio to help foster groundbreaking advances in genomics.
… breakthroughs for diseases by making “pivotal investments in breakthrough technologies and broadly applicable … NIH and the White House Office of Science and Technology Policy are organizing a series of virtual listening sessions … on Wednesday, August 11, will be geared toward research on genomics, biomedical engineering and imaging, and health …