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The Genomics Landscape
In the December 3, 2020 edition of The Genomics Landscape, Dr. Eric Green spotlights on ELSIhub.
… continue to be optimistic that we will find ourselves in very different COVID-19 circumstances by next … opportunities, solicit expert commentary, obtain advice on policy or legislation, and arrange mentor/mentee … and capacity building efforts related to bioethical issues Research supplements to promote diversity in …
Organizational Structure
NHGRI’s Office of Genomic Data Science (OGDS) provides leadership, strategic guidance and coordination for NHGRI activities, programs and policies in genomic data science.
… The Office of Genomic Data Science (OGDS) was established in 2021 to: Develop, promote, support and coordinate genomic … of the NACHGR in the numerous and increasingly complex issues at the interface between genomics and data science. … career researchers September 7, 2023 NIH data management policy commits to making research results available February …
Research Funding
The ELSI Publications and Products Database organizes publications for ELSI projects and activities by the last name of the principle investigator.
… Since its creation in 1990, the Ethical, Legal and Social Implications (ELSI) … products from research supported by the ELSI program on issues related to using DNA for identification purposes in a … of the principle investigator. … Ethical Issues In Genomics, Legal Issues In Genomics, Social Issues In …
Events
Data sharing has been a central tenet of the field of genomics since the Human Genome Project.
… … Data sharing has been a central tenet of the field of genomics since the Human Genome Project. While many recognize … and risks while crafting genomic data sharing policies. In this session, the four panelists will describe evolving … … Data sharing has been a central tenet of the field of genomics since the Human Genome Project. … Data sharing has …
Policy Issues
Synthetic biology is a field of science that involves redesigning organisms for useful purposes by engineering them to have new abilities.
… world are harnessing the power of nature to solve problems in medicine, manufacturing and agriculture. … Redesigning … the Presidential Commission for the Study of Bioethical Issues and the National Academies of Sciences, Engineering … as laid out by the Dual Use Research of Concern (DURC) policy. For more information about the biosecurity policies …
Careers and Training
The Health Disparities Unit (HDU) in the Social and Behavioral Research Branch (SBRB) of the National Human Genome Research Institute (NHGRI) is recruiting a postdoctoral fellow interested in the study of the intersection of genomics, social determinants of health and health inequities.
… The Health Disparities Unit (HDU) in the Social and Behavioral Research Branch (SBRB) of the … fellow interested in the study of the intersection of genomics, social determinants of health and health inequities … genetic therapies into health care, as well as societal issues of genomics, race and human genetic variation. … The …
Policy Issues
Payers such as insurance companies and Medicare need systematic ways of evaluating genetic tests for reimbursement.
… available through newly developed genetic tests. In order for patients to have full access to the benefits of … of genetic testing. There are several reports created by policy and scientific experts seeking to advise Federal … of evaluating genetic tests for reimbursement. … Policy Issues …
The Genomics Landscape
In the October 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., introduces us to new scientific director Charles Rotimi, Ph.D., his background and prior accomplishments.
… to bring to your attention a spectacular recent feature in Science that describes the remarkable work of NHGRI’s … for a Just and Equitable Future.” Justice and equity issues are embedded in the complex questions about utility, … two fellowships each year. The Genetics and Public Policy Fellowship provides fellows an opportunity to work in …
Policy Issues
This glossary contains definitions for commonly used terms (such as "bill", "statute", "regulation" and more) found in the Genome Statue and Legislative Database.
… (such as "bill", "statute", "regulation" and more) found in the Genome Statue and Legislative Database. … Bill: The … or amend rules that apply to both houses; to deal with issues or matters affecting both houses, such as a concurrent … found in the Genome Statue and Legislative Database. … Policy Issues …
News Release
The National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should obtain, share and access genomic data from human and non-human sources. As a leader in genomics, including relevant policy development and implementation, the National Human Genome Research Institute (NHGRI) encourages data sharing practices that go beyond the NIH expectations.
… National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should … genomic data from human and non-human sources. As a leader in genomics, including relevant policy development and …