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Policy Issues
In June 2013, the Supreme Court determined that DNA in its natural form cannot be patented.
… In June 2013, the Supreme Court determined that DNA in its … databases within 24 hours of being generated. This policy of open access to the genome has been a core ethos of … Human Genome Research Institute (NHGRI) to research "legal issues regarding patents" as part of the then center's …
Staff
Joy Boyer was a program director in NHGRI's Division of Genomics and Society.
… (ELSI) Research Program since 1996. As a program director in the NHGRI Division of Genomics and Society, Joy oversees a … Division of Genomics and Society. … Joy Boyer, societal issues, social policy, ethical legal and social implications, newborn …
The Genomics Landscape
In the May 2021 issue of the Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D. notes that a number of individuals with strong ties to NHGRI have been nominated and/or appointed to serve on the White House Science Team.
… is here, and with it comes many opportunities to engage in areas related to genomics and the biomedical research … of the White House Office of Science and Technology Policy (OSTP). President Biden is elevating the role of … each willing to foster sustained attention to these issues in their research institutions and training programs; …
The Genomics Landscape
In the April 2021 issue of the Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D. talks about the NIH UNITE program's goal to end structural racism in biomedical research.
… Day, I am seriously excited about highlighting progress in areas that influence the genomics research enterprise — … to science education and outreach, to data science policy and strategy. But before you get to those stories, I … begun to identify actions to address structural racism and issues related to the lack of diversity, equity, and …
The Genomics Landscape
In the September 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., details how social media provides NHGRI staff with a space to talk about their work, make genomics topics easy to understand, and show how genomics can positively affect people.
… array of updates about the many happenings at NHGRI and in genomics, I would like to draw your attention to efforts of … and data interpretation. This RFI was released in parallel with a companion RFI focused on reference …
Research Funding
The NHGRI Ethical, Legal and Social Implications (ELSI) Research Program Abstracts and Activities Database organizes abstracts for all ELSI-related activities
… projects that conduct research and education on ELSI issues. ELSI also supports other program activities such as workshops, research consortia and policy conferences related to these issues. … The ELSI … for all ELSI-related activities. ​ … Ethical Issues In Genomics, Legal Issues In Genomics, Social Issues In …
Explainer
Appropriate use of population descriptors in research is a critical scientific issue that is important for advancing genomic science and improving healthcare across human populations.
… The Big Picture Appropriate use of population descriptors in research is a critical scientific issue that is important … and to advance the use of population descriptors in genomics and biomedical research.  The National Academies of … ethnicity may be useful for examining social or political issues; documenting racial/ethnic health disparities ; …
Policies and Guidance
NHGRI links to external websites to supplement the information found on our website.
… Our website has links to many other federal agencies, and in a few cases we link to private organizations. You are subject to external site's privacy policy when you leave our site. We proudly comply with 508 … … External Link Disclaimer, Non-federal Websites, Website Policy, Federal Policy, NIH Website Policy … NHGRI links to …
Research Funding
The three research domains to be considered for support by the NHGRI Ethical, Legal and Social Implications Research Program.
… the Rights of Individuals and Groups Law, Regulation and Policy Governing Genomics Industry, Commerce and Economics … … Research Design and Implementation Diversity and Inclusion in Genomic Research Community Engaged and Community Driven … identifies and addresses ethical, legal, social and policy issues that arise for individuals, communities and care …
Research Funding
Applications demonstrating excellent grantsmanship, grant mechanisms and research methodologies common to ethical, legal and social implications research.
… independent NIH research support during this transition in order to help awardees to launch competitive, independent … Lessons, the Domestic Legal Landscape, and Options for U.S Policy Anya Prince 2015 Summary Statement Full Application … of Germline Gene Editing: Ethical, Legal, and Social Issues Bryan Cwik 2018 Summary Statement Full Application …