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Policy Issues
Genome editing is currently being applied to research on cancer, mental health, rare diseases, and many other disease areas.
… funded by NHGRI or other NIH Institutes takes place in the petri dish and in nonhuman organisms such as mice or zebrafish. Researchers … health, rare diseases, and many other disease areas. … Policy Issues …
Policies and Guidance
For FY22, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… In October 2020, NHGRI published its “Strategic Vision for … of the genomics workforce; and ethical, legal, and social issues related to genomic advances. … The NHGRI Extramural … To facilitate the implementation of this NIH-wide policy, NHGRI is very flexible in the support of early stage …
Policies and Guidance
For FY2023, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… In October 2020, NHGRI published its “ Strategic Vision for … of the genomics workforce; and ethical, legal, and social issues related to genomic advances. … The NHGRI Extramural … of Award issued in FY2022 as described in the FY23 Fiscal Policy . Small Business Innovation Research (SBIR) and Small …
Health
Genomic medicine involves using genomic information as part of clinical care and the health outcomes and policy implications of that clinical use.
… therapeutic decision-making) and the health outcomes and policy implications of that clinical use. Already, genomic medicine is making an impact in the fields of oncology, pharmacology, rare and undiagnosed … will also factor in any potential ethical and legal issues, as well economic factors such as cost-benefit ratios. …
Staff
Cristina Kapustij is the chief of the Policy and Program Analysis Branch at the National Human Genome Research Institute.
… Cristina Kapustij, M.S., is chief of the Policy and Program Analysis Branch at the National Human … needs for the field, and develop policy positions on issues arising from the translation of genomic research discoveries to uses within the public domain. In addition to advising Institute leadership on a broad range …
Policy Issues
Patients with genetic disorders and members of the public have diverse about germline genome editing.
… with genetic disorders and members of the public, both in the United States and around the world, have diverse views … it does have restrictions through legislation and NIH policy. The Appropriations Act of 2016, passed in December … have diverse about germline genome editing. … Policy Issues …
Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
… Participating in genomics research is an opportunity to support scientific … FAQs about Clinical Studies Legal, Ethical, and Safety Issues … Frequently Asked Questions … Get Involved … … understand, prevent, detect and treat disease. … Policy Issues …
The Genomics Landscape
In the March 2024 issue of The Genomics Landscape, NHGRI Director Eric Green spotlights the Centers of Excellence in Genomic Science (CEGS) Program evaluation.
… Executive Officer . Amanda will bring extensive experience in leading scientific societies, mostly recently at the … and NHGRI, I look forward to working closely with Amanda in the coming years. Second, later this month, Sean Mooney, … NIH’s data ecosystem, something of critical importance for genomics. In addition, Sean’s own research group will be …
Policy Issues
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.
… is reviewed and updated monthly. Searchable topics in the database include employment and insurance … Building a Sound Legal Foundation for Translating Genomics into Clinical Application” (grant #: R01HG008605 ; … bills introduced during U.S. state legislative sessions. … Policy Issues …
About NHGRI
The Genomic Data Science Working Group facilitates engagement of the National Advisory Council for Human Genome Research on genomics and data science issues.
… Advisory Council for Human Genome Research on complex issues at the interface between genomics and data science. … The NHGRI Genomic Data Science Working Group was created in 2017 as a subcommittee of the National Advisory Council … challenges (from data management to data usage, including policy-related elements) as they relate to all areas of …